We are in the process of compiling a directory of Non-Directed Donors (NDD’s). We will never disclose the names of the participants without the prior approval of the individual. A short questionnaire is attached which will provide the information for the database. This directory has multiple purposes:
1) We expect that a fairly complete directory of NDD’s in this country will be of interest to researchers. The questions are designed to provide a minimal amount of information in this regard, with further participation in a given research project by each NDD on an opt-in basis.
2) NDD’s are a unique sub-category of organ donors. It is our desire to see that hospitals conduct their transplant center practices with the best interest of the donors in the forefront. NDD’s have a unique perspective on some of these matters and we believe that a collective action by this group, on an opt-in basis, may help ensure those best practices.
3) At any one time, there are a number of state and federal legislative initiatives pending. We would like to be able to add the weight of the NDD community to the organizations which are leading this effort in the various legislatures.
Donor to Donor's website is https://www.donortodonor.com and our Facebook page is https://www.facebook.com/DonorToDonor. Please contact firstname.lastname@example.org for further information.