#MEAction NINDS RFI responses
Free response input for stakeholders for item 8 and item 9 on the 2019 NINDS RFI. Remember that we are looking for approaches the NIH itself may be able to use. Finally, if you see any notable gaps in the responses to the other items, please consider submitting your own RFI response.
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What are some approaches to reduce barriers that prevent individuals with ME/CFS from participating in research? For example, these might be logistical challenges, such as difficulty traveling to a study site, or might be because of an unwillingness to undergo certain types of research protocols.
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What are some strategies for increasing ME/CFS research collaboration and communication between relevant stakeholders?
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