This survey seeks to explore how people living with endometriosis navigate the workplace, from seeking accommodations to managing stigma, pain, and systemic barriers. There will also be questions about your diagnostic journey and how you've dealt with the healthcare system.
In the wake of North Carolina woman Christian Worley’s lawsuit to have her endometriosis recognized as a disability, conversations about equity and recognition have taken on new urgency. I will be writing an article in The Parlor Magazine centered around this conversation. My hope is that the experiences and perspectives I collect here will be able to shine a light on this often invisible issue that many with endometriosis have been suffering through in silence.
You are not required to answer any question that feels too personal. Please feel free to skip any question for any reason, as they have all been marked Optional. All responses will remain confidential. Aliases will be used for direct quotes if necessary.
Eligibility: Open to anyone within the United States who has or suspects they have endometriosis (diagnosed or not).