Resources by and for Disability Communities in the Time of COVID-19
NOTE: As of April 7, 2020, document permissions have been changed. If you do not already have access to edit this document, and you would like to add a resource, make a comment, or improve this document, please request edit access.
Items below shared by folks connected to the University of Michigan Council for Disability Concerns.
This is a living document with crowd-sourced content. It will be periodically vetted and cleaned up.
Please add relevant material! Please review and comment on the resources listed. Are they accurate, helpful, relevant to your community? If they are helpful to some and not others, or include debatable content, please note this in a comment, but do not delete the entry.
Because the length of this document had grown to a point where it was becoming difficult to find desired content, it has now been divided into the following content groups:
- General & Special Audience Resources
- Other Resource Lists
- Accessibility and Communication
- Education, Accessible Teaching, and Disability Scholarship
- From People with Disabilities and Allies: For People with Disabilities and Allies
- From People with Disabilities and Allies: Messages and Stories
- From Organizations and Governments
- Local Resources (Michigan)
- Multimedia (Webcasts, Webinars, Video and/or Audio)
- Selected News
Thank you very much!
Document Navigation and Instructions
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Table of Contents
Resources by and for Disability Communities in the Time of COVID-19
Document Navigation and Instructions
AAPD: How The Disability Community Can Respond to COVID-19,
Alcoholics Anonymous: Online Intergroup: Audio/Video Meetings
Brandeis: [Plain Language COVID-19 Guide]: Important Things to Know about COVID-19 (Coronavirus)
Caring Across Distance: Some Things to Consider Before Movement Gatherings During COVID-19
Coronavirus Anxiety: Key Advice for Chronic Illness Patients from Health Psychologists
DSI: Supporting the global community during the Coronavirus crisis
EDF: COVID 19 and the disability movement
Legal Information Institute: COVID-19 Resources
Online AA Meetings During COVID-19
SAFE: Risks for harm skyrocket for people with disabilities during pandemic
TakeCare19: Accessible & Inclusive Mental Health Resources for Coping Through COVID‑19
ACL: Coronavirus disease 2019 (COVID-19)
FREE Wellness, Creativity, and Advocacy Resources in the Time of COVID-19
Southeast ADA Center: Coronavirus (COVID-19) Resources
Adult Advocacy Centers: Pattern for mask with clear window panel now available
Coronavirus Information - Multilingual: Sign Languages
DIY reusable face mask with clear window (for the deaf and hard of hearing) | Maison Zizou
For the deaf or hard of hearing, face masks pose new challenge
How to Make An Accessible, Deaf-Friendly Face Mask
Medical Masks with a See-through Window that Support Lip-reading
See-through face masks to help the deaf read lips
Signage, Free: Vulnerable to Infection
Supporting Communication with Patients who have COVID-19
What to know about clear medical masks for lipreading
Education, Accessible Teaching, & Disability Scholarship
Accessible Teaching in the Time of COVID-19
Critical Disability Studies and COVID-19: A Resource Collection
Dept. of Education: OCR Short Webinar on Online Education and Website Accessibility
Disability Scoop: Ed Department Offers More Special Education Guidance Amid COVID-19
Disability Scoop: Feds Weigh In On Special Ed, Medicaid Concerns Over Coronavirus
Indiana University: Keep teaching during prolonged campus or building closures
Inside Higher Ed: Accessibility Suffers During Pandemic
MUSINGS ABOUT CLASSES GOING ONLINE AND CRIP PEDAGOGIES OF IMPERFECTION
Universities Ignore Accessibility at Critical Time for Remote Learning
From People with Disabilities & Their Allies
Coronavirus Facts: What You Need to Know If You Have Chronic Illness or Are Immune-Compromised
COMMUNITY SAFETY TOOLKIT: preparing for the election & post [Washtenaw County, MI]
Freedom for Some Is Not Freedom for All: COVID-19, Institutions, and Disability Rights
Half Assed Disabled Prepper Tips for Preparing for a Coronavirus Quarantine
#NoBodyIsDisposable - Know Your Rights Guide to Surviving COVID-19 Triage Protocols
People with Disabilities Helping Each Other Survive The Coronavirus
Plain Language COVID-19 Information By and For People with Disabilities
SURVIVAL FOR FOLKS WHO NEED #PowerToLive DURING A POWER SHUTOFF
Ten Tips from a Chronically Ill Person for Surviving Social Distancing
From People with Disabilities and Allies: Messages and Stories
‘The Cripples Will Save You’: A Critical Coronavirus Message from a Disability Activist
Disability Visibility Project: Disabled Oracles and the Coronavirus
From Organizations and Governments
Adult Advocacy Centers: A First-Hand Experience with Online Counseling during COVID-19
Adult Advocacy Centers: Watching for abuse during this time of isolation
CDC: Coronavirus Disease 2019 (COVID-19): Manage Anxiety & Stress
Center for Disability Rights: Coronavirus (COVID-19) Resources
Ethical considerations in responding to the COVID-19 pandemic (Rapid policy briefing)
IDA: COVID 19 and the disability movement
ILO: Disability Inclusion in Covid-19 responses in the World of Work
NAACHO: Capacity-Building Toolkit For Including Aging & Disability Networks In Emergency Planning
NAMI: COVID-19 (CORONAVIRUS) INFORMATION AND RESOURCES
NAMI Updates On The Coronavirus
NORD’s Peter L. Saltonstall on Coronavirus Prevention and Risk for the Rare Community
Partnership for Inclusive Disaster Strategies: COVID19 Community-Wide Resources
SAMHSA: Mental Health: Recovering from Disasters
Senate: COVID-19 Recovery for Seniors and People with Disabilities Act (S.3740)
Senate: Coronavirus Relief for Seniors and People with Disabilities Act (S. 3544)
Statement Regarding the Coronavirus and Hard of Hearing People
Ann Arbor Observer: Community Resource Guide for Covid-19
Engage@EMU's Resources -Washtenaw/Wayne Michigan- Updates ongoing : Resources
COVID-19 Community Resources: United Way of Washtenaw Launches COVID-19 Community Relief Fund
Michigan: Huron Valley COVID-19 Mutual Aid Form - Formulario de ayuda mutua
Michigan: Huron Valley Mutual Aid Spreadsheet
Michigan State Police: Disaster Declaration FEMA-4494DR-MI Public Assistance Information
University of Michigan Poverty Solutions: MICHIGAN COVID-19 PANDEMIC RESOURCE GUIDE
Washtenaw Mutual Aid and Resources
Washtenaw Small Business Emergency Relief Fund
Multimedia (Webcasts, Webinars, Video, and/or Audio)
COVID-19: What Nursing Homes Need to Know!
