The Lobular Breast Cancer Alliance (LBCA) is seeking to build a registry of ILC advocates for two reasons. You can indicate whether you would like to be included for one or both of these reasons below.

Reason #1: Connecting Trained Advocates with Researchers
Many funding solicitations, including those issued by LBCA, include a requirement for scientists to engage research advocates in the application and grant implementation processes. LBCA anticipates that we may be contacted by researchers seeking patient advocates with experience and/or training in research advocacy. Our aim is to be ready with a list of contacts, with appropriate information about training and experience, so that we can share a name, contact information, and past experience with those researchers. At this point, LBCA will not be matching scientists to research advocates but would rather provide the list (either in its entirety or with selected advocates based on need and/or geography) to the researcher. They would then reach out to advocates directly.

Reason #2: Connecting with Others in Your Geographic Area to Raise Awareness about ILC
Are you someone who would like to find others near you to connect with and to figure out ways you might spread the word about ILC together? For example, you might be treated at the same facility and together can approach the breast cancer oncologists to share information about ILC and LBCA as a resource for patients. There is strength in numbers when initiating contact with your local research institutions and/or patient advocate groups. If you would like us to share your contact information with other patient advocates in your area (state or region of a non-US country and region) seeking to make a connection, please add your name and preferred method of contact below.

Please note: There are many resources for patients to be connected to trained peer mentors for support, including others with ILC. These organizations can be found here: https://lobularbreastcancer.org/find-support/.