Completed NJ Timeline

NJ TIMELINE:

(OCTOBER 2014 - APRIL 2018)

Sources Include:

Tumblr, Instagram, Facebook, YouCaring, YouTube, GoFundMe, Reddit, the Internet in General

2014

Date (YY/MM/DD)	Account	Summary (Quotes in “...”)	Contradictions	Type
14/10/30	Tumblr	Talks about people needing to put trigger warnings because her panic attacks can hospitalize her “I had to go to the ER 2 hours ago because someone sent me a screamer on anon.”		Panic attacks Mental Health
14/11/05	Tumblr	Talks about how bad she feels and that she “just want(s) to be able to get up in the morning and not feel as if I am about to walk into my own death.” Talks about bullying Talks about not wanting to have panic attacks		Mental Health General Physical Health
14/11/14	Tumblr	Fundraiser to get her horse from delaware to her in california so it won’t get put down. Grandmother passed away and she owned him. Needs $3000 Has raised money from her church and savings but claims she is still $1200 short	Note: we never hear an update about this money and horse	Fundraiser
14/11/17	Tumblr	In a dark room at school and says the digital clock light is so bright (inferring that it’s hurting her migraine) Claims she cannot read because of her migraine Post is written in present tense	Note: she is currently taking photos and posting on tumblr while having a migraine that is causing her to not be able to read.	Migraine

2015

15/01/09	Tumblr	Took a break from tumblr because of hate towards pages such as hers (supernatural fandom related) Talks about how it’s not okay to harass people “I’m already a high stress person” Warns anons she has a way of tracking down their IP addresses		Mental Health
15/01/24	Tumblr	Talks about owning a big dog but being scared of small dogs		Mental Health Hero?
15/02/02	Tumblr	been struggling with anxiety and panic disorder since 8th grade A few attacks caused hospitalization Says needs service dog to keep her stable Says she needs $25,000 for a fully trained dog “My attacks leave me on the floor and often times unable to get up for several minutes, and once I do, I am often unbalanced.” Asks for donations to “my fund me account” linked or private paypal. NJ has mentioned many times that Hero started out as a psychiatric assistance dog.		Hero
15/02/03	Tumblr	Talks about not being “fine” Talks about feeling like she’s losing control of herself. Seems extremely overwhelmed and possibly depressed Talks about being told to just eat well and exercise and that she isn’t sick. Says that’s wrong. Says she plays 4 sports and ate only fish and vegetables for 2 weeks Talks of withering away Talks of someone won’t care until it effects their life Talks about anxiety and what seems like panic attacks as well as what seems like SPD		Mental Health
15/03/10	FB	Picture of NJ crouched on here tip toes on top of some small raised platform.	This is less than a year later from her supposedly brain damaging migraine. She said that she has been in PT and is significantly better now (2018) than she was, however she is now relying on a wheelchair so it seems that she was indeed better back then.
15/05/02	FB	“Garth #2925 sitting pretty for a picture with his new human sister.” Pictured NJ hugging Hero (Garth) at an outdoor event “California Labradors, Retrievers & More Rescue” is Tagged Presumably the day Hero (Garth) was adopted.	NOTE: NJ claims she did not pick Hero’s name.	Hero
15/05/27	FB	Informed that Hero cannot go to school with her. In this post she refers to Hero as her “service dog” not service dog in training	Note: NJ has only had Hero for 25 days at this point and is already asking to take him to school.	Hero
15/05/29	FB	Hero gets his new vest Possibly indicating hero is doing public access work less than a month after his adoption		Hero
15/05/29	Hero’s FB	NJ speaking as Hero Confirmed Hero isn’t going to school with her at this point Indicates some of the commands hero knows are to do with blocking and DPT as well as emotional support.		Hero
15/05/30	FB	Hero wearing red vest and head halter		Hero
15/08/02	Tumblr	Hero in head halter		Hero
15/08/02	Tumblr	Has been away for a while because of her anxiety Family made a collective decision to cut off her internet to focus on treatment States panic attacks cut off oxygen to brain. Says this caused problem with lungs and brain. “I have a Service dog by the name of Hero, who has been assisting me with alert work etc.”		Mental Health Hero
15/08/15		Talking about a bomb scare that happened at their school causing a lockdown Talks about flashbacks, dissociation, possible panic attack, rocking back and forth Suicidal ideation “It makes me feel like I can’t do it anymore.I want to give up. Did you know that I think of ways to get myself injured all of the time, of how to end up hospitalized and in a wheelchair because maybe, just maybe if I was in a chair, you would understand, you would treat me better… And now that this mental disability has become a physical one, maybe now you’ll care.” I am assuming in the above text she is talking about the alleged TBI.
15/09/03	Tumblr	Fundraising for a mobility harness for Hero Claims she needs it to finish her senior year of high school Claims having trouble balancing lately Says she doesn’t usually do this Is asking for $800	She has asked tumblr for donations twice before so I do not know what her definition of “not usual” is.	Hero Gofundme
15/09/06	FB	Says she didn’t want to post for fear of judgement but she “needs” it Claims she “need(s) this harness in order to do anything.” “Will allow Hero to be able to balance me during episodes”, I can’t tell what the word “episodes” in this sentence is referring to. Help her keep standing during dizzy spells as well as getting up and down during and after “attacks”, I cannot tell what the word “attacks” is referring to in this sentence. Posts link to gofundme	The way she phrases this almost makes these “attacks” seem like cataplexy or some weird migraine related drop attack. She may also be talking about panic attacks?	Hero Gofundme
15/09/09	Tumblr	She states she doesn’t hold herself back, it’s the “migraine complexity disorder.” “I have a syndrome that actually causes me to lose feeling in my limbs and PASS OUT.” Rants about how no one should tell someone they don’t need a service dog. More about not distracting service dogs because “He is here to support me and if you distract him and he alerts even 2 minutes too late, I could be seriously hurt, or worse I could die.”	There are “Complex Migraines” but there isn’t anything called “Migraine Complexity Disorder” -Could die if Hero doesn’t alert to a migraine in time? Even though migraines don’t usually come on suddenly or without warning?	Migraine Hero
15/09/25	Hero’s FB	Hero is still not able to go to school at this point He has to be crated otherwise he will “destroy the house” NJ hasn’t been doing well lately		Hero
15/10/18		USA triathlon website “Gildan Esprit De She San Diego - Super Sprint Tri” results NJ placed fourth with a time better than the majority of other competitors This was not a team triathlon. She completed the entire triathlon	NJ has stated previously that she did “didn’t run a triathlon in 2015. I swam the first leg of it in a team triathlon.” (PROOF: https://drive.google.com/open?id=1uBfjrfR-UoTujQ1HNVoRKrLFVycKlPsW) She claims that her major migraine happened in 2015/05-06. Claims she had to do PT because she had extensive muscle weakness and even claims “lasting hemiparalysis”)	Migraine
15/11/27		Writes Inspirational post about getting through the holidays when you can’t eat which is specifically aimed at people with eating disorders as the post is titled “To all Y’all with eating disorders...” Offers her support to others saying “Feel free to message me…”	Has repeatedly claimed she does not and never has had an eating disorder.	Mental Health ED
15/12/09		Is annoyed about a teacher with a “therapy dog” who is off leash and appears to have no tasks Kept trying to play with Hero and was distracting him Claims Hero missed an alert Tried to stand up to pull Hero away from the dog and fell and smacked her head against the desk. The teacher yelled at her She is filing a report against the teacher.	Why would she fall? The way she’s phrasing makes it seem like she passed out, but Hero would have missed the alert while she was sitting?	Hero
15/12/11	Tumblr	Says Hero is a medical alert dog. Lists Hero’s tasks: Alert to migraines, DPT, react to seizures, react to panic attacks, mobility assistance “for when my balance is shit because of a headache”, “some psychiatric work for dissociation, and anxiety.”	NOTE: Hero was originally said to be for her mental health. She got Hero in May and here it is Dec of the same year. Note: “seizures” even though she’s not epileptic, nor has she posted anything about an EEG.	Hero Seizures
15/12/11	Tumblr	NJ is pictured running some sort of race with Hero. She looks to be going quite fast and having no mobility issues. Hero does not appear to be in any service dog gear NJ is wearing a large racing number card indicating she is participating in the race	NJ has claimed that at this point she was unable to run a race. I guess this race never happened then. https://www.dropbox.com/sh/pgac3rjsn6nvt27/AACnuMQewE3D5madM1kX46O-a?dl=0 The pictures show her at the start line in front of most people, she’s seen running w/out Hero midrace.	Physical Health
15/12/14	Tumblr	Claims Hero woke her up at 5am before she started to throw up so she could get to the bathroom Woke up with the “...worst headache EVER.”		Hero Migraine?
15/12/14	Tumblr	Pain issues all day and an ER trip the previous night was unhelpful They kept her until the morning Couldn’t do anything for the pain They apparently don’t know what’s going on Parents doubt her pain but she’s saying that the migraines are causing anger flare ups. She said the ER staff brought up the possibility of a wheelchair Claims the migraine is from going to the school dance without Hero After she got home from the ER she went shopping with her father Father got angry at her and left them in a pet store for an hour and a half She then went to bed for the rest of the day after doing a short training session with Hero	The migraine can’t have been that bad if she went to the shops right after she got home from the ER. Then managed to spend 1.5hrs in the pet store AND train Hero before being bedridden	Migraine Wheelchair
15/12/20	Tumblr	Asks for donations and posts the link to her gofundme, youcaring and paypal saying “...spread the word so I can get my life back.”		Wheelchair
15/12/14	Tumblr	Claims that Hero is “...part mal but he is mostly Dingo.”	She has told us previously on Sarahah that She does not know what breed Hero is. She only knows he is part mallenois.	Hero
15/12/20	Tumblr	Trying to raise money for Wheelchair, asking for donations “looking at getting a used chair from eBay” Saw people do it for another account so asking them to “help me get back to my life.” The link to the GoFundMe is dead, but you can still read some of the description: “I do not like to say that I am weak, but unfortunately now I have to ask for help. I am a 17-year-old who needs to get a wheelchair due to my TBI(Traumatic Brain Injury) for pain days. Since three years ago I began to have problems walking during extreme migraines, and after awhile, realized that it…” Note: She’d never mentioned migraine issues before 2014, and 2014 was supposedly when her “TBI” occurred. They also never diagnosed her with a TBI, the “neuro”(surgeon?) said it was anxiety In comments below post she mentions she has been looking at a few used models of the Quickie and TiLite on eBay.	Previously she has stated that they thought she might have a TBI but nowhere does she say that this was ever confirmed. NOTE: She states here the wheelchair is for a TBI (as stated above this conflicts a previous statement) and for pain. This is in conflict with current claims of needing the chair for hemiparesis and POTS.	Wheelchair
15/12/22	Tumblr	Had a “convulsive migraine” and her mother yelled at her to get up and stop being selfish. She said Hero alerted and her mother disagreed because Hero was supposedly in her (NJs mother’s) room NJ thinks Hero went into her mother’s room to get her (mother) to help her (NJ) Complains mother won’t take her to the Dr Mentions Hero is not trained to respond at home “because MY PARENTS ARE SUPPOSED TO RESPOND.” Says Hero can’t help her all the time States she want to “get out”	There are no such things as “convulsive migraines” unless she’s meaning to say she has migralepsy which is a form of epilepsy.	Hero Migraine Seizure?