ILO: Disability Inclusion in Covid-19 responses in the World of Work
BBC: Coronavirus: 'I know my life will not be saved in this pandemic'
BBC Newshour interview on disability and COVID-19
BuzzFeed News: The Coronavirus Response Shows How Crucial Accessibility Is
Disability Scoop: Coronavirus Brings Added Worries For People With Disabilities
Forbes: 5 Things To Know About Coronavirus And People With Disabilities
Forbes: Mindset Matters: The Coronavirus, Disability, The Lessons Learned From Resiliency
NPR: Disability Groups File Federal Complaint About COVID-19 Care Rationing Plans
Spectrum News: How governments should maintain disability services during the pandemic
Resources
General & National Resources
AAPD: How The Disability Community Can Respond to COVID-19,
WHO: Ari Ne’eman and Kit Albrecht for the American Association of People with Disabilities
WHERE: <https://www.aapd.com/covid-19/>
TYPE: Nonprofit, advocacy, activism
Alcoholics Anonymous: Online Intergroup: Audio/Video Meetings
WHO: Alcoholics Anonymous World Services, Inc.
WHERE: <https://aa-intergroup.org/directory_audio-video.php>
WHAT: list of online meetings and social opportunities for recovering alcoholics
TYPE: Nonprofit, Web page, Resource list
Brandeis: [Plain Language COVID-19 Guide]: Important Things to Know about COVID-19 (Coronavirus)
WHO: Brandeis University
WHERE: <https://heller.brandeis.edu/lurie/news/covid-19.html>
TYPE: Nonprofit, General, Web page, Glossary
Caring Across Distance: Some Things to Consider Before Movement Gatherings During COVID-19
WHO: by Maryse Mitchell-Brody
WHERE: <bit.ly/caringacrossdistance> OR <https://docs.google.com/document/d/1ILE8kk_zUqMscO8FbdPgrQMLoijoRupuHHIC1YdvRGI/edit>
TYPE: Google Document
AUDIENCE: People making decisions for any organization about whether to cancel a gathering and how to connect during the pandemic.
CORONAVIRUS & OCD
WHO: “Advocate Ethan Smith, OCD therapists Kimberley Quinlan and Shala Nicely answer questions from the OCD community.”
WHERE: <https://www.ocdkidsmovie.com/coronavirus>
TYPE: Archived webinar, blog post
AUDIENCE: Primary: Persons with OCD, friends and family of persons with OCD. Secondary: Persons with mental illness, anxiety, mental health challenges in general, and advocates, allies, and caregivers for them.
Coronavirus Anxiety: Key Advice for Chronic Illness Patients from Health Psychologists
WHO: Susan Jara
WHERE: <https://creakyjoints.org/living-with-arthritis/coronavirus-anxiety-with-chronic-illness/>
TYPE: Blogpost
DSI: Supporting the global community during the Coronavirus crisis
WHO: Down Syndrome International
EDF: COVID 19 and the disability movement
WHO: European Disability Forum
WHERE: <https://mailchi.mp/edf-feph/covid-19-and-the-disability-movement?e=72fbd9af62>
TYPE: Newsletter, Update, European, Nonprofit
Legal Information Institute: COVID-19 Resources
WHO: Legal Information Institute / JUSTIA
WHERE: <https://www.law.cornell.edu/wex/covid-19_resources>
TYPE: Not just for folk with disabilities, but covers many issues relevant to this community, such as employment, eviction bans and mortgage relief, business assistance, and taxes.
Mutual Aid Hub
WHO: Unknown.
WHERE: <https://www.mutualaidhub.org/>
TYPE: Map, crowdsourced
Nature: Let COVID-19 expand awareness of disability tech: The pandemic’s disruption shows how much academia could learn from the disability community.
