We're seeking passionate individuals to join our Scleroderma Advocacy Team. This group is a partnership between the Scleroderma Foundation of Greater Chicago and the Scleroderma Foundation of California. As an advocate, you'll play a vital role in creating change and improving lives affected by scleroderma. Some of the activities you may be participating in are listed below.
Our Mission
Build a team of dedicated scleroderma advocates that collaborates with other patient and advocacy organizations to create a unified voice to impact change.
Advocacy Activities
Bi-Monthly meetings aligned with legislative calendars
Storytelling and media appearance training
Congressional meeting attendance and training
Opportunities for social media, podcast, and media engagement
Scleroderma community awareness efforts
Attend meetings with legislators on Capitol Hill in Washington DC and/or virtually on Zoom
Ready to Make a Difference?
Apply now to join our scleroderma advocacy team and become a voice for change! If you have any questions you can reach out to us at 312-660-1131 or info@stopscleroderma.org.
Check out our website for more information about the Scleroderma Foundation of Greater Chicago at