15/12/25	Tumblr	Writes about having to end her relationship with her uncle because he does not like dogs and requested for Hero not to be present at Christmas States people don’t understand “...why we say our service dogs save our lives.” Talking about Hero being her “lifeline” Lets her know when to rest, allows her to go out in public and go and go to school because he “mitigates my panic attacks”. Lets her know when she’s going to have a severe migraine “that leaves me laying on the floor from anywhere from 5 minutes to a week, sometimes even longer.” Tags on the post include TBI, PTSD, Spoonie Life		Hero
15/12/25	Tumblr	Picture of what appears to be her medications	(Rough Guesses: Zoloft or Aleeve-blue, Tylenol-oblong white, Claritin-small round white, Effexor?-Big Round)	Medications
15/12/27	Tumblr	Lists things she got for Christmas: mobility harness, martingale collar, dog toys, new dog vest, patches, shower chair, and more.		Hero Medical Devices
15/12/28	Tumblr	Says her parents are arguing again (have been for 2 hours) Her father grabbed her shoulder from behind without warning which seems to have triggered her into dissociation Is being comforted by Hero and he is doing DPT NJ is not doing well		Mental Health Hero
15/12/30	Tumblr	Receives a comment that says that the commenter is “sick of your mediocre posts in the service dogs tag” NJ retaliates very angrily saying that this person must not be a very good dog owner		Mental Health Hero
15/12/30	Tumblr	Here NJ is posting asking for recommendations of dog and dog training books she should read because she is running out. She then lists genres she is interested in. Says she is open to all training types.

2016

16/01/01	Hero’s FB	Passed CGC (Canine Good Citizen Test) Hero is “on [his] way to becoming a full fledged SD.”	(Despite wanting to take proclaimed SD to school a year earlier)	Hero
16/01/02	Tumblr	Talks of being dizzy when standing up every time Commenter tells her that is not normal and may be chronic low blood pressure NJ responds saying her mom told her it’s normal NJ states that she gets dizzy every time she stand no matter how slow she does it and also if it is hot or she walks for too long.		POTS
16/01/03	Tumblr	Motivational post to get through a tough day.
16/01/08	Tumblr	Someone yelled at her and Hero She is now shaking, on the verge of tears and dissociating		Mental Health
16/01/18	FB	Ranting about people commenting they wish they had a dog too and how it’s not for fun it’s for a disability Mentions passing out Mentions having “a million medical problems” and feeling guilty because it’s causing her family into financial issues Says it’s not an option but a necessity for her.		Hero Mental Health
16/01/10	Tumblr	Talks about being exhausted and having a lot of stuff going on in her head that she hasn’t been talking about Likes internet friends more than IRL friends		Mental Health
16/01/14		Talks about being in hospital after one of her head injuries (inferring she has had multiple head injuries) Talks about being on a no solids diet because she couldn’t keep any down and also because she didn’t like the hospital food She kept asking for chicken nuggets but they said she wasn’t allowed She writes about them “[bringing] in the feed bag…” inferring that maybe she had a nasal tube of some sort? A nurse smuggled her in chicken nuggets and she ate them in the bathroom.		Mental Health
16/01/16	FB	Fading in and out of dizzy spells because she didn’t get her medications Mentions going to Olive Garden to eat pasta Does not mention nausea	Unsure which meds or why, considering she isn’t diagnosed with POTS.	POTS GP
16/01/18	FB	Mentions that she can’t talk properly when she has migraines Says she wants to learn ASL because of this Claims it’s hard to walk during migraines but if she’s sitting it’s fine Claims Hero warns her of a migraine 3 mins before it starts	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3673612/ Article stating change in dog’s behavior before their owner has a Migraine. STATES USUAL CHANGE IN BEHAVIOR IS AROUND 2 HOURS BEFORE ONSET. Thus giving owners time to take medication.	Migraines Hero
16/01/18	FB	Picture of her with heating pad strapped around her neck She is using the heating pad because of her migraine Claims it keeps her head in place.		Migraines
16/01/22	Tumblr	“...finally got scheduled for a neuro appt I needed.”
16/01/27	Tumblr	Had a panic attack because a child grabbed Hero’s head and the mother didn’t correct the child.		Mental Health
16/01/30	Tumblr	Deputy called her She can’t keep anything in her stomach at all anymore Doesn’t know where her mother is but her mother wants to meet NJ on mutual territory		Mental Health
16/01/30	Tumblr	Talked to her mum. Says mum is guilt tripping her. Says her parents sent her sad messages asking her to come home. (she appears to think they are just trying to manipulate her) Does want to go home but isn’t sure whether to or not.		Mental Health
16/01/30	Tumblr	Has decided to stay with her friend Her mother keeps breaking down crying Doesn’t have any of her medications with her Says her parents are trying to get her home by emotionally manipulating her Mentions calling the police on her parents and how it may have been an overreaction		Mental Health
16/01/30	Tumblr	Talks about how she ran away with nothing but Hero Says she hopes her parents “figure out what they’ve done.” Says they are bad parents and she won’t come home until they’re in therapy and learning about having a child with PTSD/anxiety/depression/BPD		Mental Health
16/02/03	Tumblr	Claims her neuropathy is acting up (this is the first time we have heard of this neuropathy		Neuropathy
16/02/11	Tumblr	Claims a girl ran up screaming to her and Hero and when NJ said she couldn’t pet him she smacked NJ. Has a panic attack because of this		Mental Health
16/02/20	Tumblr	Claims random muscles twitching violently		?
16/02/26	Tumblr	Ranting because her mother think she doesn’t need her service dog and her therapist thinks he’s an ESA Says that he does mobility and psychiatric tasks She needs to find a psychiatrist to write her a letter of need Brought up a wheelchair over text with them (I’m assuming “them” means either her parents or her therapist and mother) Says she started to get a HM Claims she “pretty much NEED(s) a wheelchair at this point…” Says she is trying to save but it is hard as a 17 year old because all the jobs available to her don’t suit her needs. Claims that her disability is her parents fault (she says this because she claims to caused her PTSD, however, they would not be responsible for her alleged HM)	NJ claims that she had her major migraine in 2014/05-06 and that it left her with hemiparalysis She however, does not mention a wheelchair until and of 2015 to 2016 where her parents are still reluctant. This is not consistent with her story.	Migraine Wheelchair
16/02/26	Tumblr	Possible EMG Testing or Polygraph? It looks like she has TENS electrodes on her face?	https://www.dropbox.com/s/lp7qqxkmaak48bd/2016%2C%20Feb%2026.png?dl=0	???
16/03/03	Tumblr	Mentions being on Zoloft and Effexor (both of which are anti-depressants) Negative experiences with Effexor		Medications Mental health
16/03/05	Tumblr	Asks how to start up the wheelchair conversation with her parents	This does not make any sense because according to previous posts she has already talked to them about it AND was fundraising for one.	Wheelchair
16/03/06	Tumblr	Hero alerted, started whining at her and bumping her with her nose in the bathroom Claims when she got off the toilet she got s sudden rush of nausea and had to sit down against the wall		Hero
16/03/06	Tumblr	Reminder to go donate to her wheelchair on gofundme Says that she only has 5 (I’m assuming she means dollars?) so far Says she will give training advice to those who donate Lists her personal paypal on the post		Wheelchair
16/02/06	FB	Posts wheelchair fundraiser link Says her mother has decided she is faking and doesn’t need a wheelchair She disagrees and says she’s scared that she’s leaning on Hero so much that she is going to hurt him		Wheelchair Hero
16/03/08	Tumblr	Talks about substitute teacher asking her why she has a dog Teacher yells at her from across the classroom and when she gets up she collapses		Mental health POTS
16/03/10	Tumblr	She mentions she uses a cane Claims she needs a wheelchair and is “..in immense pain from a migraine...” People have been saying she doesn’t need Hero at school		Wheelchair
16/04/01	Tumblr	Her tumblr (due to april fools day) “Don’t expect me to be on here for today unless I’m on mobile. I was gonna start posting again today but I made the mistake of voting for the prank thing and now the blue background is causing me problems as the exact shade of blue they put makes my head and eyes and basically everything hurt and can also cause seizures for me.”		Seizures
16/04/03	Tumblr	Says she’s lost her original goal with Hero Says her psych won’t write her a letter for an owner trained dog and she can’t find a trainer Says he’s started to become more reactive to humans and dogs When he gets reactive there is no way to get him to listen She says she thinks she might have to retire him		Hero
16/04/04	Tumblr	“Your good days don’t mean you’re not disabled.” Complains about people calling people fakers for not using their mobility harnesses on any given day		Hero
16/04/04	Tumblr	She found a grant willing to help her with her chair (needs to be $750 and under) Getting a demo chair with her dimensions (TiLite Aero Z) Asking for help on how to teach Hero wheelchair skills Does not mention what she is doing with the money that was originally donated to her for the wheelchair		Wheelchair
16/04/08	Tumblr	NJ got her wheelchair today Picture of wheelchair		Wheelchair
16/04/09	Tumblr	Talking in the comments States that she got her wheelchair from a demo wheelchair dealer on eBay Says that even though it’s only been two days it’s changed her life She says that she can go a whole day without having a migraine that incapacitates her (insinuating that her migraines are caused by physical activity?)		Wheelchair
16/04/14	Tumblr	Commenter asks why she hasn’t been using her wheelchair this week NJ claims she hasn’t needed it and it’s going to be used “as needed” but she then says: “But actually, I’m going to be in it today I think.”		Wheelchair
16/04/16	Tumblr	She complains about the school not adhering to her “504” She said she is supposed to be excused from school the days that she is absent because it is usually due to doctor’s appointments She’s at saturday school.	Even with a 504 plan you still have to provide documentation of a doctor’s visit or a sick note when you’re absent from school.	???
16/04/16	Tumblr	Makes a post about how her psychiatric service dog is just as important as others’ mobility/alert dog She says medication doesn’t work for her mental illness and so she uses Hero Says Hero stops self-harm behaviours, interrupts panic attacks, is starting to learn how to stop/interrupt flashbacks		Mental Health Hero
16/05/03	Tumblr	Started the day with a migraine and now her whole body is in pain. 20 minutes ago he started going crazy and whining. Wouldn’t let her out the door Ended up on the kitchen floor and told Hero to get her meds. He got them. He helped her up to her bed Claims her temperature dropped below 80 but now temp is over 99. If the pain gets worse she says she will call the ER.	Note: her bed is upstairs Note: Hypothermia occurs when your body temperature drops below 95F. Her claim of 80F would make her a mutant superhero.	Migraine
16/05/16	Tumblr	Asks how to tell your parents you need to go to the ER when they don’t believe you		???