WHO: Ashley Shew
WHERE: <https://www.nature.com/articles/d41586-020-01312-w>
TYPE: Article
Online AA Meetings During COVID-19
WHO: Anonymous.
WHERE: <https://docs.google.com/document/d/1a71ccw7ihaWelksKwOp4AzAkYlVqSoKiN6Gsm38bKMU/edit>
TYPE: Google Doc, multiple authors (Crowdsourced)
AUDIENCE: Alcoholics Anonymous,
SAFE: Risks for harm skyrocket for people with disabilities during pandemic
WHO: Stop Abuse For Everyone (Austin)
WHERE: <https://www.safeaustin.org/risks-for-harm-skyrocket-for-people-with-disabilities-during-pandemic/>
TYPE: Web page
TakeCare19: Accessible & Inclusive Mental Health Resources for Coping Through COVID‑19
WHO: Crowdsourced
WHERE: <https://takecare19.com/>
TYPE: “This project started out as a small crowd-sourced Google Doc that has since grown and been shared through various networks. It is now in its next evolution as a website to help create a better and easier way to search for more relevant resources to you, and to expand to other locations.”
AUDIENCE:
Other Resource Lists
ACL: Coronavirus disease 2019 (COVID-19)
WHO: Administration for Community Living
WHERE: <https://acl.gov/COVID-19>
TYPE: Nonprofit, Resource list
AMPHL: COVID-19 Resource List
WHO: Association of Medical Professionals with Hearing Losses (AMPHL)
WHERE: <https://www.amphl.org/blog/2020/3/15/covid-19-resource-list>
TYPE: Nonprofit, Web page, Resource list
AUDIENCE: Healthcare Professionals and others.
FREE Wellness, Creativity, and Advocacy Resources in the Time of COVID-19
WHO: Diane R. Wiener
WHERE: <https://docs.google.com/document/d/10UfN6r7gvvepxBtfcnrtr-6bTaZkGa7eZCbl1Q_H_sI/edit>
TYPE: Google Doc
Southeast ADA Center: Coronavirus (COVID-19) Resources
WHO: Southeast ADA (Americans with Disabilities Act) Center in collaboration with the ADA National Network and the Burton Blatt Institute (BBI) at Syracuse University.
WHERE: <http://www.adasoutheast.org/publications/coronavirus-resources.php>
DESCRIPTION: Regional and state resources for Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, Tennessee.
TYPE: Nonprofit, Government, Resource list, Web page
Accessibility & Communication
Accessibility window-dressing
WHO: SafeAndSilent (I’m a professor of human factors engineering who teaches and researches human factors applications to safety. I’m also deaf.)
WHERE: <https://safeandsilent.wordpress.com/2020/05/01/accessibility-window-dressing/>
TYPE: Web page
TOPIC: Discussion of the flaws of clear face masks as support for the deaf individual who lipreads
Adult Advocacy Centers: Pattern for mask with clear window panel now available
WHO: Susan Roscigno
WHERE: <https://www.adultadvocacycenters.org/news/pattern-for-mask-with-clear-window-panel-now-available/> Pattern: <https://docs.google.com/presentation/d/13XcUyeWQhnfaLVn8af1YU3AChaZJnCv5OSeTxIAdLLk/edit>
TYPE: Webpage
AMPHL: COVID-19 Resource List
WHO: Association of Medical Professionals with Hearing Losses (AMPHL)
WHERE: <https://www.amphl.org/blog/2020/3/15/covid-19-resource-list>
TYPE: Nonprofit, Web page, Resource list
AUDIENCE: Healthcare Professionals and others.
Coronavirus Information - Multilingual: Sign Languages
WHO: Stephanie Youngblood
WHERE: <https://drive.google.com/drive/folders/1YZfoRQED2LRBnilvVwhQhpsMUai8zpQg>
TYPE: Google Doc collection
DHH Mask Project and Tutorial
WHO: Hearing, Speech & Deaf Center.
WHERE: <https://www.hsdc.org/wp-content/uploads/2020/04/DHH-Mask-Project-and-Tutorial.pdf>
TYPE: PDF
DIY reusable face mask with clear window (for the deaf and hard of hearing) | Maison Zizou
WHO: Maison Zizou
WHERE: <https://www.youtube.com/watch?v=w2_fzooIKNU>
TYPE: YouTube video
For the deaf or hard of hearing, face masks pose new challenge
WHO: Laken Brooks
WHERE: <https://edition.cnn.com/2020/04/02/opinions/deaf-hard-of-hearing-face-masks-brooks/>
TYPE: Media, News, Opinion, Web page
How to Make An Accessible, Deaf-Friendly Face Mask
WHO: Hearing, Speech & Deaf Center.
WHERE: <https://www.hsdc.org/accessible-deaf-friendly-face-mask/> | <https://www.hsdc.org/wp-content/uploads/2020/04/HSDC-Instructions-for-Clear-Window-Masks.pdf>
TYPE: Web page; PDF
Medical Masks with a See-through Window that Support Lip-reading
TYPE: Google search
AUDIENCE: Community members and caregivers who interact with the deaf and people who rely on lip-reading for effective communication
Preparing Individuals with Intellectual/Developmental Disabilities for Medical Treatment at Hospitals
WHO: Michelle Ballan, Ph.D.
