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HA Rare Disease Week Advocate RSVP
This will let us know if you are taking part in Rare Disease Advocacy Week! Further details on the event will be provided once this form is completed.
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Full Name
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Your answer
Email
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Your answer
Mobile Number (so we can stay in touch on Capitol Hill)
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Your answer
State
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Your answer
Dietary Restrictions or Food Allergies?
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Your answer
Which events do you plan to attend? (choose all that apply)
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Sun, Feb. 25 (OPTIONAL) Rare Disease Documentary Screening and Reception (5:30-8:45pm ET)
Mon, Feb. 26 (MANDATORY) Legislative Conference (9:00am-5:00pm ET)
Mon, Feb. 26 (MANDATORY) HYDROCEPHALUS SPECIFIC ADVOCATE TRAINING DINNER (7:00 pm ET)
Tue, Feb. 27 (MANDATORY) Meetings with Members of Congress (9:00 am-4:00pm)
Wed, Feb. 28 (OPTIONAL) Achieving Equity in Rare Disease Roundtable (10:00am-12:00pm ET)
Wed, Feb 28 (OPTIONAL) Rare Disease Congressional Caucus Briefing (1:00-2:00pm ET)
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