16/05/16	Tumblr	Talks about taking medications that she shouldn’t have taken together Warns people to keep their medication organised or else they could die		Medications
16/05/17	Tumblr	Said pain was worsening throughout the day and she woke up not being able to breath properly During school wanted the teachers to call the ER but she didn’t want to disrupt class Decided if she made it through the day she could go to the ER when she got home He mother didn’t believe her and says this is the reason why she has a wheelchair that doesn’t fit her and the reason she has taken too much pain medication in the past days Says that her mother values NJs grades more than her physical health because she is using the ER as a reward for finishing her schoolwork Says it’s her fault she has a service dog that’s “beginning to show signs of problems” and won’t hire a trainer Says her pain tolerance is so high that she can no longer tell when she is in pain and when she is not Says all her doctors say all her symptoms are caused by anxiety and migraines The neurologist she saw did nothing Says her wheelchair hurts her hands and tips over too much Complains of not having a diagnosis Says everyone she knows thinks she’s a liar	In her previous post about finally getting a wheelchair she says the wheelchair is her exact measurements, however in this post she says it doesn’t fit	Wheelchair Mental Health
16/05/18	Tumblr	Hero retirement announcement He was showing signs of soreness and they took him to the vet 2 months ago and was diagnosed with hip dysplasia Says she will retire him 2 years from now Says she is now getting a Shiloh Shepherd in the summer She will continue to work him until the vet says she should stop	NJ has made claims on IG stories when this was brought up that the vet was actually a fraud and just ripping their customers off and so he actually doesn’t have hip dysplasia	Hero
16/05/19	Tumblr	Post about telling her peers to fuck off because they say that she is faking and the other student at her school in a wheelchair who is a paraplegic says she is appropriating her disability She is afraid to use her medical tools for fear of being bullied Grades have dropped because she is afraid to attend classes School administration told her to get over it		Mental Health Wheelchair
16/05/20	Tumblr	Says she gets this thing where she feels like her head is being pushed down on and she has to open her mouth to relieve some of it		Mental Health Migraine???
16/05/22	FB	Looking for books on training service dogs, specifically puppies because she is planning on getting a new prospect puppy soon		Hero
16/05/30	FB	She got a flash migraine last thursday and since then has been getting weird numbness in her arms and legs	“Flash Migraine” is not a medical term, nor are migraines usually a rapid onset issue.	Migraines
16/05/30	FB	Ranting about people asking her why she has Hero and what her disability is Talks about how handlers always think any dog who makes a mistake is fake She has over 200 hours of training Hero Mentions spending the last 2 years being bounced around by different doctors Complains about people thinking Hero is fake	If you watch some of NJs most recent videos you can see that she is often calling other supposed service dogs “fake”.	Hero
16/05/31	Tumblr	Repost of the previous FB post she made about service dog fakes		Hero
16/05/31	IG	Hero completed “Petsmart Pet Training Program” Intermediate Education		Hero
16/06/06	Hero’s FB	Hero is 2 years old today and can now officially start mobility work	She has already mentioned using Hero for mobility before this date several times	Hero
16/06/06	Hero’s FB	Hero had a party at NJ’s high school NJ graduates in 2 weeks NJ claims Hero alerted during the party when NJs heart rate went too high		Hero
16/06/13	FB	Had a bad reaction to lactose in a dessert Claims stomach pain and hives Took some benadryl		Allergies
16/06/16	Tumblr	She’s not going on vacation with her family because her parents said Hero couldn’t go She claims at dinner that night her aunt and uncle started arguing and it triggered her and she ran out into the parking lot Hero jumped up at her and made her sit down and when she started scratching her arms Hero interrupted the behaviour “preventing severe injury” He then did DPT and nudged her while she screamed Claims Hero saved her from a hospital admission Says she is a “victim” and “disabled” Says she has hemiplegia Says she has a TBI	Again, the TBI was never confirmed	Hero TBI Migraines
16/06/18	Tumblr	Small rant about being disabled and how she can’t go to parties because it will trigger her and leave her in bed for 3 days Picture of meds, one pictured reads: Fioricet	Medicines distinguishable: -Fioricet -Loratidine (Claritin) -Magnesium Supplement POSSIBLE -Topiramate 25mg(Topamax) -Acetaminophen 500mg -Calcium Carbonate -Sublingual Zofran Tablets	Mental Illness Migraines
16/06/25	Tumblr	Lists symptoms in this post “Meltdowns similar to an Aspergers case” Migraines result in: left leg completely numb/tingly, with limited mobility sometimes several days,inability to coordinate my left leg, shooting pain down spine, “and the only thing that helps is a sedative.” “Vertigo on and after elevators” “Dizziness when standing/walking but fine when not using my legs (wheelchair)” “Extreme fatigue after about 15 minutes of walking” Seeing flashing lights/auditory hallucinations “Tremors ( stopped with a seizure medication)” mental illnesses (unconfirmed diagnoses) Has been trying to find the reason for 5 years.		Mental Health Migraine
16/06/25	Tumblr	Last few months not good Mentions she has complex migraine: hemiplegic type “...we have have suspicions of a TBI and have been asking to see a neuro for a while after the last time we saw one he gave me an anxiety med… no scans or referrals.” Says that it’s discrimination towards mental illness. “Anxiety does not cause migraines that shoot pain down your spine and into your left side until you can’t feel your left leg.” Has been told is hormones from period and anxiety	Here she says suspicion of TBI despite having used it as a reason in her Wheelchair fundraiser. Note: Migraines also don’t usually cause pain that shoots down your spine?	Mental Health Migraine
16/07/02	FB	Claims her heart rated skyrocketed while she was sitting and Hero started whining and jumped into her lap She thought it was dehydration and for some reason all the water she drinks tastes like pool water		POTS
16/07/27	IG	Hero alerted during appt. Heading home to rest		Hero
16/07/28	FB	Talks about her horrible pain and how she misses sports Pain that made her cry and take pain meds She apparently had an MRI and “useless” PT Complains of sharp stabbing in left shoulder and now in her right Says she was diagnosed in 2012 (with what she does not specify) Says she is still searching for a diagnosis because everyone just says it’s anxiety Says the pain leaves her curled up in bed wanting to scream and needing to knock herself out with medication Says she will be 18 soon and so get more control over her appointments and get a diagnosis and proper treatment Infers that her dad tells her to “get out of his house”	I believe it was some kind of shoulder injury she had to have surgery for.	Pain Mental Health
16/07/29	IG	Says it’s hard when her meds drain the sugar from her body Her mom doesn’t understand that she needs help Trying to keep to episodes under control to minimize the damage to her brain during them Needs better equipment	???	BSL
16/07/29	IG	Trying to get sugar into her body. Says the weight loss is starting to look obvious		GP BSL
16/07/29	IG	“They” want to check her head again with CT
16/07/29	IG	Dad wanted her and Hero to go outside to see if it would help get some food into her Was able to eat 4 graham crackers		GP
16/07/30	IG	Hero is making sure NJ doesn’t get up until she rests Can’t wait to get her new meds		Hero
16/07/30	Tumblr	Complaining about how her mom doesn’t believe she is in pain so she isn’t getting adequate healthcare Says her doctors think it’s anxiety and her mother thinks she is a hypochondriac Says she keeps getting different symptoms but the doctors won’t do tests Her mother doesn’t “...legitimize my identity as a disabled person who needs help.” Has been losing weight but is trying to gain weight which is causing constant abdominal pain Has been told she needs more medication and a hospital stay for testing Says wheelchair doesn’t fit		Wheelchair GP Mental Health
16/07/31	IG	Isn’t feeling good tonight and ended up throwing up after going out with friends Feels “disgusting” and thirsty and when she drinks water she throws it up Can barely walk or stand		GP
16/07/31	IG	Having a not moving day	In a post on this same day she says she went out with friends
16/07/31	IG	Not feeling good after going out		GP
16/07/31	IG	Been throwing up everything but it means she gets to be “comfy”	???	GP
16/08/03	Tumblr	Pic of NJ in the ER with Hero on her hospital gurney		ER
16/08/03	IG	Same photo as last tumblr post Says she is getting IV fluids and that her blood sugar was 55		POTS BSL
16/08/03	IG	Discharged and now has 4 new medications Says she has an inflamed stomach		GP
16/08/03	FB	Same pic as tumblr and IG Says they gave her fluids and Zofran/Lidocane so she could keep down some orange juice BSL (Blood Sugar) was 55 Can barely walk		GP
16/08/04	Hero’s FB	Same pic as last three posts (on IG, FB and tumblr) Says she was throwing up everything she ate or drank Says the doctor said she was dehydrated Says Hero did DPT to press on certain point in her legs to release serotonin in her brain Says NJ has to take a pill every time she eats until she stops throwing up	DPT in a certain spot to release Serotonin?	GP Hero
16/08/04	FB	Claims Hero naturally alerts to her blood sugar dropping Says he wakes her up from naps if she needs to hear something Says she hasn’t been able to eat much	Diabetic alert dogs are rare and undergo RIGOROUS training to enhance their natural alerting ability.	GP
16/08/04	IG	Says everything she eats tastes like dirt or mould		GP?