TYPE: Web page, map, interactive, resource list
Paved with good intentions
WHO: SafeAndSilent (I’m a professor of human factors engineering who teaches and researches human factors applications to safety. I’m also deaf.)
WHERE: <https://safeandsilent.wordpress.com/2020/07/07/paved-with-good-intentions/>
TYPE: Web page; blogpost
TOPIC: Comparison of non-ASL translator options to support the deaf and hard of hearing during the pandemic.
RECOMMENDATION: Face shields.
See-through face masks to help the deaf read lips
WHO: The Malaysian Insight
WHERE: <https://www.youtube.com/watch?v=PIah0E-osZ8>
TYPE: YouTube video
Signage, Free: Vulnerable to Infection
WHAT: Free graphic to print off for your door. Image has warning alert signals (yellow triangles) with red and black bold text stating: “VULNERABLE TO INFECTION. Please take precautions when calling at this house. Please knock / ring and then step back at least one metre from the door. Deliveries can be left on the step before knocking / ringing. Thank you for taking care to protect me.”
WHO: Owain Sutton
WHERE: <https://twitter.com/OwainAlty/status/1239483021855789057/photo/1>
Additional copy inserted here:
Supporting Communication with Patients who have COVID-19
WHO: United States Society of Augmentative and Alternative Communication (USSAAC), Patient-Provider Communication Forum
WHERE: https://www.patientprovidercommunication.org/supporting-communication-covid-19.htm
DESCRIPTION: “The Patient-Provider Communication Forum, with the support of the United States Society of Augmentative and Alternative Communication (USSAAC), is providing a FREE bank of communication supports to patients and their health care workers during this unprecedented time of need.”
TYPE: Nonprofit, Professional, Web page, Apps, Downloads
Video meeting misery
WHO: SafeAndSilent (I’m a professor of human factors engineering who teaches and researches human factors applications to safety. I’m also deaf.)
WHERE: <https://safeandsilent.wordpress.com/2020/05/13/videomeets/>
TYPE: Web page; Blog post
TOPICS: Comparison of options for real time transcription in video meetings to support the deaf and hard of hearing. Describes challenges for both audience and transcribers.
RECOMMENDATION: CART (Communication Access Realtime Translation)
What to know about clear medical masks for lipreading
WHO: Lisa Goldstein, Hearing Like Me
WHERE: <https://www.hearinglikeme.com/what-to-know-about-clear-medical-masks-for-lip-reading/>
TYPE: Web page, article
Education, Accessible Teaching, & Disability Scholarship
Accessible Teaching in the Time of COVID-19
WHO: by Aimi Hamraie and more…
WHERE:
Original source: <https://docs.google.com/document/d/1yBE1cCqJ_4M-JZ62K4CefmYsZugqAWkGmZmdwESt0IM/preview>
Official version: <https://www.mapping-access.com/blog-1/2020/3/10/accessible-teaching-in-the-time-of-covid-19>
Excerpt (Published by Niloufar Salehi on March 11, 2020): <https://sites.ischool.berkeley.edu/remote-teaching/2020/03/11/accessible-teaching-in-the-time-of-covid-19-by-aimi-hamraie-and-more/>
TYPE: Google Doc
Critical Disability Studies and COVID-19: A Resource Collection
WHO: University of Minnesota Critical Disability Studies Collective
TYPE: Google doc, list of resources
AUDIENCE: Broad
Dept. of Education: Fact Sheet: Addressing the Risk of COVID-19 in Schools While Protecting the Civil Rights of Students
WHO: United States. Department of Education. Office for Civil Rights
WHERE: <https://www2.ed.gov/about/offices/list/ocr/docs/ocr-coronavirus-fact-sheet.pdf>
TYPE: Government, PDF
Dept. of Education: OCR Short Webinar on Online Education and Website Accessibility
WHO: United States. Department of Education. Office for Civil Rights
WHERE: <https://www.youtube.com/watch?v=DCMLk4cES6A>
TYPE: Government, Video, YouTube
Dept. of Education: Questions and Answers on Providing Services to Children with Disabilities During the Coronavirus Disease 2019 Outbreak
WHO: United States. Department of Education.
