A portion of the PFDD meeting will consist of two panels of parents providing testimonies to the assembled members of the FDA. We are looking for 5 panelists to talk about the symptoms and impacts of living with CDD, and 5 panelists to talk about their experience with treatments and their preferences for future treatments. In the form below you will be asked about your experience on both topics through a series of questions. You don't have to select one topic, and we would like to learn broadly about your experience and your testimony through the different questions.
The deadline for applications is August 20. IFCR and the Loulou Foundation, who are organizing the PFDD, will then review your applications and will select the panelists to ensure representation of patients from different ages, genders and medical situations. We will let you know if you have been selected for one of the panels on August 30th. We thank all applicants for helping our community make this PFDD a success.
You can learn more about the purpose of this meeting by viewing this informational webinar https://youtu.be/jOssKVMd2Wg
Please find and review the required time commitments for panelist training at this link: http://bit.ly/2yJcVyc