16/08/08	FB	Says the doctor saw her and wants to get her tested for POTS Hasn’t been able to take meds for the past week so has had tremors and migraines	“Tremors” meaning possible withdrawal side effects?	POTS
16/08/09	IG	Doing takedown training while she’s “able to stand”		Hero
16/08/10	IG	Says she didn’t make herself sick and it’s not all in her head Her stomach isn’t bugging her anymore and eating lots of broth		GP
16/08/23	IG	First day of college Hero will be getting a new mobility harness		Hero
16/08/26	Tumblr	Says she’s getting a lot of new followers lately Possibly the first time using the phrase “Paw Squad” Pic of Hero in SD gear		Hero
16/08/26	Tumblr	Making an intro of her and Hero Says here that Hero is a Belgian Malinois		Hero
16/08/27	IG	Went to the NEX (Naval Exchange-basically a superstore on a Naval Base) Has bad stomach pain and was throwing up Says it’s happening episodically		GP
16/08/27	FB	Sympathising with the people who have had to wash their dogs recently Says she feels lucky that she didn’t wash Hero even though she “probably should have” Says 1 year ago Hero was afraid of everything Says he is now afraid of practically nothing She say she was lucky but that she is helped by her experience and different training methods		Hero
16/08/29	Tumblr	Says she drank an entire grande coffee and is annoyed because she forgot to bring her Zofran with her		GP
16/08/29	FB	NJ was training Hero in a store and he did a perfect alert on the way to getting (lactose free) ice-cream Then he apparently alerted that she got the wrong ice cream and she took it back	Hero was a shelter dog, never trained for allergen detection as it takes years to solidify.	Hero
16/08/29	IG	Training in walmart. First time blocking with the chair		Hero
16/09/01	FB	She says Hero alerts to blood sugar, cortisol levels, and migraines	Again, these are alerts that must be trained intensively.	Hero
16/09/03	IG	NJ’s birthday today She’s excited because now that she’s 18 she can apply for disability Says she now can take control of her appointments and get better medications and a proper diagnosis		Dr Shopping
16/09/04	FB	She posted in a FB group: “He did an alert to a food allergy that the lady at the counter had said was allergen friendly, and so I had to take it to the counter and get my money back for the item. He LITERALLY saved my life yesterday.”	Has NEVER claimed anaphylaxis or severe food allergy.	Allergies
16/09/04	FB	They went to the zoo yesterday and Hero did fine except he was scared of the turtles He alerted to an allergen in her food Says because of the alert Hero literally saved her life	In a previous post she said Hero only alerts to BSL, cortisol (is that even a thing?) and migraines	Allergies
16/09/07	IG	Says she has “been fighting for a POTS diagnosis as my BP is crazy high/low sometimes…but since my parents don’t believe me, the Doctors don’t believe me, is there some kinda test thing that can prove it”	Note: POTS isn’t about Blood Pressure. Orthostatic Intolerance deals with BP, POTS deals with a tachycardic response to position change, etc.	POTS
16/09/17	Tumblr	Her dad stopped seeing his therapist (which she says was a requirement for her to stay in the family home) Her father came home drunk and she said he promised he’d quit drinking		Mental Health
16/09/19	IG	She is in too much pain to drive and is scared to use her wheelchair because she will be judged She says she can’t walk “without a price”.		Wheelchair Pain
16/09/19	IG	She is crying because she had to walk all the way from the parking structure to class because she was too scared to use her wheelchair Says her whole lower body from her neck down is on fire		Wheelchair Pain
16/09/19	IG	In so much pain and wants god to kill her She can’t drive like this Scared to use wheelchair for fear of judgement		Wheelchair Pain
16/09/27	IG	Says she didn’t realise how bad it was without her zofran Says her mom wants er to ask about getting a port placed Says she can’t always keep zofran down and won’t be able to get any more until the 18th	FIRST PORT MENTION -No GP Diagnosis -No POTS Diagnosis -Sublingual Zofran dissolves and, shouldn’t have to be “kept down”	GP Port
16/09/30	IG	Had to leave a family event early because of her illness and feels guilty that she always ruins it		Mental Health
16/10/02	Tumblr	Looking into getting a Shiloh Shepherd as her new prospect and asking for tips	Shepherds are notoriously hard(work) to train, especially for unexperienced trainers.	Hero
16/10/11	FB	Lists mental illnesses: SPD, HM, ADHD, PTSD, severe depression and anxiety		Mental Health
16/10/17	Tumblr	Says Hero alerted to a migraine		Hero Migraine
16/10/17	IG	Whole body hurts because she did the swim part of a triathlon
16/10/17	IG	Whole body is hurting and today is going to be a dizzy day with lots of brain fog.
16/10/18	FB + IG	States her doctor ruled out POTS and diagnosed her with Tachycardia Test conducted: TTT, EKG, bloodwork Is doing a month long heart monitor	NO POTS NJ’s Tilt Table Confirmed NO POTS (Keep this in mind for later)	POTS
16/10/19	IG	Claims she got a call from her doctor saying her blood sugar was low so she now has to monitor BSL on top of her heart monitor Is also getting a CT scan		POTS
16/10/19	FB	Talks about the doctor calling her because of low BS She says this doesn’t make sense because before the test she had a sandwich and an iced tea		BSL
16/10/21	FB	Says her BSL was 60 so she ate and it was 70 so she ate again and it was 95, then an hour later it was 62		BSL GP
16/10/24	IG	At a doctor’s appointment to discuss possible diabetic blood sugar behaviour Still having 24/7 migraine		BSL Migraines
16/10/28	FB	Says she has low blood sugar so she eats tonnes of fruit but it’s just low again in an hour	Fruit and Fruit juice are empty sugars and are only good to spike BS. To maintain BS you need to balance a carb and a protein. Eating fruit does nothing to stabilize in the long run.	BSL GP
16/10/30	IG	Had to go to the vet because Hero had a foot infection and needed antibiotics but then they said he might have cancer		Hero
16/11/01	IG	Got approved for a heart monitor Hero got cleared by the vet to work as long as her wears his shoes and doesn’t do mobility work		POTS Hero
16/11/02	IG	Pic of NJ wearing 3 lead heart monitor “I’m so lucky to have found a good DR that actually cares about me…It’s taken 5 years to get anyone to believe my complaints of chest pain/dizziness/etc.	Remember she suffers from anxiety, which can cause tachycardia, chest pain, dizziness, etc. She also claimed to be hospitalized by anxiety in the past.	POTS
16/11/02	Tumblr	Got her heart monitor today for a month and has already had to use the event recorder twice Hero also alerted to low BSL in front of the cardiologist		POTS Hero
16/11/05	FB	Named her heart monitor Bella		POTS
16/11/05	Tumblr	Heart monitor is driving her nuts because she keeps forgetting it’s there and the wires pull off		POTS
16/11/05	Tumblr	A big “fuck you” rant about people who disrespect her for having a service dog and cause her panic attacks Talks about PTSD related to fear of human touch and people		Mental Health
16/11/06	Tumblr	“Someone please give me a reason to eat.”		ED
16/11/06	Tumblr	Says her left arm is bothering her and that she had surgery on it a few years ago but the pain is even worse now Says she can’t control that arm properly and that she drops stuff all the time		??? Neuro Symptoms
16/11/14	FB	Didn’t sleep last night because she had trouble monitoring her BSLs because they wouldn’t go up She ate food to bring them up but ended up throwing up Is going to the gym later	Why would she go to the gym on low sleep with unstable BS and no food.	BSL GP
16/11/14	IG	Woke up at 9:30 sweating and shivering and Hero alerted Blood sugar was 36 Tried to eat but kept throwing up so took some zofran Was able to eat enough to get up to 80	NOTE: A Blood Sugar in a non-diabetic below 60 or 50 is considered dangerously low and medical attention should be sought out.	BSL GP
16/11/14	FB	Woke up in the middle of the night to blood sugar of 37	In the IG post she said 36	BSL
16/12/01	IG	Heading to the ER because of a migraine and her legs hurt Picture of Hero		Migraine
16/12/01	IG	A 4 day migraine so going to the ER Says this is probably the worst she’s had She is wearing sunglasses		Migraine
16/12/02	IG	In the ER, not getting admitted Will see the neuro on monday And echo and MRI on friday		Migraine
16/12/02	Tumblr	Went into the ER for a “migraine cocktail and fluids.” Was dehydrated but had been drinking so doesn’t know why BP is back to normal now Now she’s going to get food		Migraine ER
16/12/08	IG	Picked up a new migraine med Is at 2nd doctor’s appointment of the day Says that her neurologist is trying to cure her HM	HM cannot be cured.	Migraines
16/12/10	IG	Started gabapentin Love that it’s doing its job, hates side effects
16/12/17	FB	She says she is not diagnosed with EDS but it has been suggested to her by several doctors Mostly left knee pain, sometimes right because knees keep popping out Been wearing a knee brace to bed but doesn’t seem to be working and making her insomnia worse		EDS Hypermobility
16/12/29	IG	Glasses broke last week She complains about her mom making her drive even though she couldn’t see properly She had a meltdown because she was meant to follow her mother’s care but spaced because she was tired and lost her She self harmed but Hero interrupted it She called her mom and started screaming at her and Hero interrupted it Hero then brought her her water bottle and did DPT Tells people to call others out when they call you lazy when you say you can’t do something		Mental Health Hero
16/12/30	FB	Hero alerted to increased HR while NJ was driving and so she pulled over and started doing breathing exercises Says Hero literally saved her life Then her mom called asking why she was taking so long and NJ had a meltdown but Hero interrupted it		Hero POTS

2017

17/01/06	Tumblr	Passed out at a doctor’s appointment		POTS
17/01/11	IG	Woke up sick, hurts everywhere and head feels like bricks but no fever		???
17/01/14	Tumblr	Talks about when she says eh can’t do something it’s not because she is lazy Says she doesn’t always seem like she can’t walk long distances or stand up for long periods but those things use large amounts of spoons Parents wonder why she is fine around friends but tired at home. She says this is because her friends to things for her to help her not run out of energy like not judging her for using her wheelchair		POTS Fatigue Wheelchair
17/01/15	Tumblr	Feeling sick, needs a break, is having trouble managing all her medical things
17/01/18	IG	Woke up in the night needing to throw up and felt like she couldn’t breath Super dizzy and pale Everything she threw up and it looked undigested		GP
17/01/22	IG	Tired. Heart rate has been “flaring up” BP doesn’t seem to be dropping Been eating a high salt diet that seems to be helping Still hoping port conversation goes well	Again, no POTS diagnosis or regular IV infusions.	POTS Port
17/01/25	Tumblr	Dizzy, school counsellor wants her to be part time student, Hero is being a butt Talked to mom about getting a port and she seemed supportive		POTS Port
17/01/25	IG	Says she’s trying to be less judgemental Mom and her talked about getting a port Port for IVs so she doesn’t have to go to the ER every time she has a migraine	AGAIN, no POTS diagnosis or regular IV infusions. Wants it for migraine management.	Port Migraine
17/01/27	IG	Picture of unexplained redness		Allergies?
