PH Feels Like
We invite you to Breathe With Us. We understand it’s difficult to talk about your illness, but we’d like to hear about symptoms from a personal perspective; For example, patients sometimes describe PH as feeling as though you are “breathing through a straw.”
First and Last Name *
Age *
Gender *
Full Address, City, State, Zip Code *
Do you have a diagnosis of PH? *
Pulmonary Hypertension: Symptoms and Perception
Please limit answers to two to three sentences.
PH makes me feel as if: *
Living with PH, I feel people look at me as if: *
Since I was diagnosed with PH, I worry about: *
Amidst the COVID-19 pandemic, I worry about: *
How Life Changes When You’re Diagnosed With PH: Part One
Back when I didn’t know I had PH, I felt: *
A practical aspect of living with PH is that: *
Since I was diagnosed with PH, I can’t: *
How Life Changes When You’re Diagnosed With PH: Part Two
Living with PH has made me change my life so that: *
After being diagnosed with PH, I understand what it means to: *
Having PH means overcoming the challenge of: *
Conquering PH
I feel inspired to: *
A challenge I have overcome is: *
A goal I have set for myself is: *
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This form was created inside of Team Phenomenal Hope.