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Electronic Workbook

An International Forum on HIV & Rehabilitation Research

Translating Research Evidence from the Canada-UK HIV and Rehabilitation Research Collaborative (CUHRRC) and Canadian Working Group on HIV and Rehabilitation Research Collaborative (CWGHR)

June 13-14th, 2013

Li Ka Shing Knowledge Institute, St. Michael’s Hospital

Toronto, Ontario, Canada

How to use this Electronic Workbook

This is an electronic interactive workbook for all of you participants, rapporteurs and organizers to use. Everyone has levels of access to it. It contains information about the Forum, its goals, contents, participants and proceedings.

Sections of this Workbook are completed on-the-spot by rapporteurs, and some other before or after the 2013 Forum. All sections are made public within the context of research, community work in the field of HIV and rehabilitation, and education and training in academic, community and policy environment. Any additional use will be requested formally to the participants (e.g. journalistic media).

Want to know what Speakers see as key aspects and publications in this evolving field?

Before the 2013 Forum, our speakers gave us Key Messages in the field and suggested 2 Key Publications.

Check Key Messages & Key Publications

Click here for the French version of the Forum Workbook

ACKNOWLEDGEMENTS

The International Forum on HIV and Rehabilitation Research is supported by a Dissemination Grant from the Canadian Institutes of Health Research (CIHR), the Public Health Agency of Canada, The Ontario HIV Treatment Network and the University of Toronto. The views expressed herein do not necessarily represent the views of the Public Health Agency of Canada.

This Forum has been supported by many, please click this link see the full list of our delightful supporters

Welcome to the first ever International Forum on HIV and Rehabilitation Research!

Dear friends:

This Forum is a collaboration between the Canadian Working Group on HIV and Rehabilitation (CWGHR) and Canada-UK HIV and Rehabilitation Research Collaborative (CUHRRC) aimed to discuss research evidence knowledge on HIV, disability and rehabilitation among people living with HIV, researchers, clinicians, representatives of community organizations, and policy makers in Canada, UK and Ireland.

Rehabilitation in the context of HIV is an interdisciplinary and intersectoral area of inquiry and practice that effectively bridges academic disciplines, clinical practice and community efforts. We’re excited by the range of speakers from Canada, United Kingdom, Ireland and the United States, who will share their research across six priority areas in HIV and rehabilitation including HIV, aging and concurrent health conditions, HIV and neurocognitive rehabilitation, access to and effect of rehabilitation, and labour force participation. We’re looking forward to the rich discussion and opportunities for new partnerships ahead!

We are delighted to count community leaders, policy makers and students amongst our participants, and specially the presence of persons living with HIV who are champions in this expanding area of research.

We gratefully acknowledge funding from the Canadian Institutes of Health Research (CIHR), HIV/AIDS Research Initiative, as well as support from the Public Health Agency of Canada, the Ontario HIV Treatment Network, and the University of Toronto. We also thank the members of the Core Forum Planning Team including, Le-Ann Dolan, Janet London, and Nkem Iku, who worked tirelessly with us to plan this event.

Enjoy the Forum!

Sincerely,

Elisse Zack, Kelly O’Brien & Francisco Ibanez-Carrasco

Media Coverage

Thursday, June 13, 2013

Radio Canada (print) interview for website – Ken Monteith & Stéphanie Clavier-Loranger, click on link: http://www.radio-canada.ca/util/postier/suggerer-go.asp?nID=1121573 dubbed the ‘First ever forum on PHA and Aging’
Radio Canada - Toronto, ‘Y a pas deux matins pareils’ aired live at 3 :15pm – Stéphanie Clavier-Loranger ( recording/link coming soon)
Téléjournal Ontario (TV) aired at 6 :40pm (pre-recorded at 3:15pm) - Stéphanie Clavier-Loranger http://www.radio-canada.ca/emissions/telejournal_ontario/2011-2012/integrales.asp (Interview 34 minutes into show)
CBC Radio, ‘Here and Now’ aired live at 5 :00pm – Glyn Townson (still trying to source copy of recording/link to exact recording of interview)

Friday, June 14, 2013

Radio Canada - Toronto, ‘Y a pas deux matins pareils’ aired live at 6 :40am – Ron Rosens (recording/link coming soon)

Goal

To translate research evidence knowledge on HIV and rehabilitation generated through an international collaborative called the Canada-United Kingdom (UK) HIV and Rehabilitation Research Collaborative (CUHRRC) and CWGHR to people living with HIV, researchers, clinicians, representatives of community organizations, and policy makers in Canada, UK, USA and Ireland.

