USHchats registration
This registration form is for parents/guardians of children and young people (aged 0-25yrs) with Usher syndrome. All those registered will receive calendar invites to join the regular virtual sessions hosted by Usher Kids UK, Usher Kids Australia, Save Sight Now Europe and Ava's Voice, supported by Usher Syndrome Ireland and the Usher Syndrome Coalition - connecting USHearts across the globe!

USHchats take place every third Thurs/Fri (time-zone dependent, see below) every month from September to May (no session in December). Sessions run at following times;

Call 1 (English/ *Spanish breakout groups): 15:00-16:00 (USA EST) / 20:00 - 21:00 (UK GMT) / 21:00-22:00 (CET), third Thursday/month

Call 2 (English) 20:00 - 21:00 (USA EST) third Thurs/month / 10:00 - 11:00 third Friday/month (AEST, Australia)

*Spanish speaking calls will commence from October 2023 onwards

By completing this form you consent that the information provided information will be held in accordance with the Privacy Policy of Usher Kids UK (http://www.usherkidsuk.com/about-us.html) and shared with the four partner organisations named above only for the purposes of arranging sessions which meet the needs of the group, and keeping you updated with relevant information. You can request for your information to be removed at any time by contacting info@usherkidsuk.com



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Full name *
Country of residence *
Contact number *
Email address *
Please tell us the date of birth of your family member(s) with Usher syndrome* (so that we can plan sessions and breakout groups according to age where appropriate)
 *
What is your relationship to the family member(s) with Usher syndrome *
What type of Usher syndrome does your family member have? *
Please tell us about you / your family's current areas of need in relation to living with Usher syndrome
 *
What difference does (or would) it make to you to be able to connect with other parents/guardians?
 *
Please share any additional information or questions here
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