WHERE: <https://www2.ed.gov/policy/speced/guid/idea/memosdcltrs/qa-covid-19-03-12-2020.pdf>
TYPE: Government, FAQ, PDF
Disability Scoop: Ed Department Offers More Special Education Guidance Amid COVID-19
WHO: Michelle Diament
WHEN: March 18, 2020
TYPE: News service, Web page
Disability Scoop: Feds Weigh In On Special Ed, Medicaid Concerns Over Coronavirus
WHO: Michelle Diament
WHERE: <https://www.disabilityscoop.com/2020/03/13/feds-weigh-in-special-ed-medicaid-coronavirus/27969/>
WHEN: March 13, 2020
TYPE: News service, Web page
The Experiences of Undergraduate Students with Physical, Learning, Neurodevelopmental, and Cognitive Disabilities During the Pandemic (SERU COVID-19 Survey)
WHO: Krista M. Soria, Bonnie Horgos, Igor Chirikov, and Daniel Jones-White
WHEN: October 23, 2020
TYPE: Google Doc, Research
Indiana University: Keep teaching during prolonged campus or building closures
WHO: UITS Support Center
WHERE: <https://kb.iu.edu/d/keep>
- Related version from University of Maryland: <https://svp.umd.edu/keepteaching>
TYPE: Higher education, Web page
Inside Higher Ed: Accessibility Suffers During Pandemic
WHO: Greta Anderson
TYPE: Media, News,
MUSINGS ABOUT CLASSES GOING ONLINE AND CRIP PEDAGOGIES OF IMPERFECTION
WHO: Ellen Samuels
WHERE: https://www.facebook.com/1518995807/posts/10221864242224750/
TYPE: Facebook post / short essay
AUDIENCE: Educators
Universities Ignore Accessibility at Critical Time for Remote Learning
WHO: Deanna Ferrante, Ally4All
TYPE: Blogpost, Web page
From People with Disabilities & Their Allies
Coronavirus Facts: What You Need to Know If You Have Chronic Illness or Are Immune-Compromised
WHO: Susan Jara
WHERE: <https://creakyjoints.org/living-with-arthritis/coronavirus-facts-for-chronic-illness-patients/>
TYPE: Blogpost
COMMUNITY SAFETY TOOLKIT: preparing for the election & post [Washtenaw County, MI]
WHO: Washtenaw Action Council
WHERE: <https://docs.google.com/document/d/1mESVq7OONiewaB-tSDHJkgLqg1jenaiRIPDRIjWclFA/edit?ts=5f974987>
WHEN: October 28, 2020
TYPE: Google Doc, Mutual Aid
Freedom for Some Is Not Freedom for All: COVID-19, Institutions, and Disability Rights
WHO: Alice Wong, Disability Visibility Project
WHERE: <https://disabilityvisibilityproject.com/2020/06/07/freedom-for-some-is-not-freedom-for-all/>
Type: Web page, Essay, Editorial
Half Assed Disabled Prepper Tips for Preparing for a Coronavirus Quarantine
WHEN: March 9, 2020, edited March 10, 2020
WHO: By Leah Piepzna-Samarasinha (who identifies as a queer disabled femme of color, and is a recognized author and disability activist who was an invited speaker here at UM a couple years ago)
WHERE: <https://docs.google.com/document/d/1rIdpKgXeBHbmM3KpB5NfjEBue8YN1MbXhQ7zTOLmSyo/preview>
TYPE: Google Doc, single author
AUDIENCE: People with disabilities, caregivers, family, friends
Mad Queer Organizing Strategies: Surviving the Apocalypse Together! A Mutual Aid Safety and Wellness Planning Template for COVID-19
WHO: Elliott Fukui
WHERE: <https://drive.google.com/file/d/18jineTQqwCaTjUYoLiO3I-Z60vSE-rO0/view>
TYPE: PDF, workbook
#NoBodyIsDisposable - Fight Discrimination in COVID-19 Triage (OPEN LETTER TO CARE PROVIDERS & HOSPITALS)
WHO: Crowdsourced, NoBody Is Disposable Coalition
- “We are people targeted by triage plans during the COVID-19 pandemic — people with disabilities, fat people, old people, people with HIV/AIDS or other illnesses — and our loved ones who don’t want us to die.”
WHERE:
- Current location: <https://nobodyisdisposable.org/>
- Original Google Doc: <https://docs.google.com/document/d/1tVq4Se8YF1rPJbeghxgqehOFdmWxrMNpNkAoYbKuPY0/edit#heading=h.1ppxmfwfhyad>
TYPE: Web site, Google Doc
#NoBodyIsDisposable - Know Your Rights Guide to Surviving COVID-19 Triage Protocols
WHO/WHAT: Crowdsourced, NoBody Is Disposable Coalition
- “This is a “Know Your Rights” toolkit that covers rights and strategies for people facing potential triage discrimination based on disability or weight, alone or in combination with other characteristics, during the COVID-19 pandemic in the United States.”
WHERE:
- Current location: <https://nobodyisdisposable.org/know-your-rights/>
- Original Google Doc: <https://docs.google.com/document/u/1/d/1td5Uq2R_ivBLzPzamnq41T89nLD1UetHzS-9tGr1fsk/mobilebasic>
TYPE: website
People with Disabilities Helping Each Other Survive The Coronavirus
WHO: Admins: Rose Greenblatt, Millie Gonzalez, Javier Robles
WHERE: <https://www.facebook.com/groups/237725317268130/>
TYPE: Public Facebook group
Plain Language COVID-19 Information By and For People with Disabilities
WHO: Green Mountain Self-Advocates
WHERE: English: <https://selfadvocacyinfo.org/wp-content/uploads/2020/03/Plain-Language-Information-on-Coronavirus.pdf>
TYPE: Nonprofit, self-help, PDF
Pod Mapping for Mutual Aid
WHO: By Rebel Sidney Black
WHERE:
Explanation: <https://docs.google.com/document/d/1-QfMn1DE6ymhKZMpXN1LQvD6Sy_HSnnCK6gTO7ZLFrE/edit>
Worksheet: <https://drive.google.com/drive/folders/1l_xCQmi3NnK0A_1Urnb1W0-Xs53-LMZI?usp=sharing>
TYPE: Google Doc, single author
SURVIVAL FOR FOLKS WHO NEED #PowerToLive DURING A POWER SHUTOFF
WHO: Fat Rose, Access-Centered Movement, and Disability Justice Culture Club in the SF East Bay
WHERE: <https://docs.google.com/document/d/18HoGaGluv92o9H4L1_QUGbHETQjhD1-5ANqV1aEoDmo/edit>
TYPE: Google Doc
COMMENTS: Initially compiled during the 2019 California wildfires. Provides tips on minimizing power use with medical devices, determining their power usage, and using, accessing batteries and generators, and maintaining temperature-sensitive drugs such as insulin should one lose access to electricity.
