SarcoidosisUK is part of a Patient Advisory Group helping to create these guidelines. The Patient Advisory Group is made up of members from sarcoidosis charities and organisations from many different European countries and so represents sarcoidosis patients from all over Europe.
This is your opportunity to make your voice heard as a sarcoidosis patient! We want to hear your comments and concerns about sarcoidosis treatment. Your comments will be brought together alongside many other patients' views to inform the final ERS Treatment Guidelines. This will be a very important document which will influence sarcoidosis treatment.
There will probably be other opportunities to input to the guidelines over the next 18 months (eg focus groups). SarcoidosisUK will keep you up to date on this and report on the guidelines' progress in our newsletters and on our website.
If you have any questions or would like some more information on the project please get in touch. Your details will be kept privately within SarcoidosisUK and will not be shared with anyone.