BAME Vision Understanding your Genetics, What Genetic Testing and Counselling is

For World Rare Disease Day, BAME Vision are pleased to host a webinar on what rare inherited sight loss is and what eye conditions are classified as rare.

In this webinar, our professional speaker will explain what genes are, what genetic testing is. What are the reasons why genetic counselling can be beneficial and sharing why this information can be extremely useful for you and your family.

Our Lived Experience speaker living with Familial Exudative Vitreoretinopathy and Pan Uveitis will share her symptoms, living with and managing day to day life with these conditions and follows the mantra, I’ve lost my sight, but not my vision

The speakers are:

Speakers – Sakina Rajabali – Genetic Counsellor – Moorfields Eye Hospital

Lived Experienced Speaker – Urmila Sharma Valand, Advocate, Role Model, Volunteer, living with Familial Exudative Vitreoretinopathy and Pan Uveitis

When: Thursday 29th February 2024

Time: 7 - 8.30pm

Where:  Online on Zoom

To register, email info@bamevision.org 

For further information, visit www.bamevision.org