Survey to measure the knowledge and the use of SBS among clinicians : ESPR MSK Taskforce
Dear Participant,
My name is Arwa Alhulwah, I am a Ph.D. candidate at the University of Sheffield, supervised by Professor Amaka C. Offiah and Dr Ashok Raghavan. As part of my research study, I would like to assess clinician's knowledge and use of a quantitative scoring system for documenting the extent of disease in fibrous dysplasia - the so-called Skeletal Burden Score (SBS). The Fibrous Dysplasia/McCune-Albright Syndrome International Consortium recommendations are that the SBS should be used to assess the severity of skeletal involvement in patients with fibrous dysplasia.
The skeletal burden score is based on calculations derived from 99mTc-MDP nuclear medicine bone scans.

This survey is being conducted via the ESPR Musculoskeletal Taskforce with the support of Professor Karen Rosendahl. The survey is strictly anonymous and will remain private and confidential in all dissemination activities and publications arising from the study.

The questionnaire will take no more than 10 minutes to complete. Please bear in mind that your participation is voluntary, and you have the right to withdraw at any time.

The deadline for completion is the 23rd of July, 2022.

Thank you for your consideration/participation.

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What is your speciality? *
Years of experience as a consultant *
What country do you practice medicine? *
If in the UK,  in what region of the UK do you work? *
In what type of hospital do you work? (select as many as are relevant) *
Required
How many fibrous dysplasia patients/images do you see or report annually? *
I have heard about the skeletal burden score (SBS) *
I know how to use the skeletal burden score (SBS) *
I use the SBS when interpreting fibrous dysplasia images *
I feel confident using the SBS *
If you don't use the SBS, how do you document disease burden in fibrous dysplasia? *
When imaging your patients with suspected polyostotic fibrous dysplasia disease, what type of scan is performed at your hospital? *
Required
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