ELSI survey

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ELSI survey

This is a short survey to obtain the views and experiences of the SciLifeLab and DDLS communities regarding ethical, legal and social issues (ELSI) important to their work.

This information will help SciLifeLab and DDLS better prioritise and address ELSI for their stakeholders.

Thank you in advance for your time and consideration.

If you have any questions, comments or want to discuss ethical, legal and social issues further, please contact heidi.howard@scilifelab.se

Question 1

Are any of the following Ethical, Legal and social Issues (ELSI) relevant to your work? Choose as many as are relevant. Please add any that are not listed and elaborate as you see fit.

Issues related to data access and data sharing

Issues related to data processing/use and storage

Data privacy and protection

Informed consent

Equity and inclusion in research

Dual-use or misuse potential

ELSI related to benefit sharing

Environmental impact, please elaborate under "other"

Societal Impacts, please elaborate under "other"

Incidental findings

Secondary Use of Data

Stakeholder awareness/understanding

Transparency, please elaborate under "other"

Equal access to support/equipment/analyses by all researchers

Commercial aspects

Conflicts of interest

Other:

Required

Question 2

If you have EXPERIENCED ELSI posing challenges to your work (e.g. you know it is a problem and/or you did not know how to proceed bc of an ethical or legal issue, or having to manage these issues slowed down or halted your work) please describe the issues and how you and your work were impacted.

This is a required question, so if you have not experienced any ELSI, please write "NA".

Question 3

For the case you describe above,

A) did you get any help and support?
B) If so, from where?
C) Was the support adequate?

This is a required question, so if you have not experienced any ELSI, please write "NA".

Question 4

Are there any ELSI that you have not lived in practice but that you think is important for your work now or or in the future? Please describe as many as you like.

This is a required question, so if you have not experienced any ELSI, please write "NA".

Question 5

Do you feel adequately supported in managing the ELSI related to your work?

Yes

I am not sure

I am supported to some degree but would need more support

Other:

Question 6

Please share any additional questions or comments about this survey or ELSI in general here. Thank you!

OPTIONAL QUESTION - Do not answer if you want to ensure anonymity

What is your area of research?

OPTIONAL QUESTION- Do not answer if you want to ensure anonymity

What is your career stage?

Master Student

PhD Student

Postdoc

Assistant Prof

Associate Prof

Full Prof

Other:

Clear selection

OPTIONAL QUESTION- Do not answer if you want to ensure anonymity

Please choose all the types of data you use in your work

Data from humans (currently living or non-living)

Data from non-human animals

Data from plants

Data from viruses, bacteria or fungi

Data from soil, rocks,

Other:

Submit

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