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Informational Survey for Rare Disease Organizations
This survey will help us to gather the information needed to contribute to raising awareness for rare diseases.
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1- What is the name of your organization? *
2-What medical speciality(ies) treat this rare disease? *
3- What is the goal of your organization and how many members do you serve? *
4 - What is the greatest challenge your organization faces today? *
5 - We’re developing a communication technology, Hippra, to help healthcare providers collaborate and engage in  knowledge-sharing to benefit their patients. How do you think Hippra could benefit your efforts to support physicians and patients? What would you like to achieve? *
6-If you're interested in making Hippra available to the healthcare providers at your organization, please indicate your name, title, contact email and phone.
7-What else would you like to share?
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