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CSF Leak Association COVID 19 Impact Survey
The Covid19 pandemic has been an unprecedented global event and has caused significant pressure on healthcare services across the NHS in the UK. A recent Neurological Alliance survey showed the impact the pandemic was having on the care of patients with neurological conditions. The findings of this survey are being used to drive for NHS neurological services to be fully restored.

The CSF Leak Association want to better understand the impact the pandemic has had on the care and treatment of patients with diagnosed or suspected CSF Leaks. To do this we have devised an anonymous survey. By filling this in you will enable us to know what the impact has been. A report detailing the overall findings of this survey will be shared with our membership, on our website and with our Medical Advisory Committee.

The survey will be open until 30th September 2020. We thank you for choosing to complete this survey and supporting our charitable aims. To aid us in the analysis of the survey responses we would appreciate it if you only made one submission. If you have any questions please contact

A parent/guardian/carer is welcome to submit a response on behalf of the CSF Leak patient.

All data submitted in response to this survey will be stored, handled and processed in strict accordance with our data protection policies and provisions of the GDPR. No data that could identify you as an individual will be passed to third-parties other than with your prior express written permission or if required to do so by law or court order. All information collected will be used for the sole purpose of assisting the CSF Leak Association meeting its charitable aims and objectives, and for no other purpose. The majority of the CSF Leak Association's data is stored in Google's European data centres. If you would like to discuss any aspect of how your data may be used or handled, or view a full copy of our data protection policy, please contact
I agree to the CSF Leak Association using the information provided in this survey to further its charitable objectives in accordance with its data protection policies and provisions of the GDPR *
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