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Prescription Charges Questionnaire
The Sickle Cell and Thalassaemia All Party Parliamentary Group (SCTAPPG) is looking to research the effect of prescription charges on the day-day lives of service users. With your help we hope to shine a light on this burning injustice that so many people face. If you have any queries about this research please contact
What is your gender?
Prefer not to say
What is your age?
What region of England do you live in?
East of England
Yorkshire and the Humber
Please tell us the total annual income of your household (before tax deductions, but including benefits/allowances)? If you’re a student at university, please include your maintenance loan and any contributions (e.g. from parents) in your answer.
Rather not say
Has the cost of prescription charges forced you to use either: your savings, an overdraft facility or a payday loan in the past 12 months?
Do you currently pay for your sickle cell or thalassaemia medicine prescriptions (including if you buy a Prescription Prepayment Certificate)?
Are you aware of the Prescription Prepayment Certificate (PPC)? (This is like a season ticket for prescriptions, and can be bought for 3 or 12 months to cover all prescriptions that are needed in that period)
If yes, do you usually buy a Prescription Payment Certificate?
Yes, I buy a yearly certificate at £104
Yes, I buy a 3-monthly certificate at £29.10
If you don't purchase a Prescription Payment Certificate, why not?
It’s not worth it – I wouldn’t save anything
I didn’t know about it
I can’t afford it
How often do you pay the £9.00 charge for your sickle cell or thalassaemia medicine? (this includes tbc)
4 or more times per month
About twice a month
About once month
About once every 2 months
About once every 4 months
About once every 6 months
About once a year
Less than once a year
Do you find it difficult to pay for your prescriptions?
Have you ever had to cut back on any of the following in order to pay for your sickle cell or thalassaemia medicine?
Have you ever taken less of/been sparing with your medicine or not taken it as regularly as you should have because of the cost?
Which sickle cell medicine's have you taken less of – or gone without – because of the cost?
If you’ve taken less of your sickle cell medicine/not taken it because of the cost, what have been the health consequences?
Which of thalassaemia medicines have you taken less of – or gone without – because of the cost?
If you’ve taken less of your thalassaemia medicine/not taken it because of the cost, what have been the health consequences?
Do you think it’s unfair that people with sickle cell and thalassaemia have to pay for their prescriptions, when they’re free for other long-term conditions e.g. diabetes?
Do you think those living with sickle cell and thalassaemia should be exempt from prescription charges?
Thank you for participating. Would you like to tell us your story? Well you can by becoming a case study for this research. If you are interested, please leave your name and email address below and we will contact you. Thank you.
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