Down Syndrome Community Needs & Engagement Survey

DSAA NE is a 100% volunteer-run organization serving the local Down syndrome community. We want to be sure our programs, advocacy, and resources reflect what families actually need.

We also have funding to grow—but growth requires volunteers.  Your feedback will help guide future programming and how we engage families in meaningful, manageable ways. If you would like to be involved in starting or running new programming please email us at info@dsaane.org

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Your connection to the Down syndrome community: 
  DSAANE primarily serves individuals with Down syndrome and their families, and we also welcome individuals with other disabilities who may not feel represented elsewhere.  
Section 1: About Your Family
  (Helps ensure programming meets needs across the lifespan)  
Age of the Individual with Ds 
Which area do you primarily live in?  
Clear selection
Awareness & Engagement
DSAA NE is starting its 11th Year.  How did you learn about our group?  
What DSAA NE programs or activities have you participated in?  
How connected do you currently feel to DSAA NE?  
Not at all connected
Very connected
Clear selection
How well do DSAA NE's current offerings meet your family's needs?  
What types of support are MOST important to your family right now ? (choose up to 5)
  How comfortable do you feel advocating for your child or loved one in systems like school, healthcare, or state services?  
What kind of support would help you feel more confident?  (Check all that apply)
What do you feel is currently missing or under served in our local Down syndrome community?  
What new programs would you be most interested in 
Strengthening Our Community
If you could have a magic wand, what would DSAA NE offer that it does not have today?  
Have you ever volunteered with DSAA NE? 
Clear selection
Which types of volunteer roles might interest you?
What level of time commitment would you feel realistic for you?  
Clear selection
What are the biggest barriers that make volunteering difficult for your family?  
What is one thing you want DSAA NE leadership to know?
  Would you like to be contacted about future programs or volunteer opportunities?  
Clear selection
Email? (optional)
Submit
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