ENETS nurses and dietitians

JavaScript isn't enabled in your browser, so this file can't be opened. Enable and reload.

ENETS nurses and dietitians - Questionnaire

For us as a group of nurses and dieticians within ENETS, it is often difficult to reach or identify the nurse/dietitians' members. From our earlier study in 2019 among nurses from 26 different countries, we know that 51% of nurses who care for patients with a neuroendocrine tumor do not feel confident in caring for these patients. Based on this fact, we would like to further investigate how we as a group can contribute to improving this confidence. It does not matter if you work in an ENETS center of excellence (CoE) or not. However, we hope to reach all nurses and dieticians of the centers with this questionnaire, because we believe that they deserve more appreciation and attention in the visitation procedures of the centers. In addition, with more colleagues, we can achieve more if we look at collaboration, sharing of knowledge, education and role development.

So, who are our listeners, what are their needs, what are their expectations of us, and can they contribute to our group in any way?

Please help us answer these questions and complete the questionnaire. Thank you!

To better understand our ENETS members (nurses and dieticians), we would like to know who you are and where you work.

1. I am working as

Nurse on the ward

Nurse in outpatient clinic

Research nurse

Other type of nurse:

Dietitian in hospital seeing out-patients

Dietitian in hospital seeing in-patients

Dietitian working in community service (not in a hospital)

Other:

2. Do you care for patients with neuroendocrine neoplasm (NET/NEC)?

Yes, only for NET / NEC patients

For NET / NEC patients and other patients

3. How many patients with NET/NEC do you see on average per month?

< 10 patients

10-25 patients

25-50 patients

> 50 patients

4. In which (sub)specialty do you work? (you may select multiple answers)

Oncology

Endocrinology

Gastroenterology/ Hepato-pancreato-biliary

Surgery

Nuclear Medicine

Pulmonology

Other:

5. Do you work in a centre of excellence?

Yes

I do not Know

If you answered 'no’, you could continue to question 13.

There are now a large number of ENETS Centers of Excellence (CoE), but nursing and dietician staffing in each centre is still unclear. We would like to get to know you better.

6. Are you aware of the CoE certification programme and procedures?

Yes

7. Do you think it is important that you as a nurse or dietician are also involved in the CoE certification programme and procedures?

Yes

8. Are you involved in the CoE visitations or quality improvements within your hospital?

Yes, please go to question 10

No, please go to question 9

9. Would you like to be involved in the certification programme and procedure activities that a CoE entails in your own hospital?

Yes

Other:

10. Do you think a nurse/dietitian working in a CoE should do additional tasks/play a different role compared to those not working in a CoE?

Yes

I don’t have an opinion about this.

11. What is your role within the CoE, when looking at specific tasks to meet the requirements of a CoE? (multiple answers are possible)

My role as a nurse/dietitian within the centre is noted in the Organisational Chart

I am involved in drawing up standards of care, care pathways, etc.

I help to provide the mandatory annual figures

My name is mentioned in the Organizational Chart/ Management Structure

When the visitation committee comes by, I am also invited to sit at the table

Other:

12. Do you think it should be mandatory for a CoE to provide their nurses and dietitians (at least 1 point of contact per specialty) with the possibility to take part in ENETS conferences /education programmes /contribute in some way to the ENETS nurses and dietitians group? (you may select multiple answers)

Yes, at least one nurse and a dietician must be an ENETS member in a CoE

Yes, nurses and dietitians in a CoE should have the opportunity to contribute to the ENETS nurses and dietitians working group

Yes, nurses and dietitians should be given the opportunity to participate in or organize ENETS education/conferences

No, I don't find any of the above necessary

Other:

The role of the nurse or dietitian in an ENETS CoE is often underexposed. We would like to know what your role is within the NET/NEC patient journey, and additionally which role you actually think is appropriate or desirable. It does not matter whether you work in a CoE or not.

13. What is your current role as a nurse/dietitian in your organization? (you may select multiple answers)

I see patients at the outpatient clinic and discuss medical results/ nutrition and diet related issues.

I see patients at the outpatient clinic together with or after the medical specialist to provide psychosocial/paramedical care.

I’m a case manager for NET/NEC patients

I work in the clinic taking care of NET/NEC patients

I’m a research nurse for NET/ NEC patients

I am a research dietitian (or research is the main part of my job) for NET/NEC

I’m involved in PRRT-treatment

I’m involved in chemotherapy or other systemic treatments

Other:

14. Do you feel that your role as a nurse/dietitian is currently underexposed?

No, I am completely satisfied with my current role

Yes, I would like to be more involved in the NET/NEC team / patient journey within my hospital

I don’t know

Other:

We are curious if you have access to education related to NET/NEC care and if you are allowed to attend the ENETS conference or other conferences. Do you have suggestions to improve education about this topic?

15. Do you have access to education related to NET/NEC care?

Yes

16. If you answered Q15 with YES, will you select below the kind of education you have access to? (you may select multiple answers)

Education about NET/NEC care in my hospital

Conferences about NET/NEC in my country

ENETS conferences (on regularly basis)

ENETS website and webinars

I provide for my own education by reading literature about NET/NEC

Formal education packages (could be on-line) provided by NET/NEN Societies/charities, or special interest groups

Other:

17. If you have attended the ENETS annual conference before how was this funded? (you may select multiple answers)

Speaker at ENETS

Self-payment

Hospital-payment

Pharma-payment

ENETS grant

Other grant (s)

Charity

Other:

18. If you have not attended ENETS yet, what has prevented you from attending? (you may select multiple answers)

Costs

Language

Distance

Time management

Other:

19. Are you an ENETS member?

Yes

No, but I am a member of a professional NET/NEC association in my own country

Other:

20. Are you aware of the ENETS nurses and dietitian group?

Yes

21. What are your expectations of the ENETS nurses and dietitians' group? (you may select multiple answers)

Sharing knowledge and providing education (physically / virtually / podcasts)

The creation of guidelines and care protocols

Multidisciplinary collaboration (to be able to approach each other for specific questions in the field of patient care, role development or cooperation)

Scientific support and research

Other:

22. Do you have ideas about how collaboration and/or education can be shaped?

23. Would you like to play an active role in the ENETS nurses and dietitian group?

Yes, but I don't have enough time to actually participate

Yes, but I'm curious how much time I will need to give

Yes, but I think my knowledge of the English language is lacking

Other:

Other suggestions/comments for the ENETS nurses/dietitian group?

Submit

Clear form

Never submit passwords through Google Forms.

This content is neither created nor endorsed by Google. - Terms of Service - Privacy Policy

Does this form look suspicious? Report

Forms