When: February 20, 2019
Where: Microsoft Offices, Times Square, New York
- 8:30-10:30 AM EST Rare Diseases International Morning Session (for RDI members only): General Assembly and Membership Meeting- 11:00 AM-12:30 PM EST: Global Commission launch meeting (RDI members invited) - 1:00 PM – 2:00 PM EST: Lunch for RDI members and Global Commission attendees- 2:00-3:30 PM EST and 4:00-5:30 PM EST Afternoon Sessions (open to all): Interactive sessions to understand, discuss and get further involved in Rare Diseases International’s advocacy plans and activities. The meeting will also be a unique opportunity to learn from and share with other patient advocates and rare disease stakeholders from around the world.
Those present in the morning are invited to attend the Launch of the Report of the Global Commission to End the Diagnostic Odyssesy of Children with a Rare Disease, in the same venue on the same day.