Registration Form - 5th Annual Rare Diseases International Meeting
Registration form for Rare Diseases International’s 5th Annual Meeting

When: February 20, 2019

Where: Microsoft Offices, Times Square, New York


- 8:30-10:30 AM EST Rare Diseases International Morning Session (for RDI members only): General Assembly and
Membership Meeting
- 11:00 AM-12:30 PM EST: Global Commission launch meeting (RDI members invited)
- 1:00 PM – 2:00 PM EST: Lunch for RDI members and Global Commission attendees
- 2:00-3:30 PM EST and 4:00-5:30 PM EST Afternoon Sessions (open to all): Interactive sessions to understand, discuss and get further involved in Rare Diseases International’s advocacy plans and activities. The meeting will also be a unique opportunity to learn from and share with other patient advocates and rare disease stakeholders from around the world.

Those present in the morning are invited to attend the Launch of the Report of the Global Commission to End the Diagnostic Odyssesy of Children with a Rare Disease, in the same venue on the same day.

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Both the RDI members and open meetings will take place the day before the Second High-Level Policy Event of the NGO Committee for Rare Diseases being held on February 21 at United Nations Headquarters in New York City. This event has a limited number of spaces available. If you are interested in attending , please contact the Secretariat of the NGO Committee for Rare Diseases at
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