Arm and Hand Function (2)
This short questionnaire is being done to supplement and extend a previous survey on the issue of upper limb (arm and hand) function in people with MS.
Should MSers in wheelchairs be excluded from progressive trials?
Compared to lower limb function (walking) how important is upper limb function?
Upper limb function includes multiple tasks, for example transferring yourself from a wheelchair, dressing yourself, cleaning your teeth, eating, propelling your wheelchair, turning the pages of a book, using a keyboard, making a telephone call, sending a text message, accessing a remote control, brushing your hair, taking your medication, catheterising yourself, etc.
Upper limb function is unimportant compared to walking
Upper limb function is critically important (more important than walking in terms of staying independent)
What aspect of your hand function has been affected by MS?
Fine or dexterous movements
Power or grip strength
How long have you had MS (years)?
How old are you (years)?
What sex are you?
Country of residence?
Would you be interested in self-monitoring the impact of MS on your arm and hand function?
Don't know your EDSS score?
You can calculate your EDSS score online using our webEDSS (
); it takes between 2 and 5 minutes to complete.
What is your EDSS score?
0.0 - No disability, no abnormal neurological signs
1.0 - No disability, minimal signs in one functional system
1.5 - No disability, minimal signs in more than one functional system
2.0 - Minimal disability in one functional system
2.5 - Mild disability in one functional system or minimal disability in two functional system
3.0 - Moderate disability in one functional system, or mild disability in three or four functional system. No impairment to walking
3.5 - Moderate disability in one functional system and more than minimal disability in several others. No impairment to walking
4.0 - Significant disability but self-sufficient and up and about some 12 hours a day. Able to walk without aid or rest for 500m
4.5 - Significant disability but up and about much of the day, able to work a full day, may otherwise have some limitation of full activity or require minimal assistance. Able to walk without aid or rest for 300m
5.0 - Disability severe enough to impair full daily activities and ability to work a full day without special provisions. Able to walk without aid or rest for 200m
5.5 - Disability severe enough to preclude full daily activities. Able to walk without aid or rest for 100m
6.0 - Requires a walking aid - cane, crutch, etc - to walk about 100m with or without resting
6.5 - Requires two walking aids - pair of canes, crutches, etc - to walk about 20m without resting
7.0 - Unable to walk beyond approximately 5m even with aid. Essentially restricted to wheelchair; though wheels self in standard wheelchair and transfers alone. Up and about in wheelchair some 12 hours a day
7.5 - Unable to take more than a few steps. Restricted to wheelchair and may need aid in transferring. Can wheel self but can not carry on in standard wheelchair for a full day and may require a motorised wheelchair
8.0 - Essentially restricted to bed or chair or pushed in wheelchair. May be out of bed itself much of the day. Retains many self-care functions. Generally has effective use of arms
8.5 - Essentially restricted to bed much of day. Has some effective use of arms retains some self care functions
9.0 - Confined to bed. Can still communicate and eat
9.5 - Confined to bed and totally dependent. Unable to communicate effectively or eat/swallow
No personal identifiers, including your computer's IP address, will be collected as part of this survey. Please note that by completing this survey you are consenting to the data you provide being analysed by Prof. Giovannoni and his collaborators. Results of this survey will be presented on this blog, at ECTRIMS 2016 and may be submitted for publication.
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