STORIES OF HOPE (Survivor Story)
Purpose
The purpose of this is for survivors of Preeclampsia, Eclampsia, HELLP Syndrome to share their experiences to educate women and their families and health workers. We therefore encourage you to be true to your own writing style and share your experience in a way that will make sense to you and motivates other women out there.

Background
Please share any relevant details to support or lead into your story, such as age, past medical
or surgical history, family history, anything related to your diagnosis (for example, if writing
about family history with BP, include history of previous pregnancy induced hypertension etc.  

Gratitude
Thank you in advance for sharing your story! You are Brave and we are privileged to have you share your experience with us

Confidentiality

We value your input and respect your privacy. While completing this form, you have the option to keep your responses confidential. If you choose confidentiality, your identity will be known only to administrators and your responses will be anonymized in all reports and analyses.

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Full Name/ Initials *
Contact Number (Preferably WhatsApp) *
Date of submission *
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SIGNS AND SYMPTOMS/PRESENTATION

How many weeks or months was your pregnancy when you started attending ANC (Antenatal Care) ?*


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Did you know about the condition? (Preeclampsia)
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Did you notice a change in your vision, swollen feet/arms (oedema), did you experience
headache or got tired easily?
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How long after noticing these changes did you see a Gynaecologist or healthcare provider? *
What was the sequence of events that led you to your healthcare provider? *
Were you referred elsewhere? *
What type of healthcare provider(s) ultimately managed your condition? *
DIAGNOSIS

What diagnostic testing did you undergo?

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Do you have a prior medical history of hypertension
Clear selection
What were the readings of your BP(including your highest BP)? *
Where was it done?

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Did you understand the purpose of the testing?
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Were you educated about what to expect?

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How were results presented to you?

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Did you understand the results?

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TREATMENTS

What treatments were necessary to treat your condition?

Your answer

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How was the decision to treat you made?

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Did you have options?

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Were the options presented to you clearly?
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How long were you put on antihypertensives?

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COMPLICATIONS

Did you experience any complications because of your condition or its treatment?
*

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Did you give birth normally or you had C/S?
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Did you give birth on your expected date of delivery, earlier(prematurely) or later than that ?

Your answer

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Were you aware of this/these potential complications?
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How were they managed?
Is or was your condition resolved?
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Were there any follow-up visits or treatments and is it still ongoing?
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Were you told you could give birth again?


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FEEDBACK

Where you satisfied the level of care you received ?
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What would you have wanted  your healthcare providers( state healthcare provider) to do differently?
WHAT YOU’VE LEARNED/ADVICE TO OTHERS AND PREGNANT WOMEN

Please share any insight. Looking back, is there anything you wish you or your healthcare
provider did differently?
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What impact has this disease, or its treatment had on your life, your family, work etc?
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FULL STORY

Now please write the full story/Experience in the Preeclampsia journey. Your story/experience should reflect most of the responses you gave to the above questions.
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