Ten Tips from a Chronically Ill Person for Surviving Social Distancing
WHO: Ellen Samuels
TYPE: Blogpost
Your Coronavirus Handbook
WHO: Laine Yuhas, freelance journalist and disability advocate
WHERE: <https://www.yourcoronavirushandbook.com/download-the-handbook.html>
TYPE: PDF
AUDIENCE: Everyone, easy-to-read
From People with Disabilities and Allies: Messages and Stories
‘The Cripples Will Save You’: A Critical Coronavirus Message from a Disability Activist
WHO: Charis Hill
WHERE: <https://creakyjoints.org/living-with-arthritis/coronavirus-disability-activism/>
TYPE: Activism, Blogpost
AUDIENCE: Everyone
COVID-19 Blog
WHO: Lucy Watts
WHERE: <https://www.lucy-watts.co.uk/2020/03/26/covid-19-blog/>
TYPE: Personal website, personal experience / opinion, blogpost, legal, planning
AUDIENCE: People with disabilities,
Disability Visibility Project: Disabled Oracles and the Coronavirus
WHO: Alice Wong, disability activist
WHERE: <https://disabilityvisibilityproject.com/2020/03/18/coronavirus/>
TYPE: Personal website, personal experience / opinion, blogpost
‘I Have Many Reasons to Be Worried About the Coronavirus But No Cares’: A Chronic Illness Patient Speaks Out
WHO: Jennifer Walker
WHERE: <https://creakyjoints.org/living-with-arthritis/coronavirus-chronic-illness-patients-dismissed/>
TYPE: Blogpost
From Organizations and Governments
ACL: COMMON QUESTIONS AND ANSWERS ABOUT COVID-19 FOR OLDER ADULTS AND PEOPLE WITH CHRONIC HEALTH CONDITIONS
WHO: Alliance for Aging Research; National Foundation for Infectious Diseases
TYPE: Nonprofit, PDF, FAQ
Adult Advocacy Centers: A First-Hand Experience with Online Counseling during COVID-19
WHO: Leigha Shoup
WHERE: <https://www.adultadvocacycenters.org/a-first-hand-experience-with-online-counseling-during-covid-19/>
TYPE: Web page
Adult Advocacy Centers: Watching for abuse during this time of isolation
WHO: Katherine Yoder, MS, CFI
WHERE: <https://www.adultadvocacycenters.org/watching-for-abuse-during-this-time-of-isolation/>
TYPE: Web page, resource list
ARCH Disability Law Centre: COVID-19 and Disability: Recommendations to the Canadian Government from Disability Related Organizations in Canada – March 24, 2020
WHO: ARCH Disability Law Centre
TYPE: Policy statement, Non-profit, Legal
CDC: Coronavirus Disease 2019 (COVID-19): Manage Anxiety & Stress
WHO: Centers for Disease Control
WHERE: <https://www.cdc.gov/coronavirus/2019-ncov/prepare/managing-stress-anxiety.html>
TYPE: Government resource, web page
Center for Disability Rights: Coronavirus (COVID-19) Resources
WHO: Center for Disability Rights (CDRNYS)
WHERE: <http://cdrnys.org/blog/press-releases/coronavirus-covid-19-resources/>
TYPE: Government, New York State, Web page
Council for Disabled Children (London): Guidance and Advice on Coronavirus: Learning Disability and Autism Focus
WHO: Council for Disabled Children (London)
TYPE: Web page links to PDF
CPR: COVID-19 Legislation
WHO: Center for Public Representation
WHERE: <https://medicaid.publicrep.org/feature/covid-19-legislation/>
TYPE: Web page
Ethical considerations in responding to the COVID-19 pandemic (Rapid policy briefing)
WHO: Nuffield Council on Bioethics
TYPE: PDF, Nonprofit
IDA: COVID 19 and the disability movement
WHO: International Disability Alliance
WHERE: <http://www.internationaldisabilityalliance.org/covid-19>
TYPE: Non-profit, Resource list, Collection, Web page
ILO: Disability Inclusion in Covid-19 responses in the World of Work
WHO: International Labor Organization
WHERE: <https://www.ilo.org/global/topics/disability-and-work/WCMS_739022/lang--en/index.htm>
TYPE: Webinar
NAACHO: Capacity-Building Toolkit For Including Aging & Disability Networks In Emergency Planning
WHO: Authored by the National Association of County and City Health Officials (NACCHO) and the Association of State and Territorial Health Officials (ASTHO) in collaboration with the HHS Office of the Assistant Secretary for Preparedness and Response (ASPR) and the HHS Administration for Community Living (ACL)
TYPE: Nonprofit and government resource, PDF (114 pages)
AUDIENCE: City planners and event organizers, everyone.
