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AYME Survey 2017
AYME continues to be aware of false accusations against parents of children/young people with a diagnosis of M.E./CFS, predominantly by professionals. This short questionnaire will enable us to properly investigate the experience of anyone whose family's lives have been touched by M.E./CFS. AYME plans to use the data gathered to inform government of the urgent need for change.
Please complete this questionnaire regardless of your experiences.It will take less than five minutes to complete. Closing date 3rd April.
If this subject has caused you concern please feel free to contact the information and support line on 0330 2211 223 or email
Are you a member of AYME?
Do you think that a lack of understanding of M.E./CFS negatively impacts on the support that you receive?
Have you ever felt concerned that professionals involved with your child do not believe them?
Have you had a safeguarding/child protection referral made against you?
What was the nature of this investigation?
Who made the accusation?
Were you accused of:
Fabricated or induced illness (used to be called Munchausen sydrome by proxy)
As a result of the procedures were you offered further support?
Was your case dropped?
If yes, how long did this process take?
Over a year
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