Virtual Spasticity Assessment Process
A Survey from the University of Alberta Faculty of Rehabilitation Medicine

Principal Investigator:
Dan Gillespie
PhD Candidate Rehabilitation Science
University of Alberta
Edmonton, AB
780-563-0068
dan.gillespie@ualberta.ca

Before beginning the survey, please read the following to provide your informed consent.

Invitation to participate
You are invited to participate in a 5-8 minute survey about your experiences and perspectives on the assessment of spasticity within your practice.

What is the purpose of this research?
The information gathered within this research will assist in developing an optimal virtual procedure to assess spasticity remotely.

Who are we?
Dan Gillespie is a PhD candidate in the Faculty of Rehabilitation Medicine who is interested in spasticity assessment using information communications technology. Dan is currently teaching an introduction to telerehabilitation professional development course with the University of Alberta Linked Here: https://www.ualberta.ca/rehabilitation/professional-development/introduction-to-telerehabilitation.html

Dr. Trish Manns is Dan's PhD supervisor, and a researcher in the Faculty of Rehabilitation Medicine at the University of Alberta. Her research interests focus on strategies to maintain or improve health and function in individuals with stroke.

Dr. Sean Dukelow is a clinician-scientist at the University of Calgary and Foothills Medical Centre. He is a practicing physiatrist in Calgary, Alberta who is part of Dan's doctoral committee. Dr. Dukelow has extensive experience in assessing and treating individuals with spasticity.

What is involved?
Your participation is entirely voluntary. If you choose to participate you will complete a short (5-8 minute) online survey that asks about your perceptions and experience in the assessment of spasticity both from a traditional in-person and virtual or remote assessment perspective.

Benefits & Risks
While there are no direct personal benefits to participation, there are no anticipated risks.

Confidentiality and Anonymity
The information that you share will remain strictly confidential and will be used solely for the purposes of this research. The only people who will have access to the research data are Dan Gillespie, Dr. Trish Manns, and the Research Ethics Board as well as University of Alberta auditors. No personal or identifying information will be required for this survey. Should you wish to participate in an optional spasticity focus group you will be required to provide your email within the survey.

Data Storage
Electronic copies of the survey will be encrypted and stored on a password- protected computer in the Faculty of Rehabilitation Medicine at the University of Alberta. Data will be stored for 5 years prior to being deleted.

Voluntary Participation
You are under no obligation to participate. If you choose to participate, you may refuse to answer questions that you do not want to answer. Should you choose to withdraw midway through the electronic survey simply close the link and no responses will be included. Given the anonymous nature of the survey, once you have submitted your responses it will no longer be possible to withdraw them from the study. At the end of the survey you will be asked to participate in an optional subsequent online zoom focus group.

Contact Information
If you have any questions or require more information about the study itself, you may contact the researcher at the following email address: dan.gillespie@ualberta.ca

This study has been approved by the Research Ethics Board at the University of Alberta Pro00101753 . If you have any questions regarding your rights as a research participant or how the research is being conducted you may contact the Research Ethics Office at 780-492-2615.

Thank you for considering taking part in this research.

What if I have other questions?
If you have any questions please contact us:
Dan Gillespie
dan.gillespie@ualberta.ca

University of Alberta Research Ethics Board: Pro00101753
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