17/01/28	IG	Digestive issues are suspected to be relating to migraines She had a steak at dinner and then 20 mins in had to rush to the bathroom to throw up Been in immense pain since then (prev. night) Says she’s allergic to whey protein which comes from cows which makes her severely sick when she eats red meat	Please Note: Whey is a byproduct of CHEESE PRODUCTION So she wouldn’t react when eating red meat.	Allergies Migraines
17/01/30	Tumblr	Going to ask PCP for disabled placard but is nervous Been trying to get it for a year but PCP keeps refusing Mentions she doesn’t have a set diagnosis yet but neuro has diagnosed complex migraine Says she’s going to argue and stand up for herself Went to school and ended up crying because there was no parking close enough for her Claims last time she tried walking from the parking structure she threw up on the way and had to leave class early because of being sick, exhausted and in pain Wants to talk to neuro and cardio about getting a port placed to help with nausea and staying out of the ER Claims every time she gets a migraine she has to go to the ER anyway and that the migraine leaves her unable to do things for 2 weeks Won’t take no for an answer anymore Sick of being told it’s psychosomatic		Migraines Port
17/01/30	IG	Is resting because is exhausted but can use wheelchair Talks about how she still doesn’t have a placard but can’t walk all the way from the parking structure because of previously said reasons DSPS gave her a temporary placard to try and convince her PCP she needs one		Wheelchair
17/02/01	IG	Seatbelting Hero in the front seat PCP for a disabled parking placard, been trying to get it for a year	(Dogs go in the back for safety ALWAYS)	Wheelchair
17/02/02	IG	Cardiologist diagnosed her with POTS Made the diagnosis by ruling everything else out, her originally thought it was not POTS	Receives POTS diagnosis from NEW Cardio despite all previous testing (INCLUDING A TILT TABLE) disproving a POTS diagnosis.	POTS
17/02/02	IG	Says Hero is 75lbs, 27” 4th appointment #undiagnosed		Hero
17/02/03	FB	Says that POTS causes her blood vessels not to tighten up enough to stabilise blood flow to upper body when sitting or standing up resulting in her legs swelling, going tingly and HR 195 when she stands Treatment plan is to be on high salt, high water diet but because of HM she is nauseous 24/7 so throws everything up Zofran and Zantac to help her eat and hopefully gain weight So far still throwing up but manage to keep small liquid meal and light food down Happy for diagnosis so can start treating the symptoms Got a parking placard yesterday (temporary for now)	HM are not 24/7. They, like regular migraines, come and go. If her HR went to 195 upon standing, she should have been diagnosed earlier for meeting the criteria.	POTS GP
17/02/03	IG	Hates sitting away from the other students because the tables aren’t next to the desk
17/02/04	IG	Says she’s pale today and that Hero is in her lap to put pressure on her legs to stimulate blood flow		POTS
17/02/05	Tumblr	Woke with stomach pain but took meds and felt better Ate a muffin “something light on my stomach” 15 mins later was throwing up Lunch time she is starving. Got mexican (brown rice burrito with lettuce and herbs). Says she ate a lot because she was starving 20mins later threw up nausea and cramping Throwing up until nothing left and then dry heaving Says her PCP thinks she’s overreacting		GP
17/02/07	IG	Got a new shower chair to help stop her from getting dizzy/passing out/getting too tired		POTS
17/02/13	Tumblr	Brags about getting 6 people in trouble for parking in disabled parking Claims she can’t even walk 30ft without taking a few breaks		Wheelchair
17/02/19	IG	Asked dad to park closer to the restaurant and he was annoyed and told her to just suck it up. He doesn’t believe she has any real mobility issues		Wheelchair
17/02/20	IG	At the gym but can’t exercise at home due to POTS Hopes the workout lets her body take in a smoothie	How will a work out help GP?	POTS GP
17/02/21	Tumblr	Claims she did not bring POTS up with her doctor but rather her cardiologist diagnosed her without her saying anything	(Which doesn’t make sense because she had all testing done and it didn’t show POTS, so why would the doc bring it up?)	POTS
17/02/22	IG	Hospital selfie IV had no blood return and she started screaming when they tried the other arm		POTS
17/02/22	IG	Throwing up everything again as well as liquid foods Was advised to go to ER by nurse line		GP
17/02/23	IG	Uses the same pic as tumblr ED post Bloated after eating 2 crackers side by side pics Comment says: “I have very similar problems!!! gastroparesis??”		GP ED
17/02/25	Tumblr	Been throwing up nearly everything she eats and has pain with every mouthful She’s been to the ER and they just give her the same medications every time and send her home Her teeth hurt and her body is sore and shaky Says she’s spending most of her time in the bathroom Mentions her eating disorder Puts a side by side of bloated (after eat 2 crackers) vs not bloated.	Now she claims to have or previously have an ED.	GP ED
17/02/25	Tumblr	Constantly taking phenergan Wants to ask for an NJ tube so that she can feel something again It’s aggravating her POTS and depression		GP
17/02/26	Tumblr	Someone commented on her post that the pain might be an illness as a result of the ED such as colitis		ED
17/02/26	IG	PCP on monday to hopefully get referred to GI and hopefully get an NJ placed until they figure out GI problems		GP
17/02/27	FB	1 week and already need to go get another infusion		POTS
17/02/27	IG	PCP appt. Hoping to get referred to GI		GP
17/02/27	FB	Complains of taking too many pills Says she hates her dysautonomia and says autoimmune disorders are the worst	Note: She doesn’t have an Autoimmune Disorder. I believe she thinks POTS is autoimmune.	POTS
17/02/28	IG	Pic of evening meds
17/03/01	FB	Autoimmune immune disease poster		POTS
17/03/10	FB	Wants a solution to GI issues Had a dream about getting an NJ, thought it was funny because her name is NJ Hopes she doesn’t need one “lol”		GP
17/03/12	IG	Talks about foster puppy Is very sad to see him go and feels empty Upcoming cardio and GI appointments
17/03/12	Hero’s FB	NJ claims low heat tolerance Mentions POTS Low on spoons Took a picture for attention		Hero POTS
17/03/13	IG	In the hospital Claims not getting nutrition There for fluids		GP POTS
17/03/15	IG	Talks about Hero doing blocking GI appointment Has GI endoscopy in april		GP Hero
17/03/21	FB	Asking about a face mask that can filter smoke because of horrible allergic reactions Claims hives and rashes and partial anaphylaxis (throat swelling)		Allergies
17/03/22	IG	Been throwing up for 15mins now In between throwing up Hero does DPT		GP
17/03/27	FB	Claims grand mal seizure in the mall with a friend Never had it happen before DIDN’T GO TO ER OR CALL 911 Hero did what he was supposed to Think it’s a POTS meds side effect and if going to stop taking the meds Needs wheelchair and shower chair sometimes and needs to listen her body and let her dog hate her	NOTE: This had never happened before so how did Hero know what to do? SECOND NOTE: Grand Mal is ER always, first time? 911.	Seizure POTS
17/03/30	FB	Had to take a bunch of benadryl because she started having a reaction	Note: If “reaction” is supposed to be anaphylaxis… Benadryl won’t do anything.	Allergies
17/04/03	IG	Blood test show weak immune system so she got a vogmask Is having severe allergic reactions to cigarette and weed smoke She loves her new mask	Vogmasks do not filter germs.	Allergies
17/04/04	FB	Calls inhaler a “brachial dilator” Is having reactions so has to use inhaler Lost 5lbs in the last week and stomach is in constant pain 20th is endoscopy		GP Allergies
17/04/08	IG	Harassed at work for having Hero Very stressed and no spoons		Hero
17/04/09	IG	Working 12:30-17:30 Dad yelled at her yesterday and that she needs to lighten up about people petting Hero, no “my dog my rules” Hoping she gets her accomodations today
17/04/11	IG	Pic of BP monitor reading 87/73 HR141 Caption: Yikes
17/04/13	IG	Can’t sit up without getting super dizzy and borderline syncope Super shaky and cant drive, having her parents pick her up
17/04/21	FB	Endoscopy yesterday and freaking out Doesn’t like mental state change so scared of sedation When they put the IV she started to panic and scream Hero then licked and did DPT Says that DPT pushes on pressure points releasing melatonin and serotonin IV after 3 times and says that is because of her bad veins and circulation	The claims of DPT releasing said chemicals is still being researched.	Mental Health Hero
17/04/21	FB	Found nothing on the endoscopy and said her upper GI is normal Zofran and promethazine are her best friends at the moment Happy that nothing is physically wrong but don’t know why it’s happening Been going on for around 2 years and is getting worse Hates it all		GP
17/04/24	IG	Claims allergic reaction a few nights ago Irritation in esophagus from vomiting NOTE: Looks like she’s just scratched at her neck		Allergies
17/04/26	IG	Upset because being harrassed on YT Triggering, being told she is a liar and Hero is not a service dog		Called out
17/05/01	FB	Has had about 4 cough attacks Hard to breath Went outside and it go worse and now she has a fever Wish her doctor could give her one thing to make her healthy Blood test normal and only showed slight immune weakness		Allergies?
