Long COVID Awareness Events 2026- State Organizers & Participants Interest Form
March 15th is Long COVID Awareness Day Internationally. We honor Long COVID throughout the month of March and over Long COVID Awareness week, the week of the 15th through the 21st this year.  

The COVID-19 Longhauler Advocacy Project is seeking state leads/ organizers and participants!

Interested in Being an Organizer?
This year, we are looking for volunteers from each state to help serve as organizers for meetings with members of congress and other local officials/ entities. All guidance, training, and materials will be provided by C19LAP.  We aim for meetings to occur during Long COVID Awareness Week, however, encourage them to be obtained nonetheless based on member availability throughout the month of March as a whole and/ or when members are home during recess over the first two weeks of April.

Mandatory:
Your role will entail handling communications for planning and leading meetings and connecting with and recruiting other members in your state to participate. You will be responsible for organizing, maintaining participant lists, and logistics for meetings (we can assist, but cannot lead 50+ states).

Optional/ Encouraged:
Other things you may/ have the opportunity to assist with are other local events, such as street teams handing out Long COVID information or masks, light-up events, or publicly visible, COVID-safe displays for awareness and education purposes, securing meetings with Governors, writing letters to HHS, FDA, White House, and more.  

Recruitment:
C19LAP is looking to recruit these positions *immediately*. Your outreach to secure meetings will need to also happen immediately. Recruitment of others interested in participation is also a necessity, whether for meetings or for other potential events and actions listed.

Position:
This is a volunteer role. Should a donor come forward wishing to support this effort, we would love to offer honorarium to state leads for Long COVID Awareness Month organizing and leadership.

Connecting:
Please make sure you are in your states chapter to help with recruitment. Please also expand outreach to other social platforms outside of FB. Our state chapters can be found on this page towards the bottom: Our Team | C19LAP | COVID-19 Longhauler Advocacy Project

Interested in Participating on a State Team (but not organizing?)

Advocacy is nothing without those who carry it forward, especially those with lived-experience. One of the most influential and successful ways of getting congressional action are direct meetings with constituents. We are looking for people across the country to join together for outreach to your members of congress, governors, and other public health entities. All materials and instructions will be provided by C19LAP and your state leads. Your participation with (and/or assisting you lead) with other actions would also be greatly appreciated and welcomed. 

If you are interested in participating in meetings and potentially other efforts, please complete the form below. 

Thank you to everyone ready to help bring awareness to Long COVID! Help spread the word about our call for leaders and participants today!

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Which of the following roles are you interested in? *
Your State/ Territory (please spell out, do not abbreviate) *
Your Zip Code (used to identify your correct district and member) *
How do you identify?  *
Required
Your First and Last Name (legal name- offices will sometimes look up your constituency)  *
Email Address (please double check before submitting, and add contact@longhauler-advocacy.org so our emails do not go to spam) *
Are you a member of the C19LAP FB community? (not a requirement) *
*IF* you are a leader of another Long COVID group or organization wishing to collaborate, please provide your organizations name here ONLY if you have permission to do so for your group or organization. Otherwise- skip
By submitting this form, you acknowledge that submission does not equal appointment as an organizer or participant. You are also giving the COVID-19 Longhauler Advocacy Project permission to contact you.  *
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