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What's in a name?
The main purpose of this study is to find out the attitudes of bereaved parents, healthcare professionals, researchers and others about the name that should be used when an infant dies suddenly and unexpectedly. In the past SIDS – sudden infant death syndrome – was in widespread use internationally.

Now a variety of acronyms are used, including:
• sudden unexpected/unexplained infant death – SUID
• sudden unexpected/unexplained death and infancy – SUDI
• undetermined
• many others

In this questionnaire, we will use SIDS, recognizing that not everyone uses or agrees to the term.

All information collected on this questionnaire is anonymous. When we present the results, there will be no way to know your identity.

By continuing to answer questions you are agreeing to be part of this research.

This research project has been reviewed by the Conjoint Health Research Ethics Review Board (CHREB) at the University of Calgary. If you have questions concerning matters related to this research, please contact:
Dr. Ian Mitchell
Email: imitche@ucalgary.ca
Tel: 1-403- 955-2952

If you have further questions concerning participation in this research, please contact:
Conjoint Health Research Ethics Board (CHREB)
Chair: Dr. Stacey Page
University of Calgary
Email: resethics@ucalgary.ca
Tele: 403-220-7990

Ethics ID: REB14-2044 (August 30, 2016)


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