Survey responses are anonymous. There is no identification information requested or recorded (no names, IP addresses, email addresses or any other information that could identify the respondent).
The data collected will be summarized and used to help support and educate our group members.We may post summary results on our website (if the group approves and there is enough data to be useful)We may, eventually, share the raw, anonymous data with medical researchers or analysts (if the group approves)
There are 26 questions, including a few follow-on questions that are asked depending on your answers.All questions are optional (Except for 2 follow-on questions)
NOTE: we may, in the future, require people using this survey to get and use a GMAIL account to fill in the survey. That still keeps the survey anonymous (since the gmail address is not recorded on the results) , but would not require remembering a special code word (which is, essentially, a password)