Self-monitoring
Barts-MS
Would you be interested in self-monitoring your MS?
Does your HCP regularly assess your level of disability?
HCP = healthcare professional, PROM = patient-related outcome measure, EDSS = expanded disability status scale, 25-FTW = 25-foot time walked, SDMT = symbol digit modality test, LCLA = low-contrast letter acuity, 9-HPT = 9-hole peg test
Yes
No
EDSS
25-FTW
9-HPT
SDMT
LCLA
Walking distance
PROM
Other
What is your EDSS?
If you don't know your EDSS you can estimate it using the webEDSS calculator (https://edss.clinicspeak.com/#/welcome).
If possible, please enter your times for the 9-HPT?
If you do not have access to a 9-hole peg test you may be able to get this done the next time you visit your MS centre. Another option is to measure your performance using a DIY version or using the cardboard version of the 9-HPT (http://www.clinicspeak.com/9-hole-peg-test/). Please note your 9-HPT results are not essential for the survey.
Dominant hand - trial 1 (secs)
Your answer
Dominant hand - trial 2 (secs)
Your answer
Non-dominant hand - trial 1 (secs)
Your answer
Non-dominant hand - trial 2 (secs)
Your answer
How long have you had MS (years)?
Your answer
How old are you (years)?
Your answer
What country do you live in?
Your answer
Comment
Your answer
Disclaimer
No personal identifiers will be collected as part of this audit. By completing this survey you are consenting to the data you provide being analysed by Professor Giovannoni and the MS Team at Barts Health NHS Trust. Results of this survey will be analysed, written-up, presented to the Barts-MS team and may be submitted for publication.
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