Rare Disease Relief for Ukrainian Refugees

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As leaders and colleagues of rare disease companies, we are asking for your collaboration with helping children and families with rare diseases attempting to flee Ukraine. We are working with Global Genes to identify, align and deploy our company resources for rare disease patients.

While our efforts are still early and in progress, if you have a desire to join us, we ask that you let us know the type of resources you would contemplate committing to a centralized source via Global Genes.

Email *

Your Name *

Company *

Phone Number

What types of resources would you be willing/able to commit to the effort? *

Cash contribution for a directed fund administered through Global Genes

Medical supplies donations

On-the-ground resources (e.g., medical personnel, organization affiliations, experts/other contacts)

Resources / support staff to establish unified communications platform

Other:

Required

Please note who will be the point person for this effort (if someone other than the person filling out this form). Include: Name, Title, Email

Please indicate whether you would like to be included on future email communications related to this effort. *

Yes

Send me a copy of my responses.

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