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Join the MSMDS family map

The international community of families with MSMDS maintains a private map to facilitate contact between families from different places.

If you want your family to appear on the map, complete this form with the information you want to share. Access to the map is reserved for members of the MSMDS Family Support Group.

The data provided will be used only to include your family on the map and promote contact with other families in the community.

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City *
Country *
Gender *
Year of birth *
Contact email
Contact phone
Another contact preference
(For example, Facebook or Instagram user)
Languages *
Main hospital
 (Please indicate the hospital or health center where the patient receives care and monitoring.)
 *
Are you part of the Facebook group "Multisystemic Smooth Muscle Dysfunction Syndrome (MSMDS/SMDS/ACTA2.R179H)"?*
(Check your membership from here: https://www.facebook.com/groups/multisystemicsmoothmuscledysfunction/)
 *
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