Psychological Support in Multiple Sclerosis
Participant Information Sheet

Research study aims - We are looking to explore participants’ perspectives of people living with Multiple Sclerosis to better understand adjustment to diagnosis and the role of psychological support in the patient journey. The findings from this part of the study, along with other research will be used to inform the development of a psychological intervention for people with MS.

Why have I been contacted? - We have contacted you because you are living with Multiple Sclerosis, and we would like to know about your experiences of living with your diagnosis.

What does taking part involve? - This is an online questionnaire study about your well being, experience of living with your diagnosis over time, as well as your thoughts and experience of psychological support. The questions will take about 30 minutes to complete. There is a question at the end that invites you to leave your email if you wish to be interviewed via Skype at a later date.

Do I have to take part? - No, it’s entirely up to you. Taking part in this study is online and completely voluntary; you may decide to stop at any time without giving a reason.

Potential benefits - This study does not provide a direct benefit to you as it seeks to understand the patient experience. However, results from this part of the study will be used to inform a psychological intervention for people with MS.

Potential disadvantages - There are very minimal risks in this online questionnaire study. There may be questions that you may not wish to engage with. These may be skipped over or you could stop at any time.

Who do I contact if I have concerns with this study? - If you have any concerns you may contact the principal investigator of the research study, Dr Aileen Ho (a.k.ho@reading.ac.uk)

How will my data be kept confidential? - This is an anonymously completed questionnaire. All responses are confidential and stored securely with access only to the principal investigator and research team.

Please feel free to ask any questions that you may have about this study by contacting Hannah Morris-Bankole (h.morris-bankole@pgr.reading.ac.uk).

This application has been reviewed by the University Research Ethics Committee and has been given a favourable ethical opinion for conduct.

Thank you for your help.
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