Epilepsies Action Network - Call for Federal Funding Policy Recommendations
The Epilepsies Action Network (EAN) is beginning to explore our legislative priorities for FY 25. We are seeking feedback from the greater epilepsies community. We invite you to share YOUR top three policy priorities, as they pertain to increased federal funding for the epilepsies, by August 12. 

These suggestions can include increasing funding for current programs, or establishing funding for new federal programs. We encourage ideas that build off the work of the Curing the Epilepsies conferences and Benchmarks Stewards who have for many years identified key research opportunities, as these constitute the best current summation of the top priorities for our community. Similarly, the Institute of Medicine Epilepsy Across the Spectrum is another valued resource that identifies gaps and opportunities, many of which have yet to be addressed and would benefit from new federal funding. We welcome you to share as much detail as you can about your recommendations, including, but not limited to, funding amount, relevant federal agency, size, and scope of the project. An example for ALS is included below. 

If you would like to receive 'real-time' feedback on your ideas or help converting ideas to proposals, we will be hosting a workshop on July 27th at 3:30 PM ET to offer feedback prior to submission. To join, register here

Following receipt, submissions will be synthesized and recirculated for additional comments. Afterwards, submissions will be reviewed in consultation with EANs National Advisory Board, G2G Consulting, and funders to identify those that:
  • translate to improved care and outcomes for those living with the epilepsies;

  • will impact the largest number of persons touched by the epilepsies and their families;

  • focus on federal funding and policy changes;

  • are politically and economically feasible in the current Congress/Administration;

  • align with realistic and achievable advocacy strategies and tactics;

  • match with current resources of this initiative and epilepsies stakeholders;

  • are not otherwise addressed by existing epilepsy or other stakeholders; and

  • align with or enhance priorities previously identified as part of The Curing the Epilepsies 2021: Setting Research Priorities Conference and 2021 Benchmarks for Epilepsy Research, as well as Epilepsy Across the Spectrum (Institute of Medicine Report) 2012 .

We recognize many incredible and credible ideas will be received and reviewed but feasibility and capacity will limit the number that can be included as FY 25 priorities. 

For additional timelines, background, FAQs, and helpful resource links, visit: https://www.epilepsiesactionnetwork.org/post/share-your-inputs-for-federal-funding-for-the-epilepsies

We appreciate your time and look forward to continuing to work together to increase federal investment in the epilepsies! If you have any questions or need further assistance, please contact: ilene Miller at ilenepennmiller@gmail.com or Katie Collins at kcollins@G2Gconsulting.com
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SHARE YOUR POLICY PRIORITIES
The ALS community provides a good example of what is possible when disorder communities align around common goals. See federal policy priorities for ALS here as well as recent accomplishments visualized below. An article is here for additional context. 
Policy Priority #1– please include recommended funding amount, as well as any other pertinent details about your request (i.e. relevant federal agency, size, scope, etc.)
Policy Priority #2 – please include recommended funding amount, as well as any other pertinent details about your request (i.e. relevant federal agency, size, scope, etc.)
Policy Priority #3 – please include recommended funding amount, as well as any other pertinent details about your request (i.e. relevant federal agency, size, scope, etc.)
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