17/05/14	IG	Did makeup Lost so much weight her dress is “hanging off” her Says is sick and slowing starving to death		GP
17/05/15	FB	Post to FB group Diagnosed with POTS Jan ‘17 but struggling since 10 Claims suspected EDS Undiagnosed GI problems PTSD, anxiety, SPD, depression		POTS, GP, EDS, Mental Health
17/05/23	Tumblr	Dear fake SD handlers Disability is not a game Complains about people thinking she’s rude by having her own dog and not letting others have their dogs Chronic illness pity party Sometimes can’t get out of bed, crying from pain “Because my blood is not like yours for I have much less of it and it doesn’t know how to stay up in my head and arms.” Claims there is more to a SD than having tasks or being with you Claims Hero’s first public access he did not sniff anyone No one knows the laws or enforces them properly Claims has been hospitalised because of syncope Claims migraine so bad it damages her brain Claims migraine so bad it makes her whole left side do numb including her lungs Claims scar tissue so thick over her veins that she screams when being stuck Claims hair loss from malnutrition Claims has bashed head against the wall due to SPD Hero keeps her out of the hospital and lets her leave her house 500+ hours of training in Hero and claims he loves his job Forced to take her dog to stay alive, not a choice “Trained to standard for his type of dog” Hero has been attacked	Just...there’s a lot to unpack here. -Head bashing with SPD: usually an autistic self destructive thing, not solo SPD. -Syncope: claims migraines and anxiety caused her collapses before, not syncope. -Migraines aren’t known to numb the lungs.	Hero
17/06/04	IG	Picture of a bruise on arm Nurse hit her nerve and caused a hematoma, couldn’t get blood return Sick of sticking, wants a port for infusions	(hematoma= bruise in medical speak)	Port
17/06/11	IG	Threw up earlier today and has reflux Claims trying to drink but it’s just going straight through her Hero has lure coursing		Port GP
17/06/16	IG	IV pic in ER Heat has made her sick and is feeling like she needs a port Claims nurse thinks she needs a feeding tube	6th Time for port	GP Feeding Tube Port
17/06/16	IG	EEG this morning to hopefully get her license back Says she had an allergy test and has some new ones Nebuliser treatment brought her lung function up 19% Wants nebuliser now		Allergies Seizures
17/06/29	FB	Allergist results: whey proteins, asthma, cats, pollen, dust, almonds Official diagnosis and now 2 new meds, nebuliser, pro air New POTS meds (midodrine) to help to not go for infusions		Allergies POTS
17/07/09	IG	Says dizzy but BP is normal because of meclizine Says people are visiting her at work with their own SDs	Note: Meclizine is an antinausea med, not Blood Pressure. Meclizine is also available OTC.	POTS
17/07/10	IG	On a 24hr heart monitor Hero is having problems staring and she says it might be time for some more training classes		Hero POTS
17/07/10	IG	Does not like ESAs in public		Hero
17/07/10	IG	Talks about her 24hr heart monitor for her POTS to see if it’s getting worse Told no to port but to keep bringing it up if the meds don’t work Wants a port for IV zofran because it’s the only thing that works Wants to self administer IV zofran Is now on higher dose of propanolol and fludrocortisone	7th time.	POTS Port GP
17/07/10	IG	Selfie at the hospital Is going to bring up port for IV zofran and migraine meds	This is the 8th time she’s brought up a port, despite being told no.	Port Migraines GP
17/07/11	IG	News meds are controlling her tachy Threw up badly previous night after MMJ wore off Had extreme nausea and headache Struggling with keeping up with Hero’s training		POTS MMJ GP Hero
17/07/13	IG	Pic of her feet (poor circulation) Says it’s from about a min standing Says she needs a port for quality of life	9th time.	POTS
17/07/18	IG	Says BP of 85/40 is normal for her		POTS
17/07/20	IG	Took public transport today and had 2 panic attacks Been at Comic con and her SPD is acting up from all the stimulation	NOTE: yet she’s on her phone?	Mental Health SPD
17/07/29	IG	Says her headache is slowing starting to become a migraine Sitting in bright room looking into phone...		Migraines
17/07/30	FB	Post in FB group Claims she uses they/them pronouns Doring research on ports to figure out risks vs benefits “...several disabling chronic illnesses”: POTS, HM, GI issues, PTSD, Possible EDS, Allergies, Asthma, SPD, Chronic fatigue Says she brought up the port with her cardio and he said maybe in the future and for her to research Claims she has been getting regular infusions for last few months Wants the port also for zofran Wants a port because she wants to be able to swim	10th time. Wants to be able to swim-yet claims to be extremely disabled at this point and isn’t doing much in the way of PT or physical activity.	Port EDS
17/08/01	IG	Meltdown a few days ago caused concussion Neuro called to say she might have CTE ½ vegan frappuccino and feels super full. Is annoyed at this.	Meltdown is usually referring to either a toddler or someone with autism.	GP
17/08/02	FB	Post to group POTS is at the point of thinking about port Researching pros and cons of ports Also for Zofran Dr said if she does the research she gets a port She’s been having regular infusions for about 6-8 months	11th.	Port POTS
17/08/02	IG	Feeling better because a nurse gave her IV zofran with her 2L so now is not nauseous Now at chilli’s with mom		PORT POTS GP
17/08/02	FB	45mins at night sleep, not sleeping well Numb skin and painful muscles in knees and shoulders POTS giving issues Wants to hike with hero and have fun with friends Wants to walk with hero A port would allow her to do all of those things Mentions having to go in for infusions when too sick	NOTE: not booked at an infusion center 12th time.	POTS Port
17/08/03	IG	Pic of her in ER She’s going to work now The nurse snuck her IV zofran and was able to eat entire meal last night Says this justifies her port and oral tabs don’t work	If a nurse “snuck” her IV Zofran, she needs to be fired. 13th time.	PORT GP
17/08/04	FB	Post to FB group Claims: POTS, SPD, suspected EDS, undiagnosed GI problem, dysthymia, HM, Asthma, Allergies, Chronic fatigue, PTSD, anxiety		EDS
17/08/05	FB	5 pics of her and Hero in ER Pics of what POTS really looks like Home now, nurses were super awesome though. They joke with her.		POTS
17/08/07	IG	“Dr determined that the 4th hr was emissary so I ain’t leaving yet.”		GP
17/08/07	IG	GES and hopes they find something so they will approve the port so she can have IV zofran and fluids	14th time.	GP Port
17/08/10	IG	Asks people for dr recommendations for dr who does hydration therapy Claims military hospital doesn’t place ports in anyone but cancer patients	15th time. This is false, Tricare and military medicine would allow a port being placed in a non-cancer patient. (To our knowledge)	Port
17/08/13	IG	Has migraine which is causing left side weakness and stutter Going to work anyway Hopes she doesn’t get in trouble at work for it Hero was alerting all night long and got her meds		Migraine Hero
17/08/14	IG	BP monitor read 99/66, HR 79 Says she’s really sick right now so no livestream		POTS
17/08/14	IG	Couldn’t get to ER, trying to take oral migraine cocktail Hero is on top of her. NJ says this isn’t a task		Migraine Hero
17/08/15	IG	At work Claims brain fog lost her wallet Says lost wallet = no ER trip Using oral meds for things BP this morning was 89/50 But still putting up a video today. No livestream.		POTS
17/08/15	Hero’s FB	Timeline of Hero’s journey Hero was dumped because he was too hyper Trained for 2 ½ years before he was a full time service dog	(Despite her doing PA and trying to bring him to school as a Full Time SD/SDIT right after adopting him)	Hero
17/08/18	IG	GI dr called and diagnosed her with GP from GES At disney today in wheelchair	Note: A doctor wouldn’t usually deliver a diagnosis, especially one like this over the phone.	GP
17/08/24	IG	At woke today “can’t keep anything thicker than coffee down” Wants a new harness because doesn’t want mobility harness when in wheelchair	Note: Coffee is notoriously bad for people with GP.	GP Hero
17/08/24	IG	Started fall semester and diagnosed with GP, stressed and cancelled some dr appointments. Had to get military ID replaced		GP
17/08/26	IG	Dry retching and vomiting in bathroom atm Need to pick a breed as Hero’s successor that needs to be at least 70lbs and 27” or above (and fluffy)		GP Hero
17/08/26	IG	BP reading 93/55 HR82 Says Florinef isn’t working. She’s already taking 4 a day	Note: Usual max dose is about 0.4mg because affect plateaus after that.	POTS
17/08/28	IG	Did a training video for Hero Uses wheelchair for POTS because it’s hot Claims 2 syncopes in the space of 2hrs Hit her head both times Wheelchair makes it safer HM caused permanent weakness and it varies day to day on temp and how long they’re out.	NOTE: Claimed wheelchair was for migraine pain and weakness in previous talks about wheelchair.	Wheelchair POTS Migraines
17/08/28	IG	At DMV to get license back POTS is acting up horribly today (2 syncopes) Haven’t had fluids in over a month so probably headed to ER in next couple of days		POTS
17/08/30	IG	Posts old pic of hero Says in pic she “just started having severe damage from my migraines” Became harness shy for a while He started to like working again Boring stuff about what she thinks about SD community	“Just started having damage”	Hero
17/09/01	Tumblr	Diagnosed GP 2 weeks ago Lost wallet so can’t see dr without ID so can’t go to ER or get fluids Struggled with eating and losing weight and feels bad and POTS is awful without fluids Says therapist is being brainwashed by her mother saying the her illnesses are all caused by her anxiety		GP POTS
17/09/02	FB	Says coffee helps her BP but is annoyed that it makes her tachycardia worse	Note: Coffee is horrible for GP	POTS
17/09/02	IG	Pic of Fitbit HR107 Says it’s why sitting and she passed out earlier with a HR of 120 Says this is a better day and claims it went up to 200 once just from standing up	120 is a pretty low HR to pass out from BUT, POTS syncope isn’t the high HR, it’s the sudden drop.	POTS
17/09/03	FB	Post to a group: Rants about losing ID Passed out as WALKING out of work Claims passed out for 2 minutes BP was 79/40 taken by EMT IV fluids weekly and Zofran regularly, pissed she can’t get a port.	POTS syncope usually resolved quickly once horizontal.	POTS GP Port
17/09/07	Tumblr	Anon asked a Q: asks if NJ gets auras “I do get auras occasionally, but rarely. Hemiplegic migraines, while they have auras sometimes, generally don’t, which is why Hero is my response turned alert dog for migraines, since my migraine disorder can cause brain damage.	Why need an alert if she gets auras? https://rarediseases.info.nih.gov/diseases/10768/hemiplegic-migraine NIH Categorizes HM as “migraine with aura”. The motor weakness is part of the aura. Try again NJ.	Migraines
17/09/08	FB	GP has no cure and won’t get better Cannot just eat small meals POTS is not caused by her not eating Not just heat or malnourishment Do not invalidate her, do not tell her she is wrong She will not speak to anyone who doubts her		GP POTS
17/09/09	IG	ER staff only gave her 0.5L instead of 2L and didn’t get her zofran Inferrs this is why Hero keeps nudging her		GP POTS
17/09/11	IG	Got IV zofran so is going to go eat lunch. Claims IV zofran allows her to eat.		GP
17/09/11	IG	Pic of Fitbit HR132 (is in class) Claims it’s going to be hospital time soon		POTS
17/09/13	IG	Hero alerted to migraine Alerted twice which means the meds didn’t abort it completely.		Migraines Hero
17/09/15	IG	Seth is an EMT which affects her because she claims he has to change and have a shower before he sees her to eliminate risk of germs	No diagnosed immune deficiency	Immunity
17/09/18	IG	Arlow in pic wearing Hero’s vest Arlow can’t work anymore but NJ will continue to be worked to transition him out of work Only going to pet friendly places Has idiopathic seizures		Hero
17/09/18	IG	Arlow and Hero together Going to Pet Smart to do some work to ease him into retirement Uses vest to make Arlow feel better		Hero
17/10/07	IG	How can a dog alert to something that doesn’t exist Infers the whole point of being a YouTuber is seeking attention		Hero
17/10/12	IG	GI appointment gave a motion sickness patch Says unless they see her in the ER more they aren’t going to place a port	16th time for port	GP
17/10/18	IG	BP98/67 with HR70 Says if BP goes any lower she’ll have to go to ER All night had to get up because GP is flaring		POTS GP
17/10/21	Tumblr	Says her Dr doesn’t know most of her symptoms because she doesn’t tell him because she think he’ll think she’s crazy Tries to eat and drink but can’t enough because no port Very dramatic post about this affecting her life so badly ER says stop relying on them for treatment Hasn’t be able to walk Hero in over a year because she feels sick Says every time she is refused a feeding tube she grows thinner Says she feels disgusting	17th time for port	GP POTS
17/10/23	IG	Hero is trained to work off lead because “I am a wheelchair user with hemiplegia.”		Migraine Wheelchair
17/11/03	FB	Post to group Blacklisting medical team for refusing to place port because she is too young	18th time for port	Port
17/11/08	IG	97.5lbs and 5’4 Says it’s concerning		GP
17/11/11	Hero’s FB	NJs been sick lately so had emergency dr appointment Coming out of GP flare and can eat around 500cals a day and is taking reglan which has side effects Hero licking her legs to try and help Putting off getting infusion but would rather struggle than have a needle put in her arm every 3 weeks	Every three weeks isn’t a regular infusion schedule...	POTS GP
17/11/12	IG	Heading to ER in orange glasses		Migraine
17/11/12	IG	In ER waiting room. Hasn’t been here for 2 months but is annoyed her daily meds didn’t prevent it		Migraine
17/11/12	IG	Claims she’s going to get 2L, Zofran, Reglan and Benadryl		Migraine
17/11/12	IG	Don’t distract SD because this is the result, ended up in ER with severe HM	Note: Most of the time, people with HM get auras before their migraines.	Migraine
17/11/13	FB	Post to group Talks about Hero being distracted and then ending up in the ER and this is why SD are so important		Migraine
17/11/13	Hero’s FB	Going to school today Complains about the distraction		Migraine
17/11/13	FB	Letting everyone know she’s okay now Rants about person distracting Hero		Migraine
17/11/15	Tumblr	Annoyed about dr not listening to her about a port because she doesn’t go for infusions enough to need one and she claims this is because she can’t drive	19th time about port.	POTS Port
17/11/16	IG	Fluids in the ER and feeling better already		POTS
17/11/17	IG	Hero is tucked into the front seat and alerted NJ thinks this is probably because she had a concussion	Note: Hero would die in a car crash like this. Note: Dogs cannot alert to concussions.	Hero
17/11/17	IG	Pic in what looks like the Drs Heading to ER by ambulance because her HR was too low and has a “blood infection”	Blood infection from what.
