The NIH is interested in what the ME / CFS community has to say; what do we want the NIH to study?  

Below are some areas of study important to ME / CFS patients.  Rate each item's importance from 1 - 5, where 1 means very low importance, and 5 means very high importance.  

At the end of each section is a place for you to write additional suggestions that were not covered in that section as well to explain why the items you ranked as important are important.  Please use these areas only for information that applies to the previous section.  For example, when you reach the end of the section on medications and treatments, please only make suggestions for other medications and treatments.

We know there are many items on the form. If you need to take a break, you can leave this tab open on your internet browser, and come back to it later. All questions are optional. Feel free to skip any questions for which you do not feel you have the requisite familiarity to answer.

Please only submit one form per person.

Answers will be taken up on 11:59PM EST, WEDNESDAY, JUNE 22.

These results will be gathered and sent to the NIH to represent members of the patient community #MEAction.  However, the NIH also accepts feedback from individuals.  Go here to learn more: https://grants.nih.gov/grants/guide/notice-files/NOT-NS-16-024.html

Thank you! Email jaime@meaction.net with any questions

This is a global survey. Responses from all countries welcome. Responses from patients, clinicians, caregiver, scientists also welcome.