Patient Recommended NF Specialist Survey
Know a great NF doctor? Please help other NF patients and families find this specialist by filling out the survey below, developed by the NF Clinic Network Task Force of the Children’s Tumor Foundation. The information submitted will be used to further develop a national list of doctors familiar with NF in a variety of specialties, for both children and adults with NF. Please fill out a separate survey for each specialist you would recommend. Any identifying personal information collected in this survey (such as your name and contact information, should you provide them) will not be shared with anyone, will not be included in any public postings, will not be used for any marketing, nor will it be added to the CTF mailing list.

Please keep in mind that the purpose of this survey is to collect positive experiences and recommendations, in order to be most helpful to NF patients and families. If you have a specific concern about an existing NF Clinic, please contact Heather Radtke at hradtke@ctf.org.

We will be collecting responses to this survey on an ongoing basis. Once we have compiled the responses we will communicate the results to the NF community via the CTF website and social media. If you are looking for an NF Clinic or doctor, please visit the ‘Find a Doctor’ section of the Children’s Tumor Foundation website at www.ctf.org or contact our Patient Care Coordinator, Kate Kelts at kkelts@ctf.org.

Thank you for participating in the survey. Your answers will help us build an even stronger network and connection between NF doctors and patients across the United States.

NF Clinic Network Task Force
What is the diagnosis of the patient seeing this doctor? *
Who is completing this survey? *
Is the individual with NF a child or an adult? *
Please list the name of the doctor you are recommending:
Please fill out a separate form for each doctor you are recommending
Your answer
Please select the specialty of the doctor you are recommending:
What facility/hospital is this doctor affiliated with?
Your answer
Please provide any contact info you have for this doctor:
Phone number, address, city and state, scheduling phone number, email address, other information
Your answer
Is this doctor connected to an NF Clinic?
How long has the patient received care from this doctor?
Why would you recommend this doctor?
Please keep in mind that the purpose of this survey is to collect positive experiences and recommendations, in order to be most helpful to NF patients and families. If you have a specific concern about an existing NF Clinic, please contact Heather Radtke at hradtke@ctf.org.
Your answer
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