How is the cost-of-living crisis affecting you?

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This survey is for people with epilepsy. Family, friends and carers may complete this survey on behalf of somebody with epilepsy.

How often do you tend to have seizures? *

What is your current employment status? *

Do you receive any benefits? *

PIP (Personal Independence Payments)

Universal Credit

I have been refused benefits

Other:

Required

Are you experiencing delays with your benefits payments?

Yes

N/A

Clear selection

If you selected 'Yes' to the above, how long have the delays been?

How is the cost-of-living crisis affecting you? Please tick up to 5 statements that are true for you. *

I am experiencing more stress due to the cost-of-living crisis

I have had more seizures due to stress

I have lost sleep because of stress or worry about the cost of living

I have had more seizures due to lack of sleep

I have missed meals because of limited money

I have had more seizures due to missing meals

I am more isolated because of limited money

I am worried about being able afford household bills, rent or mortgage repayments in the coming months

I am worried about supporting myself and others in the coming months

I am worried that my epilepsy will get worse in the coming months

I am worried about being able to afford to get to medical appointments

I have a job, but I worry about being able to afford to get to work

I have a job, but if my condition worsens, I might struggle to work

None of the above

Required

Are you using any cost-saving measures to offset escalating costs? If so, please explain here:

If you’d like to tells us more about any of the above, or add something else, please do so here:

If you’re happy to speak to us about your experience of the cost-of-living crisis, please enter your email address and we’ll get in touch.

How old are you? *

Which area of the UK do you live in? *

What is your gender?^

Female

Male

Non-binary

I'd prefer not to say

Other:

Clear selection

How would you describe your ethnicity?^

Asian or Asian British

Black or Black British

Chinese or Chinese British

Mixed heritage

White

Any other ethnic background

Prefer not to say

Clear selection

Fields marked ^

Epilepsy Action is collecting this information to ensure that our commitment to being an inclusive organisation dedicated to eradicating discrimination and ensuring equal opportunities for all people is achieved and maintained.

Your information will be stored anonymously, confidentially and used only for the purpose of monitoring our reach, impact and the demographics of people we engage with and support.

All data collected will be stored and monitored in line with relevant legislation. Details of our fair processing is outlined in our Privacy Policy.

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