17/11/17	IG	Happy pic in ambulance saying the paramedic is funny	Selfies in the ambulance with a “blood infection”? She doesn’t say what the infection is, what it’s from, or how they’re treating it.
17/11/17	FB	In ER for 3rd time this week Says dysautonomia isn’t fun		POTS
17/11/18	IG	New meds Started work on Hero protective instinct Starting with people her knows and has issues with people touching her for more than about a minute.	NOTE: NJ made a post around this time talking about how Hero tried to bite one of the nurses. She has since deleted it. We were unable to screenshot it because of the time we started the timeline. This is why in this post and future posts NJ is talking about working on Hero’s protectiveness.	Hero
17/11/22	IG	Hero did well at conditioning They consulted a behaviourist Temporarily put back into “in training” and working part time NJ says it’s her own fault and the last few days have been awful Says the reality of having a SD “If you make one wrong move it’s over.”		Hero
17/11/23	Tumblr	Need to eat for POTS but can’t because GP GP causing nausea so bad can’t sleep, messing with insomnia and aggravating migraine disorder which is aggravating POTS		GP POTS Migraines
17/11/29	Tumblr	Says she’s getting worse “Basically slowly starving.” due to GP “a condition that means my stomach doesn’t push food through into my smaller intestine, and instead just hangs onto it, letting it sit there for a long time, until I throw it up” Dr say they’ve “run out of options” for her and if she loses any more weight she we “become a candidate for a feeding tube.” This makes her nervous. A few weeks ago Hero barked at her PCP so he’s been put back into training “until we regain his confidence, and work through this fear period” Talks about needing to read your dog’s distress signs NJ says Hero has become anxious around people touching her due to her and her dad play fighting. States that the behaviour is “NOT PROTECTION.” His breed is known for being vocal and easily fixated on things. In this case it’s a delayed fear period. Last few days met with a local behaviourist and evaluated Behaviourist says they can work through it People told her that continuing to work Hero is “wrong” and that she should wash him. This stress has led to more panic attacks and flashbacks Says he therapist is worried about her “stress seizures” starting up again. She has been going out less and feeling more depressed States that what she is doing is the responsible thing to do Calls herself “your local disabled non binary emo.”	Stress Seizures: AKA PNES (Psychogenic Non-Epileptic Seizures)	Hero GP
17/12/03	IG	Says shoulder is popping out of place		EDS?
17/12/05	IG	“The problem with having POTS and gastroparesis is that when you vomit you usually also pass out due to blood pooling in the head.”	Just...No.	POTS GP
17/12/09	IG	Taken to ER because hit her head while falling out of wheelchair Claims hates pain meds so doesn’t want to tell them how bad it hurts		Fall
17/12/09	IG	Can’t move side to side No signs of protectiveness in the ER with Hero		Hero
17/12/09	IG	Hyperextended shoulders and part of her neck. Now out of the ER		Fall
17/12/13	IG	Bloated Says her stomach doesn’t look as bloated as others because she has a unusually small stomach. Claims her stomach is the size of a toddler’s.		GP
17/12/13	Tumblr	Says her blood is practically two parts caffeine and one part Ritalin	POTS people generally stay away from caffeine.	POTS ADD
17/12/18	FB	Post to group Is annoyed because people keep asking if she has EDS and she says no.	Despite having claimed to suspect EDS previously.	EDS
17/12/24	IG	Back home and it’s too hot Claims chronic dehydration due to POTS Has used to entire rescue inhalers in the past two months because of the winds. Says her skin look like a raisin. Exercised Hero at dog park.	Note: Inhalers can cause shakiness and tachycardia.	POTS Asthma
17/12/24	Tumblr	Is angry that her dad told her to eat her food so she will look normal and not embarrass him Hates holiday seasons		GP
17/12/31	IG	Says 2017 has been bad Gotten sicker and complains about everything Struggles with Hero’s behaviour Learned to trust people and judge a little less. Thanks seth for pushing her chair, loading her chair, holding her when she passes out.		POTS Wheelchair

2018

18/01/06	IG	She’s annoyed because it’s been around 4 months since she should have gotten a letter in the mail about wheelchair Claims 2 screws on the back of chair came loose and then out. So the bar won’t work on the back to push down to fold Has been having meltdowns and that she doesn’t have time to take care of herself. Has to work longer than expected so is pissed.	Note: You don’t need the bar for the wheelchair to function. Just get new screws. Tighten screws. Fixed.	Wheelchair
18/01/09	IG	Praising Hero Health is bad Wants things from people from her PO box. Wants soft stuff. Claims people have asked her to make amazon wishlist so she might do that		PO Box
18/01/11	Hero’s FB	Went camping in forest with NJ for christmas (update) Says NJ had a panic attack and two syncopes while there Says NJ had a bad meltdown the first night Send things to PO box		PO Box
18/01/13	IG	Pic on NJ with POTS, GP, HM warrior Spoonie living app		POTS GP Migraines
18/01/14	IG	BP been really low last 2 days, even with 2 cups of strong coffee it won’t go above 90/70 while sitting Has got as low as 84/46 yesterday Hopes to feel better, and is late on infusions. Tries to go once a week but Dr doesn’t like scheduling them In the comments she says she goes to the ER every time and doesn’t go to an infusion centre	Note: NJ has said she has had regular infusions not just in the ER	POTS Infusions
18/01/16	FB	Post to group: Needs help with POTS, GP, HM and is often in ER and gets fluids irregularly for POTS. Cardio doesn’t want to schedule infusions Claims in ER 1-2 times a week, comes into infusion centre 2-3 times a week on top of that (goes with consistent low BP and needs nausea meds also) Cardio also says ports and piccs are only for cancer patients Military insurance won’t let her switch Dr Wants freedom and independence while hooked up to an infusion.	-Fluids “irregularly” despite having multiple claims stating she gets them regularly -Ports and Pics are not only for cancer patients, and military hospitals have placed them in non-cancer patients before. -Tricare lets you change PCPs.	POTS Port
18/01/19	IG	Selfie from the kitchen floor Not taking any solids in right now Wants to move forward with wheelchair, neuro agrees.		Wheelchair POTS GP
18/01/20	IG	BP reads 88/62 “Can my blood pressure just fucking not right now.”	Note: She’s on Propanalol...this is normal.	POTS
18/01/23	FB	Post to group: At the point she’s so tired that she can’t go to appointments. Hasn’t gone for an infusion in over 2 weeks	Not regular infusions then.	POTS
18/01/24	IG	Post to group: Says all her illnesses are flaring at same time Has joint pain, GP pain and a headache and having an “insomnia attack” all at the same time		POTS GP Migraines
18/01/24	IG	BP reads 87/50, HR73 Is sitting	Propranolol does this.	POTS
18/01/24	IG	BP reads 80/49, HR84 Says she isn’t healthy	Again, she’s on propranolol	POTS
18/01/26	IG	Just had syncope Final for math is tomorrow and fail = huge trouble, after this gets semester off Wants to do a video on “you can come but don’t bring the dog.”		POTS
18/01/29	IG	HR reads 98, O2 99% Says POTS is acting up and says her HR will keep going up from this GP is flaring too, causing asthma to act up too Probably need to go in to get infusion tomorrow Hero is helping stand and get down stairs “being housebound sucks.”		POTS GP Hero Asthma
18/01/29	Tumblr	Says her dad was periodically away when she was young 10 he was out of the army and her symptoms started at the same time Claims her dad is abusive and that her parents fought Dramatic no one cares or understands Is told everything is mental Talks about vomiting and it not being an eating disorder 15 y/o was diagnosed with SPD, conversion disorder and PTSD 12 ER trips in one month 19 y/o and diagnosed with POTS and GP but been happening for years Talks about Hero saving her		Mental Health Conversion Disorder ED POTS GP
18/01/30	IG	Wants people to share their stories of being diagnosed with EDS, Fibromyalgia, and Hypermobility Syndrome Feels that Drs would be more willing to give her a port if she had an EDS diagnosis Pretty bad GP flare past 2 days and getting worse, averaging around 500cals a day Managed a PB sandwich and protein drink	20th time for port.	EDS Fibro Port
18/01/31	Tumblr	Remembers when she was diagnosed with GP and she was at disneyland and she got a call from a nurse who was apparently sounding “somber” Much drama Made her feel like the world was ending but also relieved that she finally had an answer “Gastroparesis is technically not life-threatening in most cases” Eating is nearly impossible		GP
18/01/31	IG	3:45am insomnia, threw up and is constantly hot “Tomorrow might be an ER day” Lowest weight ever Dad tried to take her to ER this morning but she said no Says her illness gave her a SO and a dog Misses her old Dr	Note: On a MyProAna post she made in March 2017, she claims her Long Time Goal Weight is 95 and that she was currently 120.	POTS GP Insomnia
18/01/31	IG	BP reads 86/53 HR65 This is lying down and doesn’t want to stand up because she doesn’t want to pass out		POTS
18/02/01	Tumblr	Insurance denying her wheelchair because she needs to see her PCM first Hypermobility “not EDS from what I’m aware” Wheelchair is legs and freedom, general pain for walking more than 5 mins Asking for donations, gives youcaring and Paypal	NOTE: Youcaring screenshots are at the bottom of doc.	EDS Wheelchair
18/02/01	Hero’s FB	Insurance won’t pay for wheelchair Been trapped in the house Links YouCaring		Wheelchair
18/02/04	IG	Pic of NJ with a nasal tube Says threw up with tube and it didn’t come up	Note: All of the pictures with NG tubes are taking in her bedroom or bathroom, with seemingly nothing hooked up to the tube and no apparent feed formula running.	NG tube GP
18/02/04	IG	Threw up the tube with the formula Someone commented asking if it was an NJ, NJ responds that she’s hoping to “convince” him to place a surgical tube		NG tube Surgical Tube GP
18/02/05	IG	Wearing vogmask because of asthma to block dust and create a more humid environment Claims she wouldn’t be able to go outside otherwise		Asthma Vogmask
18/02/06	IG	NG tube is back in and she ran some electrolytes and used the tube to vent Claims venting helps and the meds to decrease acid production don’t help much		NG tube GP
18/02/06	FB	Proud of Hero because he is alerting to hypoglycemia. Claims BSL was 56.		Hypoglycemia
18/02/07	IG	Said she made a mistake by eating food after she threw up her tube because her brain told her she was hungry		GP NG Tube
18/02/07	IG	No feeding tube until next appointment “Back to starvation I suppose” Seems happy to have filmed some videos before she threw it up though.		GP NG Tube
18/02/08	Hero’s FB	Sharing YouCaring link Claims it’s stopping NJ from going outside the house and hasn’t been able to walk Hero for over 2 months		Wheelchair YouCaring
