Event website at http://stxbp1disorders.org/sifm2019/.
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During the family conference sessions, there will be an adjacent room for STX'ers. Families are strongly encouraged to plan for their own caregiver, but the STXBP1 Foundation is working to secure a limited number of caregivers for STX'ers. Ideally we will find skilled volunteers, but there may be a cost for care. We will follow up with families who request care below.