Website Focus Group Interest Form

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Thank you for your interest in helping shape the future of the Myotonic Dystrophy Foundation’s website, www.myotonic.org!

We’re redesigning our website to better serve the myotonic dystrophy (DM) community, and we’d love your input. This focus group is open to individuals living with DM, their care partners, researchers and industry. Your feedback will help us make sure our website is easy to use, informative, and supportive of your needs.

Volunteers may be invited to take part in virtual listening sessions or complete short surveys.

Please fill out this brief form to let us know you’re interested.

Note: Space is limited. Completing this form does not guarantee participation. If selected, MDF will follow up by email with next steps.

First and Last Name *

Email Address *

What is your availability to participate in a listening session?

Weekdays in the evening

Weekdays in the morning

Weekdays in the afternoon

Weekends only

Other:

How are you connected to DM? *

Living with DM

Caregiver and living with DM

Unaffected Caregiver

Researcher

Care Provider

Friend / Donor

Other:

Topic(s) of Interest *

DM1

DM2

CDM

JOA

Required

Optional: What is the most important issue you hope the website redesign will address?

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