The Center, directed by W. Ian Lipkin, is conceptualized as a “center without walls.” The administrative core of the Center is housed in the Center for Infection and Immunity at Columbia University’s Mailman School of Public Health. Scientific and clinical activities comprise three distinct but interrelated projects. Key Center faculty and staff include Dana March (Columbia, Deputy Director, Administrator, Co-Investigator project 3); Oliver Fiehn (UCD, Co-Lead, Project 2); John Greally (Einstein, Co-Lead, Project 2); Anthony Komaroff (Harvard, Lead, Project 3); clinical Co-Investigators for Project 3, Lucinda Bateman (Bateman Horne Center), Daniel Peterson (Simmaron), Susan Levine (Private Practice), and José Montoya (Stanford); and Paul Newswanger (Columbia, Project Coordinator). The Community Advisory Committee, the Scientific Advisory Board, and the Internal Executive Committee will advise Center activities.
Specifically, the Community Advisory Committee will:• Work with CII to disseminate information to the community about the Center’s research and opportunities for participation.• Communicate with the Center about community needs, priorities, and current and past research• Assist the Center in weighing and balancing the strategic priorities among stakeholders (e.g. patients, caregivers, families, other advocates, etc.).• Participate in the development of working groups for select Center activities (e.g. epidemiological analyses, clinical protocols, mobile app development, etc.) In cases where additional expertise will be helpful, working groups may include participants that are not part of the core CAC.
To accommodate possible health status changes of CAC members, the CAC will be considered to have a quorum when at least 6 members are present at any meeting. A simple majority will be used to determine consensus. Meetings will be capped at 1 hour to accommodate schedules and health status of CAC members unless otherwise discussed.