NAMI: COVID-19 (CORONAVIRUS) INFORMATION AND RESOURCES
WHO: National Alliance on Mental Illness
TYPE: Non-profit, PDF, FAQ
AUDIENCE: Persons with mental illness, general public
NAMI Updates On The Coronavirus
WHO: National Alliance on Mental Illness
WHERE: <https://www.nami.org/About-NAMI/NAMI-News/2020/NAMI-Updates-on-the-Coronavirus>
TYPE: Nonprofit, web page
National Children’s Bureau: Coronavirus: children and young people’s views on what it means to be ‘vulnerable’
WHO: National Children’s Bureau
TYPE: Webpage
NORD’s Peter L. Saltonstall on Coronavirus Prevention and Risk for the Rare Community
WHO: National Organization for Rare Diseases
TYPE: Nonprofit, Webpage
Partnership for Inclusive Disaster Strategies: COVID19 Community-Wide Resources
WHO: Partnership for Inclusive Disaster Strategies
WHERE: <https://docs.google.com/document/d/1-53u6OnvUCB0OaWs8ys8RRDbfQLN-9zmZzzYPHF7bHU/edit>
TYPE: Google Doc
SAMHSA: Mental Health: Recovering from Disasters
WHO: Substance Abuse and Mental Health Services
WHERE: <https://www.samhsa.gov/dtac/recovering-disasters>
TYPE: Government resource, Web page
AUDIENCE: Everyone
COMMENT: Authoritative resource, does not need review.
Senate: COVID-19 Recovery for Seniors and People with Disabilities Act (S.3740)
WHO: U.S. Senators Bob Casey (D-PA), Sherrod Brown (D-OH), Doug Jones (D-AL)
TYPE: Legislation (Proposed), PDF
RELATED:
- Sens. Casey, Brown, Jones, Rep. Schakowsky Unveil Legislation to Address the Needs of Seniors, People with Disabilities During COVID-19 Pandemic <https://www.aging.senate.gov/press-releases/sens-casey-brown-jones-rep-schakowsky-unveil-legislation-to-address-the-needs-of-seniors-people-with-disabilities-during-covid-19-pandemic->
Senate: Coronavirus Relief for Seniors and People with Disabilities Act (S. 3544)
WHO: Bob Casey (PA)
TYPE: Legislation (proposed), PDF
Shepherd Center: Assistive Technology Center: Making Masks More Inclusive: Modifications Meet Patients’ Specific Needs and Protect from Illness
WHO: Shepherd Center: Assistive Technology Center
TYPE: Web page; links to patterns, instructions, videos, PDFs.
Social Security & Coronavirus
WHO: Social Security Administration (USA)
WHERE: <https://www.ssa.gov/coronavirus/>
TYPE: Government, United States, Web page
Statement Regarding the Coronavirus and Hard of Hearing People
WHO: European Federation of Hard of Hearing People; International Federation of Hard of Hearing People; Asia Pacific Federation of the Hard of Hearing and Deafened
WHERE: <https://www.efhoh.org/statement-regarding-coronavirus-hard-of-hearing-people/> PDF: <https://www.efhoh.org/wp-content/uploads/2020/03/Statement-Regarding-the-Coronavirus-and-HoH-People.pdf>
TYPE: PDF, Guidelines, Recommendations, Letter
WFD and WASLI Joint Statement on Access to Health Services During the Coronavirus (Covid 19) Containment Efforts
WHO: World Association of Sign Language Interpreters and World Federation of the Deaf
WHERE: <https://wasli.org/cat_news/wfd-wasli-joint-statement-on-covid-19> OR <https://mailchi.mp/wfd.fi/information-on-the-coronavirus?e=dc778e54da>
TYPE: Nonprofit, Newsletter, Announcement, Policy recommendation
World Institute on Disability, Partnership for Inclusive Disaster Strategies and National Council on Independent Living Joint Statement on Disability Rights and Coronavirus (Covid 19) and other resources
WHO: World Institute on Disability, Partnership for Inclusive Disaster Strategies and National Council on Independent Living
WHERE: World Institute on Disability Emergencies, Disasters, and Climate Resilience
Partnership for Inclusive Disaster Strategies
TYPE: Announcement, Policy recommendations
Local Resources (Michigan)
Ann Arbor Observer: Community Resource Guide for Covid-19
WHO: James M. Manheim, Cynthia Furlong Reynolds, Jan Schlain, Chuck Warpehoski
WHERE: <https://annarborobserver.com/articles/community_resource_guide.html#.Xr1oEhNKjOQ>
TYPE: Article, resource list.
