Questionnaire concerning motherhood options within Turner Syndrome women.

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Dear Ladies!
We are a team working in the Departament of Paediatrics and Paediatric Endocrinology in Katowice, Poland. We provide the wide-range care for patients with Turner Syndrome from the moment of diagnosis till the transition into adult healthcare. We have been working on the possibility of ovarian tissue preservation within our adolescent patients with intention of using it for fertilization in adult life.

The purpose of this short questionnaire is to establish the real need for such research. We would like to know your honest opinion on pregnancy and motherhood.

This questionnaire is dedicated to women with Turner Syndrome over the age of 18 years old. It should only take 5 minutes. Your participation is voluntary and you are under no obligation to take part in this survey. By anonymously completing this questionnaire and submitting the information, you agree for it to be used for the purposes described.
If you have any questions about the survey, please email us: mallgorzatawegiel@gmail.com
We really appreciate your input!

1. In what country do you live?

2. How old are you?

18-24

25-34

35-44

45-54

55-64

65+

Clear selection

3. At what age the diagnosis of TS was done?

during the pregnancy and confirmed after birth

in the first year of life

before the 3rd year of life

between 3-6 years of age

between 7-9 years of age

between 10-15 years of age

after 15 years of age

I do not remember

I do not know

Clear selection

4. Did you menstruate spontaneously (before estrogen therapy)?

Yes

I do not know

Clear selection

5. Have you ever had motherhood options discussed with a physician?

Yes, before the age of 18

Yes, after the age of 18

Yes, but only when I became interested in this topic

Clear selection

6. What’s your opinion on having children?

I do not want to have children.

I would like to have children.

I have biological children.

I have adopted children.

I do not know.

Other:

Clear selection

7. What motherhood option would you take into the consideration? (multiple choice)?

Biological children – natural pregnancy

Biological children – with preserved oocytes

Oocytes donation by related person

Oocytes donation by unrelated person

Embryo transfer

Surrogate mother

Adoption

Other:

8. If you had your ovarian tissues preserved in your adolescence, would you like to use it for the pregnancy in the adult age?

Yes

I do not know

Clear selection

9. Are you aware of the risk associated with pregnancy in women with Turner Syndrome?

Yes

Clear selection

10. Do you have contraindications to pregnancy?

Yes

I do not know

Clear selection

13. Do you suffer from an arterial hypertension?

Yes

I do not know

Clear selection

11. Do you receive cardiologist’s care?

Yes

I did in the past

Clear selection

12. Do you have a heart defect diagnosed?

Yes

I do not know

Clear selection

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