We are disabled, crip, mad, debilitated, and disability activists, advocates, scholars, workers, and home care recipients.
We proclaim our full support for the struggle of the home care workers of New York City who are currently engaged in the “No More 24” campaign. We specifically support their immediate demand for enactment of the No More 24 bill (City Council bill, Intro. 303), and we support the broader struggle of the Ain't I A Woman?! coalition against the hyper-exploitation of home care workers.
Presently, tens of thousands of New York City home care workers are compelled to labor for 24-hour shifts at only 13-hours pay. These workers are predominantly immigrant women of color, subjected to systematic precarity, vulnerability, under-valuation, overwork, debility, and disablement. They have been unfairly made to shoulder the failings of medical insurance, corporate home care, and municipal and state political systems.
Home care workers deserve far better than the intolerable status quo. So, too, do disabled people and other recipients of home care. Disabled people in New York City and nationwide face disproportionately high rates of poverty, houselessness, unemployment, violence, neglect, discrimination, incarceration, and institutionalization. All disabled people deserve to live dignified, autonomous, well-resourced lives as full members of society in their own homes and communities.
While sympathetic to the concerns expressed by some disabled people about the No More 24 bill, we think it is horribly mistaken that some leaders of disability NGOs and legacy advocacy organizations have publicly framed the No More 24 workers’ struggle as counterposed to the interests of the “disability community.” We know well that disabled people have much to lose (and potentially gain) in the outcome of this fight. But we know, too, that the battle lines in this fight are not primarily between disabled people and the home care workers.
We are further disappointed that some supposed allies of disabled people – including the officialdoms of certain unions, and the Democratic Party state governor and city mayor, Kathy Hochul and Zohran Mamdani – have lent their efforts to stymieing or otherwise slow-walking the No More 24 campaign, citing in part their “concern” for the disabled. We reject this as a hollow alibi for refusal to act on the just demands of the home care workers.
In sum, we endorse the home care workers’ demand for an immediate end to 24-hour shifts at 13-hours pay. We further emphasize what to us is an inextricably linked demand, namely, that disabled people should continue to have the option of receiving care in their own homes and communities, with no reduction in the number of care hours received. We view the home care corporations, “managed care” insurers, and city and state government officials – that is, the most powerful entities in this many-sided relationship – as being squarely responsible for effecting this latter demand by way of their access to ample funding sources (this is, after all, the richest city in the richest country in the history of the world).
This is a crisis of the ruling class’s making. It is the fault of neither the exploited home care workers nor the predominantly poor recipients of home care. Consequently, we believe that the joining of the struggles and demands for both workers’ justice and disability justice will strengthen each in a powerful mutualistic coalition. Thus, we appeal to the home care workers, the No More 24 campaign, and the Ain’t I A Woman?! coalition, as well as to all disability advocacy organizations, to explicitly advance our respective interests in tandem. We say: “No More 24!”, “Put People First!”, and “Universal Home Care Access is a Right!"
Signed (list in formation),
Keith Rosenthal
New York City, psych disability, former home care worker, editor of Capitalism and Disability (Haymarket Books, 2019).
Arielle Concilio Parra
New York City, disabled, former recipient of Medicaid’s CDPAP home care services, rank and file member of PSC-CUNY.
Sunaura Taylor
Former resident of New York City, disabled, recipient of home care services, Assistant Professor of Disability Studies at UC Berkeley.
Zeke Luger
New York City, disabled (Tourette's Syndrome, Anxiety, Chronic Pain). "My grandmother is a current recipient of 24-hour home care in 24-hour shifts. The home attendants do not get consecutive sleep at night."
JD Davids
New York City, chronically ill and disabled.
Rebecca Garden
Syracuse, New York (formerly a 20-year New York City resident), disabled. “I anticipate needing home care as I age and I worry about the home care that home care workers need as they age and/or disability develops.”
Maggie Schreiner
New York City, disabled.
Jenna Queenan
New York City, type 1 diabetes.
Diane Enobabor
New York City, disabled and deaf, Black woman, first generation immigrant.
Danielle Bullock
New York City, disabled.
Andrew J. Shapiro
New York City, disabled.
Jorge Matos
New York City, disabled CUNY employee.
Joseluz Sosa
New York City, mental disability, gay biracial Latine.
Jay Hamilton
Putnam County (work in New York City), disabled.
