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Fibromyalgia Survey
Responses are completely anonymous, and will be used for an undergraduate medical anthropology research. Feel free to put down N/A if you are uncomfortable with any required question.
* Indicates required question
Email
*
Record my email address with my response
What is your age?
*
Your answer
What is your gender identity?
*
Female
Male
Nonbinary
Genderfluid
Transgender
Prefer not to say
Other:
Required
What is your race/ethnicity?
Your answer
Do you have a fibromyalgia diagnosis?
*
Yes
No
Do you feel like your fibromyalgia diagnosis accurately explains all the symptoms you face?
Yes
No
Other:
Clear selection
Please check off all other diagnoses you have received:
POTS
MCAS
Ehlers Danlos Syndrome (Hypermobile or Other)
ME/CFS
IBS
Endometriosis
Depression
Anxiety
PTSD or C-PTSD (Please Specify)
OCD
Long Covid
Rheumatoid Arthritis
Lupus
I do not have any other diagnoses
Other:
Was Fibromyalgia the
first
physical diagnosis you received?
Yes
No
Other:
Clear selection
Do you have a personal narrative/story which has helped you form an understanding of the onset of your symptoms?
*
Yes
No
Unsure
Other:
If you feel comfortable, please share as much as you like about your illness narrative (what helps you contextualize/understand your medical condition)
Your answer
Do you believe traumatic events/experiences played a significant role in the onset of your Fibromyalgia?
*
Yes
No
Maybe
Other:
Have you found any treatments for Fibromyalgia helpful? If yes, please include name of treatment and how you found out about it.
Your answer
Have you found any of the treatments recommended to you
upon diagnosis
helpful?
*
Yes
No
Other:
For the following questions, please select how much you agree or disagree with each statement.
1- Completely disagree 2-Somewhat disagree 3-Neutral 4-Somewhat Agree 5- Completely agree
The doctor who diagnosed me with fibromyalgia was knowledgeable about my condition.
1
2
3
4
5
Clear selection
I had to go to multiple medical offices before I found the right doctor to diagnose/understand my symptoms
1
2
3
4
5
Clear selection
My concerns have been mostly taken seriously by medical professionals.
1
2
3
4
5
Clear selection
My experiences with medical professionals have left me skeptical about pursuing further treatment/ medical help.
1
2
3
4
5
Clear selection
I have wasted money/time on treatments I found ineffective.
1
2
3
4
5
Clear selection
I have wasted money/time going to medical professionals who did not understand or help me with my condition.
1
2
3
4
5
Clear selection
My symptoms have (at some point) been disregarded as mental illness.
1
2
3
4
5
Clear selection
My fibromyalgia diagnosis is hard for my peers to understand.
1
2
3
4
5
Clear selection
I understand why I developed Fibromyalgia.
1
2
3
4
5
Clear selection
I believe fibromyalgia is caused by various environmental, social, and cultural factors.
1
2
3
4
5
Clear selection
I understand my illness in ways that healthcare professionals do not.
1
2
3
4
5
Clear selection
My identity has been respected by medical professionals.
1
2
3
4
5
Clear selection
I have experienced medical gaslighting.
1
2
3
4
5
Clear selection
I believe my fibromyalgia can get better.
1
2
3
4
5
Clear selection
Send me a copy of my responses.
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