Lived experiences of neonatal care
Birth Voices East the Maternity and Neonatal Voice Partnership for the James Paget University Hospital are working with the JPUH Neonatal Team to bring service user voice forward to promote change 

Please fill in this survey if you have lived experience of the JPUH Neonatal Intensive Care Unit or Transitional Care team
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What year did you access care from the JPUH Neonatal team either on NICU or by Transitional Care
How long did your baby stay on NICU?
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How long did your baby receive care from the Transitional Care team
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I understood why my baby needed to be admitted into the NICU/Transitional Care?
strongly disagree
strongly agree
Clear selection

I received regular updates from neonatal staff about my baby’s condition , care and progress throughout their stay?

strongly disagree
strongly agree
Clear selection
Thinking about the care you received the NICU team, how much do you agree or disagree with the following statements. 


I was listened to 
strongly disagree
strongly agree
Clear selection
I was treated with kindness/understanding
strongly disagree
strongly agree
Clear selection
I understood the information and explanations I was given
strongly disagree
strongly agree
Clear selection
I was involved in the decisions around my baby's care
strongly disagree
strongly agree
Clear selection
I was able to involve the people surrounding me
strongly disagree
strongly agree
Clear selection
Thinking about the care you received the Transitional Care Team, how much do you agree or disagree with the following statements. 


I was listened to 
strongly disagree
strongly agree
Clear selection
I was treated with kindness/understanding
strongly disagree
strongly agree
Clear selection
I understood the information and explanations I was given
strongly disagree
strongly agree
Clear selection
I was involved in the decisions around my baby's care
strongly disagree
strongly agree
Clear selection
I was able to involve the people surrounding me
strongly disagree
strongly agree
Clear selection
I was supported to feed my baby how I wanted to
strongly disagree
strongly agree
Clear selection
I was given clear information on safe sleep on discharge
strongly disagree
strongly agree
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I was given clear information on temperature regulation for my baby on discharge
strongly disagree
strongly agree
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I was given clear information on infant feeding on discharge
strongly disagree
strongly agree
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Overall how did you feel about your experience of neonatal care during your baby’s stay?

poor
excellent
Clear selection
Overall how did you feel about your experience of transitional care during your baby’s stay?

poor
excellent
Clear selection
Please give any other feedback here
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