The Hunter's Hope Foundation is working with Leukodystrophy family advocates and the medical community to establish the Leukodystrophy Care Network (LCN).
One of the goals of the LCN is to develop multidisciplinary care guidelines to ensure all individuals affected by Leukodystrophies have access to the best quality of care possible.
This can only be done when doctors proactively address the most common medical issues experienced by those affected by these diseases. In the 15 minutes it takes to complete this survey you are helping us identify these issues.
To learn more about the LCN, please visit the Hunter's Hope website at www.huntershope.org.