Objectives

1) To disseminate new up-to-date research evidence on HIV and rehabilitation in each of six key research priorities in HIV and rehabilitation identified by CWGHR in a national scoping study;

2) To promote knowledge transfer and exchange of HIV and rehabilitation research among people living with HIV, researchers, clinicians, community organizations and policy makers that will inform future programs, clinical practice, policy, and rehabilitation service delivery;

3) To foster new research and clinical partnerships in HIV and rehabilitation between Canada, UK and Ireland;

4) To develop knowledge transfer and exchange (KTE) materials including a detailed report and fact sheet summarizing the research evidence translated at the Forum, and a video library of Forum speaker sessions.

5) To update key research priorities in HIV and rehabilitation and develop a research bank of ideas in which to undertake in the future.

Interactive Program at a Glance

Here’s How to use it

This electronic workbook version has many hyperlinks for you to click on. Be curious and explore them.

Want to know what Speakers see as key aspects in this evolving field?

Before the 2013 Forum, our speakers gave us Key Messages in the field and suggested Key Publications

Click here to see the Speakers’ Key Messages and Suggested Resources

Read what the Rapporteurs are saying online now!

Find the link to each session in the program below, click on it and you will see what they are writing. Or you can check it after the session!

Want to know more about the speakers?

Click on this link to find all the biographies

Day 1- Thursday June 13th, 2013

Dissemination of HIV and Rehabilitation Research to Inform Clinical Practice, Education, Policy and Programs

Time (EST)	Topic
8:00 -9:00 am	Breakfast and Registration
9:00-9:10 am	Welcome and Official Opening to the Forum and CWGHR’s 15th Anniversary Celebration Greg Robinson (Canadian Working Group on HIV and Rehabilitation)
9:10-9:15 am	Introduction, Welcome and Forum Logistics
9:15-10:00 am	Setting the Context: Why Canada, United Kingdom and Ireland? Francisco Ibáñez-Carrasco (Ontario HIV Treatment Network (OHTN)) Overview of CWGHR and Key Research Priorities in HIV and Rehabilitation Elisse Zack (Canadian Working Group on HIV and Rehabilitation (CWGHR)) Goal of Forum and Overview of CUHRRC Kelly O’Brien (University of Toronto)
10:00-10:15 am	Wellness Break
10:15 am-12:00 pm	Plenary Session - HIV and Aging: State of the Evidence in Canada, UK, and Ireland - Advancing the Field of HIV, Aging and Neurocognitive Rehabilitation Keynote Speakers: Colm Bergin (St. James’s Hospital, Dublin, Ireland) Simon Rackstraw (Mildmay Mission Hospital, London, England) & Will Chegwidden (Barts and London NHS Trust, London, England) Sean Rourke (OHTN, St. Michael’s Hospital, University of Toronto) Click here to read what the Rapporteurs wrote
12:00-1:00 pm	Lunch
1:00-2:00 pm	Research Evidence Panel Session 1 – Disability and Episodic Disability Establishing a Profile of Disability and Rehabilitation Service Use Among People Living with HIV in Canada: Lessons Learned from Piloting the HIV, Health and Rehabilitation Survey (HHRS) Disability experienced by people living with HIV attending a rehabilitation clinic in the UK Exploring relationships between dimensions of disability experienced by adults living with HIV: A structural equation modeling analysis using data from the Ontario HIV Treatment Network Cohort Study (OCS) Speakers: Catherine Worthington (University of Victoria) Will Chegwidden (Barts and London NHS Trust, London, England ) Kelly O’Brien (University of Toronto) Read what the Rapporteurs wrote
2:00-3:00 pm	Research Evidence Panel Session 2 – Concurrent Health Conditions Aging with HIV HIV and Aging – Experiences of disability among older adults living with HIV Evidence-Informed recommendations for rehabilitation for older adults with HIV HIV and Aging (CWGHR)– Environmental Scan of research on HIV and aging (HIV and Aging sector) Speakers: Patty Solomon (McMaster University) Larry Baxter (CWGHR) Glenn Betteridge (CWGHR) Read what the Rapporteurs wrote
3:00-3:15 pm	Wellness Break
3:15-4:15 pm	Research Evidence Panel Session 3 – HIV and the Brain Functional Impact of HIV Associated Neurocognitive Disorder (HAND) and strategies for rehabilitation Using a measure of everyday performance to assess the presence and severity of HIV associated neurocognitive disorders Positive Outlook: A Needs Assessment of Front-line Care Providers Working with People Living with HIV and Depression Speakers: Elizabeth Stevens (Heartland Hospital, Birmingham, England) Brenda Merritt (Dalhousie University) Le-Ann Dolan (CWGHR) Read what the Rapporteurs wrote
4:15-5:20 pm	Knowledge Transfer Exchange (KTE) Breakout Roundtable Sessions You will stay at your table if your table is full. One Rapporteur will join you. You will have guiding questions to facilitate your roundtable discussion. You will present to the entire Forum the top 3 point discussed at your table. Read what the rapporteurs wrote
5:20-5:30 pm	Wrap-up of Day 1 and Evaluation
5:45-8:00 pm	Cocktail Reception: CWGHR’s 15th Anniversary Celebration and Award of Excellence Presentation 15th Anniversary of CWGHR Celebration CWGHR Award of Excellence in HIV and Rehabilitation 2013 Recipients: Dr. Patty Solomon and Coalition des organismes communautaires québécois de lutte contre le sida (COCQ-SIDA) (http://www.hivandrehab.ca/EN/about_us/2013Award.php) Host: Andrew Nichols (CBC)

