truthforourbabies.org.uk
We are a group of parents who have lost babies where there have also been concerns about the standard of care from the medical teams looking after us at University Hospitals Sussex NHS Foundation Trust, which includes Royal Sussex County Hospital (Brighton), Worthing Hospital, St Richard's Hospital (Chichester) and Princess Royal Hospital (Haywards Heath). The group was formed in 2023.
We have come together to call for improvements to maternity care at UHSussex. We are working with our MPs to highlight our concerns and have recently met with the Health Secretary, to ask for an independent review of a number of baby deaths at UHSussex.
We also support each other through complaints processes, hospital led Perinatal Mortality Review Tool reports, independent Maternity and Newborn Safety Investigations (MNSI, previously HSIB), coroners inquests and medical negligence legal cases.
If you are a parent in Sussex who has sadly had a similar experience and would like to join us, please get in touch below. We aren't professionals and can't offer any advice but we are a group of mothers and fathers who support each other and are working so our children's legacies improve outcomes for other babies in our area in the future.
If you want to get in touch to share your story please email
truthforourbabies@outlook.com or fill in the form below and we can have a chat - there's no pressure to commit to anything. We also have a Facebook group which can be found here:
https://facebook.com/groups/7825031227534432/
Some of Our Babies Stories
Press About the Group
