Make Your Story Heard - International NF Skin and Mental Health Project
The International NF Skin and Mental Health Project aims to collect stories from a variety of individuals that have been affected by NF and publish them in a book format. We recognize that NF has nuanced impacts and we aim to promote a deeper understanding of the condition by sharing differing perspectives through stories.
If you are someone that has been affected by NF-1 in any capacity, we would love to hear about your experiences. This includes, but is not limited to: individuals that have been diagnosed with NF-1, caregivers, family members, friends, allies and healthcare professionals. Please provide your details below so we can be in touch with you about the proceedings of the book.
We will email you and coordinate a time with your for a phone call chat. Before putting anything in the book, we will email you a copy of the writing for approval. You can share as much or as little as you want!
If you would like to know more about our previous and future initiatives or the project in general, you can visit our website:
Thank you so much,
University of Toronto Medical Student 2022
What would you like to share?
Please select what best applies to you:
I have NF
I am a caregiver of someone with NF
I am a relative of someone with NF
I am a friend of someone with NF
I am a healthcare professional
Full name (First, Last):
Best time to call you (Please select all that apply):
Send me a copy of my responses.
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