Engage@EMU's Resources -Washtenaw/Wayne Michigan- Updates ongoing : Resources
WHO: Engage@EMU (Eastern Michigan University)
TYPE: Google Doc
COVID-19 Community Resources: United Way of Washtenaw Launches COVID-19 Community Relief Fund
WHERE: <https://www.uwwashtenaw.org/covid-19-community-resources>
WHO: United Way of Washtenaw County
TYPE: Press release
Michigan: Huron Valley COVID-19 Mutual Aid Form - Formulario de ayuda mutua
WHO: Local organizers
WHERE: <https://docs.google.com/forms/d/e/1FAIpQLSdhW2voPOll9Jmy_QR0AXk1Pge1JGn3tByJ-SlPfKNsMjcHLg/viewform>
TYPE: Form to request or offer aid
SEE ALSO: Facebook group <https://www.facebook.com/groups/2424471741198383/?ref=share>
Michigan: Huron Valley Mutual Aid Spreadsheet
WHO: Local organizers
WHERE: <https://docs.google.com/spreadsheets/d/1tam5kDoNkIC18YX9QEFVP_s0psLUxGKm31EQkahcIqE/edit?usp=sharing>
TYPE: Google Doc
Michigan State Police: Disaster Declaration FEMA-4494DR-MI Public Assistance Information
WHO: Michigan State Emergency Management & Homeland Security
WHAT: <https://www.michigan.gov/msp/0,4643,7-123-72297_60152_99665---,00.html>
TYPE: Web page, Resource information, Links collection
University of Michigan Poverty Solutions: MICHIGAN COVID-19 PANDEMIC RESOURCE GUIDE
WHO: UM Poverty Solutions
WHERE: <https://docs.google.com/document/d/1-r9zam_Gh8Up-msqb4T0BRirLzV5obyuZA91Csbcqb4/edit>
TYPE: Google Doc
Washtenaw Mutual Aid and Resources
WHO: Local organizers
WHERE: <https://www.facebook.com/groups/2424471741198383/>
TYPE: Facebook group
Washtenaw Small Business Emergency Relief Fund
WHO: Office of Community & Economic Development of Washtenaw County, Ann Arbor SPARK, Entrepreneurship Center at Washtenaw Community College, Small Business Development Center, The Song Foundation,
WHERE: <https://www.washtenawsbf.com/>
TYPE: Web site
Multimedia (Webcasts, Webinars, Video, and/or Audio)
COVID-19: What Nursing Homes Need to Know!
WHERE: <https://www.caltcm.org/covid-19>
TYPE: Archived webinar
AUDIENCE: Health care providers, possibly elderly (I haven't watched it yet)
ILO: Disability Inclusion in Covid-19 responses in the World of Work
WHO: International Labor Organization
WHERE: <https://www.ilo.org/global/topics/disability-and-work/WCMS_739022/lang--en/index.htm>
Through the Eyes of Someone Living with Dementia: Practicing Person-Centered Communication During COVID-19
WHEN: Thursday, March 12, 2020; 12pm-1pm ET / 9am-10am PT (Archived version available March 13)
WHERE: <https://embodiedlabs.com/webinar-03-12-2020>
TYPE: Webinar
AUDIENCE: Caregivers
COMMENTS: PFA watched this. It is good to listen to, but not to watch. Presenters included content on how to use sensory and environmental cues to reduce or manage fear and stress in persons with dementia, how to work with healthcare students, and more. My favorite parts included ways to use technology supports to reduce the sense of isolation while quarantines, offer distraction, engage around personal interests, and improve positive affect. Good case studies with practical examples for caregivers.
Selected News
BBC: Coronavirus: 'I know my life will not be saved in this pandemic'
WHO: Lucy Watts
WHERE: <https://www.bbc.com/news/disability-52149219>
TYPE: Major media, News, Personal story
BBC Newshour interview on disability and COVID-19
WHO: BBC
WHERE: <https://www.bbc.co.uk/sounds/play/w172wq57s1n5r15> starts at: 37:30
CAVEATS: Released On: 18 Mar 2020; Available for 22 days
TYPE: Major media, News
SYNOPSIS:
BuzzFeed News: The Coronavirus Response Shows How Crucial Accessibility Is
WHO: Amy Meng
WHERE: <https://www.buzzfeednews.com/article/amymeng/coronavirus-working-from-home-disability-accessibility>
WHEN: March 13, 2020
TYPE: Major media, News
Disability Scoop: Coronavirus Brings Added Worries For People With Disabilities
WHO: Blythe Bernhard
WHERE: <https://www.disabilityscoop.com/2020/03/17/coronavirus-brings-added-worries-disabilities/27989/>
WHEN: March 17, 2020
TYPE: News service, Web page
Forbes: 5 Things To Know About Coronavirus And People With Disabilities
WHO: Andrew Pulrang
WHEN: March 8, 2020
TYPE: Major media, News, Web page
Forbes: Mindset Matters: The Coronavirus, Disability, The Lessons Learned From Resiliency
WHO:
WHEN: March 16, 2020
TYPE: Major media, News, Opinion, Web page
Guardian: Disabled people cut off from vital supplies due to panic buying; People with disabilities say coronavirus means they are struggling to get deliveries
WHO: Frances Ryan and Sarah Marsh
WHEN: March 18, 2020
TYPE: Major media, News, Web page
Jewish News of Northern California: Disability during a pandemic: Why you should put a spoon on your seder plate this year
WHO: Rabbi Elliot Kukla
TYPE: Media, News, Opinion, Web page
NPR: Disability Groups File Federal Complaint About COVID-19 Care Rationing Plans
WHO: Joseph Shapiro
TYPE: Major media, News, Web page
San Diego Union Tribune: People with disabilities should lead discussions about their rights and needs, especially during pandemic
WHO: Lisa Deaderick, Kerry Thompson
TYPE: Major media, News, Web page, Opinion, Interview
Spectrum News: How governments should maintain disability services during the pandemic
WHO: Ari Ne’eman
TYPE: Media, News, Opinion, Web page