Rob Haggar
Cortland, New York, disabled.
Teresa Stern
New York City, paraplegic daughter.
Anne Finger
Oakland, California, disabled, recipient of home care services.
Emily Ruppel
Davis, California, disabled, Assistant Professor of Sociology (UC Davis).
Ramona Schwartz-Johnston
Chicago, Illinois, primary caregiver for disabled son, recipient of home care services.
Nayani Thiyagarajah
Toronto, Canada, multiple chronic illnesses and disability, South Asian cis-woman.
Sam Friedman
New Jersey, Long COVID political and research activism.
Racquel Samuel
New York City, mother has been a home care worker for over 15 years.
Diamond Camacho
New York City, PPL employee through CDPAP for disabled sibling who receives HBCS. “I support both disabled New Yorkers and home care workers in this fight for their dignity, respect, and well-being.”
Mariel Acosta
New York City, mother was a home care worker who suffered wage theft working 24 hours but getting paid for only 8 hours.
Janelle Poe
New York City, former caregiver for disabled relative.
Adina Mulliken
New Rochelle, former home care worker.
Spencer Lloyd
New York City.
Peter Ikeler
New York City.
Chris Harding
New York City.
Michael Greer
New York City.
Lucien Baskin
New York City.
Addy Malinowski
New York City.
Kristen Gillespie-Lynch
New York City.
Saadia Toor
New York City.
Dino Concepcion
Victoria, Australia, University of Melbourne and La Trobe University
Cassidy Miller
Virginia.
David Friedman
Berkeley, California.
Colby Hamilton
New York City.
Mel Bienenfeld
New York City.
Allyson Ganster
New York City, community mental health worker.
Anastasia Wilson
Upstate New York, Solidarity Research Center.
Jeremy Sawyer
New York City.
Angela Dunne
New York City.
Nathaniel Wright
New York City.
Barbara Katz Rothman
New York City.
Jon McFarlane
New York City.
Isabel Torres
New York City, caregiver for disabled parent.
Hayoung Jeong
New York City.
Hakan Yilmaz
New York City.
Gene Binder
New York City.
Mike Harris
Northern New Jersey.
Ashley Smith
Burlington, Vermont.
Helen Scott
Burlington, Vermont, advanced multiple sclerosis, retired/disabled member of United Academics.
David Hughes
Birmingham, UK, UNISON National Local Government Service Group Executive.
Rel Farrar
New Orleans.
Martin Pimsler
Chicago.
Frieda Afary
Los Angeles, California.
Ibrahim Bechrouri
Former resident of New York City.
Annie Zirin
New York City.
Sara Zielinski
New York City.
Tim Goulet
New York City, Teamsters Local 810.
Walter Daum
New York City. "As an old person, I know several people who need or have needed home healthcare assistance."
Michelle Keller
Westchester County, member of the Resilient Retirees, former DC37 member (Delegate and Officer).
Charles Post
New York City, paraplegic daughter, PSC-CUNY rank and file member.
Maria Rovito
Hudson Valley, New York, physically disabled and chronic illnesses and pain, former home care worker.
Louise Wollman
New York City, former recipient of home care services.
Alex Baldwin
New York City, physically disabled.
Nicole Lopez-Jantzen
New York City, disabled, PSC-CUNY rank and file member.
Druas Angel Sanchez-Falcone
New York City, mentally and physically disabled.
Liz Hee
New York City, disabled.
Alice Chou
New York City, disabled (chronic illness).
Krystina François
New York City, chronically ill/disabled, former recipient of home care services.
Melissa Shiffman
New York City, disabled, former recipient of home care services. "Home care is vital to the disability community. I would not want to risk my safety or theirs by having someone who is overworked and exhausted caring for me. Imagine being given the wrong medication or cleaning/changing IVs by someone who can barely keep their eyes open because of being overworked. That is not safe or fair to the patient OR the home healthcare worker."
Adrian Easterling
New York City, disabled physically and mentally, recipient of home care services.
Josephine Sales
New York City, disabled person with mobility impairment, former recipient of home care services.
Raine Reilly
New York City, current recipient of home care services, affiliated with Caring Majority Rising. "I use a wheelchair and a neuromodulator device, lost 8 organs so far to my disease. Homecare let's me actually live life instead of trying to stay alive full time on my own, and protects me from abusive relationships."