Day 2-Friday June 14th, 2013

CWGHR Annual General Meeting and Continuing to Disseminate Research Evidence, Foster New HIV and Rehabilitation Partnerships between Canada, Ireland and UK and Formalizing Next Steps

Time (EST)	Topic
8:30-9:00 am	Breakfast
9:00-9:05 am	Welcome, Review of Day 1 and Overview of Day 2 Agenda
9:05-10:15 am	Day 2 Plenary Session–Implementing HIV and Rehabilitation Research into Practice Speakers: Stephen Karpiak (AIDS Community Research Initiative of America (ACRIA), New York, USA) Siobhan O’Dea (St. James’s Hospital, Dublin, Ireland) Darren Brown (Chelsea and Westminster Hospital, London, England) Gord Arbess (St. Michael’s Hospital, Toronto, Canada) Read what the Rapporteurs wrote
10:15 -10:30 am	Wellness Break
10:30 -11:30 am	Research Evidence Panel Session 4 – Labour Force and Income Support Employment status, job quality and health in people with HIV: The Employment Change and Health Outcomes (ECHO) study ‘Getting to Work’– Creating Evidence-Informed Learning Tools to Enhance Labour Force Participation Options for PHAs in Canada Different But Equal – Enhancing Labour Force Participation for People Living with Episodic Disabilities – an update on CWGHR’s research on employment and episodic illness Speakers: Sergio Rueda (OHTN) Catherine Worthington (University of Victoria) Tammy Yates (CWGHR) Read what the Rapporteurs wrote
11:30 am-1:30 pm	Lunch and CWGHR Annual General Meeting (AGM) - 15 Years of HIV and Rehabilitation: Where Have we Been and Where are we Going Internationally?
1:30-3:30 pm	Research Evidence Panel Session 5 – Access to and Effect of Rehabilitation CWGHR – Increasing Equitable Access to Rehabilitation Exercise and Adherence in People Living with HIV in the UK Living with HIV: Designing and evaluating the new Casey House Day Health Program An Innovative Rehabilitation Health Care Delivery Model - Accessing Rehabilitation for people living with HIV/AIDS (PHAs) Evaluating the uptake of an electronic e-module for rehabilitation professionals on HIV What’s Policy Go To Do With It?: An Exploration of HIV Rehabilitation Policy Approaches in Canada and the UK Speakers: Elisse Zack (CWGHR) Rebecca Mullin (St Thomas' Hospital, London, England) Soo Chan Carusone (Casey House, Toronto, Canada) Tara Carnochan (Nine Circles Community Health Centre, Winnipeg, Canada) Nancy Salbach (University of Toronto) Jacqueline Gahagan (Dalhousie University) Read what the Rapporteurs wrote
3:30-3:45 pm	Wellness Break
3:45-4:15 pm	Research Evidence Panel Session 6 – HIV Measurement Tools Patient-reported outcome measures in HIV care: What Matters Now? Developing and assessing the measurement properties of the new HIV Disability Questionnaire (HDQ) with adults living with HIV Speakers: Richard Harding (King’s College London, London, England) Kelly O’Brien (University of Toronto) Read what the Rapporteurs wrote
4:15-5:15 pm	Bringing it all Together –Review of All Six Research Priorities and KTE Large Group Discussion Read what the Rapporteurs wrote
5:15-5:30 pm	Wrap-Up and Forum Evaluation