Rare Disease Relief for Ukrainian Refugees
As leaders and colleagues of rare disease companies, we are asking for your collaboration with helping children and families with rare diseases attempting to flee Ukraine. We are working with Global Genes to identify, align and deploy our company resources for rare disease patients.

While our efforts are still early and in progress, if you have a desire to join us, we ask that you let us know the type of resources you would contemplate committing to a centralized source via Global Genes.
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Email *
Your Name *
Company *
Phone Number
What types of resources would you be willing/able to commit to the effort? *
Please note who will be the point person for this effort (if someone other than the person filling out this form). Include: Name, Title, Email
Please indicate whether you would like to be included on future email communications related to this effort. *
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