18/02/09	IG	“Whoever said working out is good for POTS has never dealt with it.” Whole body in pain, dizzy, nauseous, feels like she’s dying. Doesn’t want to go to ER	Working out is one of the first treatments for POTS to prevent deconditioning and worsening of symptoms.	POTS
18/02/11	IG	Selfie with NG tube and says it’s back in to vent Says it’s more helpful than pills, IV are the only meds that help “Going to take it out in a bit”	The fact that she says she’s going to take it out leads us to believe she is inserting and removing without her family knowing,	NG Tube GP
18/02/11	Tumblr	Shares Youcaring link Needs a lite weight wheelchair and because her old wheelchair is destroying her shoulder because it doesn’t fit properly		Youcaring Wheelchair
18/02/12	IG	BP read 90/55 HR 61 = laying down BP reads 88/55 HR 80 = standing Feels awful and waiting for dad to wake up to take her to ER, keeps putting off ER and hates it but doesn’t know what to do Says she needs fluids too badly not to go	NOTE: Not a significant BP drop nor does the HR increase meet a POTS diagnostic criteria.	POTS
18/02/12	IG	Going to ER and her dad is taking her because she collapsed in the kitchen and was unconscious for 15 mins Apparently he sternum rubbed her	15 minutes unconscious would be a 911 for fear of brain damage.	POTS
18/02/12	IG	3L of saline, reglan, zofran and tramadol and she feels better Staff were shocked she was able to take in that much fluid		POTS
18/02/14	FB	New dr (PCM)today thinks she has fibromyalgia and said port was a good idea for fluids and IV meds because of malabsorption	NOTE: Pretty sure this is the doctor that just dumped NJ (as end of May 2018) 21st time for port.	POTS Port Malabsorption Fibromyalgia
18/02/14	IG	Says the PCM appointment is for discussions on wheelchair, port placement and feeding tube	22nd.	GP POTS Port
18/02/14	IG	PCM went well and put in the wheelchair order and thinks NJ has fibromyalgia		Wheelchair Fibromyalgia
18/02/16	IG	Praising Hero and how important he is Alerts to HM, reminds of scratching, mobility assistance Started as psych SD		Hero
18/02/18	IG	Someone sent her a brave souls blanket Really needed it because physical and mental illnesses are very bad at the moment
18/02/18	Tumblr	Youcaring again Says she is struggling with walking and knees are in constant pain and been getting spasms from knee caps moving around too much Is having awful syncopes Says without it she’s stuck in the house		Wheelchair Youcaring POTS
18/02/20	IG	Had a flare but she has braces and they help? Tachycardia is acting up		EDS? POTS
18/02/21	IG	Been shaking and hurting and tired Her ribs are shifting (she’s pretty sure they’re subluxing) Says she doesn’t have EDS		EDS Hypermobility
18/02/22	FB	Post to group: asking about ports again Asking how long it takes to get a port. Talking to PCM and GI Says her migraines can only be treated by IV meds	23rd time for port, so obviously fishing at this point.	Port Migraines
18/02/23	FB	Post to group: HR spikes when she eats and she feels like she ran a marathon Asking because she doesn’t know if this is normal with GP When she says eats she means drinks a protein shake	HR spikes when eating is normal for humans.	GP
18/02/26	IG	Struggling with POTS but had a meetup Saw a fake SD and started some shit Fake SD handler started yelling at her NJ says she was calm but was arguing with her NJ says she is an advocate PTSD flared “ma’am you need to get out of my face for both your and my safety.” Wish she recorded it Hero did DPT	NOTE: NJ infers that she has anger issues	Hero PTSD
18/03/02	IG	Yesterday diagnosed with TMJ disorder and referred to specialist, doesn’t know what it is though		TMJ
18/03/02	Hero’s FB	Insurance will help pay for wheelchair Hopes to give money raised back or lower the amount needed to be raised		Wheelchair YouCaring
18/03/03	IG	Hero’s being an ass and NJ collapsed because of physical exertion Took BP and it was 92/60, claims unable to stand and move Can’t do much because CFS and pain flare SDs sometimes mess up and they might act like a bad dog Back to tether and boundary training	92/60 is not low at all for someone on Beta Blockers	Hero CFS POTS
18/03/03	IG	Had to be carried to bathroom, legs too weak and passed out 3 times Threw up the chicken broth she was told to drink to bring up BP Hero back to normal and behaving perfectly again		POTS Hero GP
18/03/04	IG	Her dad decided to bring wheelchair inside because she was struggling to the point of tears Says it’s bad idea to hold whole body up with crutches during CFS and POTS flare		CFS POTS
18/03/09	IG	Went to wheelchair place to make OT appointment for wheelchair evaluation and smartdrive got brought up Doesn’t want to talk about smartdrive because worried people will think badly of it Refuse to be silenced in her “safe space” and will do what’s best for her		Wheelchair
18/03/10	IG	States being an ex-competitive swimmer and using a wheelchair makes her ripped. Pic of her guns (arms)		Strength
18/03/13	IG	Throwback pics Used to be USA level competitive swimmer and a horseback rider Wants to return to these things Started to get sick and couldn’t ride anymore due to it being hot Misses her body being a weight that doesn’t hurt when sitting down Claims was going to be an olympian		Sports POTS
18/03/14	IG	Old pic Thinks hero is starting to alert to low BP He tried to do a takedown and immediately after starts feeling sick Bad stomach cramping for about 2 days now and it’s worrying her because it’s not a normal symptom for her	Cardiac Alert Dogs (BP) are super rare and undergo a lot of training. Cramping is normal for GP?	POTS Hero GP
18/03/14	IG	“Is it wrong to go into an ER and just tell them to place a picc or port so I can start feeling less like the sahara desert and more like the amazonian rainforest.” A reply in comments to why she wants a port: IV magnesium sulfate, dexamethasone, tramadol, droperidol, nausea meds (reglan) and also ketamin has helped	24th time for port.	Port Migraines
18/03/16	IG	Taking a break from sarahah Says she takes the blame for others actions Talking about Leo making a mistake but won’t attack him. Wants to keep peace Says she’s called people out before and she regrets it and will never do it again because she realises there’s a difference between education and harassment		Breaking Promises
18/03/18	IG	Doesn’t like that kids are acting the same age as her Is getting messages saying she’s faking her illnesses and there are now hate blogs about her Why when you become more popular in the community you get targeted Claims weakness on one side and hands are stronger because of hard and painful PT. Just because you can’t see it on camera doesn’t mean it’s not there Wants people to respect her	Note: This Reddit is not a hate blog.	Migraines
18/03/19	IG	Feels empowered to conquer her illnesses today So much she hasn’t shown people. She has hobbies (books and dogs) A bunch of sappy stuff
18/03/21	IG	Today’s not good Got a lot done but is now weak and in pain from it and can feel her nausea getting worse Has 2 appointments next week for new treatment Been throwing up her meds		GP CFS
18/03/21	FB	Got a case manager to help her advocate at dr appointments Help her keep everything in order Being sick for so long makes everything feel overwhelming and this should help Hopes she can help get stuff started for treatment Says a case manager is what you get when you have multiple illnesses and need “tools” or if you’re “too messed up to manage yourself”		Case manager
18/03/25	IG	Says her parents are the best parents ever and say they support her and look after her in her illnesses Help to advocate and accommodate needs	Says this despite previously stating she has horrible relationships with her parents and that they’re manipulative and don’t believe her.	Parents
18/03/28	IG	Last night the ER dr was going to admit her and they wanted to do something about the weight but then the new guy chose to discharge Was hoping for new treatments and a stay might have given fast answers		GP Tube
18/03/28	IG	Too tired to film or focus Med update: back on the cycle of vomiting after discharge Can’t keep down anything pretty much Claims they may go to surgical tube and she doesn’t want that Wants to just direct admit herself		GP Tube
18/03/30	IG	Medical team isn’t making decisions Current plan is for an NJ (the tube not person) until they decide whether to place a port or not IV treatments work for her and can’t take oral meds because can’t keep it down	24th port.	Tube Port GP
18/03/31	IG	Struggles with communication Says all her Drs say different things Not doing well and won’t explain Stop asking her for medical advice or qualifying for SD Fear of drama, paranoia is awful This account is about her dog not her She’s going to be herself	NOTE: This is around the time she made her post on reddit and all the stuff that happened there can be found here: https://drive.google.com/drive/folders/1-97IiiByE9nzKJ7qmAmbftrMYCl0-u4s?usp=sharing	Reddit
18/04/03	IG	Hero got complimented on behaviour and worked on “go get help” task Training without head-halter because she needs to build trust Claims Hero works fine off of the head halter		Hero
18/04/04	FB	In an infusion centre and feels she’s going to start feeling better Says her mom is helping advocate for her		POTS
18/04/04	FB	Feels like getting closer to good treatment regime Care manager thinks she will help with the military system
18/04/05	FB	Post to group: laughing at the LC (LolCow) because they are saying Hero’s migraine alert is not a legitimate task which annoys her Saying it’s rare so she can’t possibly have a dog that can do that isn’t good reasoning		Hero Reddit
18/04/05	IG	Uncle looked down on her asking why she was using the wheelchair Dad is in bad mood and was screaming at her and her mom Hates when her dad blows up Says family is toxic Is very depressed and paranoid Says he got her anger from her dad Infers that her dad tries to buy her love	NOTE: made a recent post about how GREAT her parents are and how supportive they are	Parents
18/04/07	IG	Hero did a third migraine alert, pain on the left but meds are working Was at dinner and her cousins got to see him in action		Hero Migraine
18/04/07	IG	EMS training in and around emergency vehicles with Hero Practiced being handled by EMT Hero did well and made friends with EMTs. Said he might have been a little too happy to be in ambulance		Hero
18/04/09	IG	Working towards being off head halter She doesn’t trust him enough off the head halter	Despite having just said he worked fine off the head halti.	Hero
18/04/10	IG	Going to second wheelchair evaluation Says she has a minor surgery later (removing part of her toenail) and claims hero can’t come because it has to be 100% percent sterile	NOTE: The “surgery” is just removing an ingrown toenail NOTE: It doesn’t have to be 100% sterile	Wheelchair
18/04/10	IG	“Awesome eval” - wheelchair Company is coming to her house to show her stuff and measure her up After 6-8 weeks should have her new chair Hero is doing good off head collar		Wheelchair Hero
18/04/12	FB	Post to group: Just started home infusions at 250ml an hour. Getting a pump tomorrow Says she’s a wheelchair user so it makes it harder to use the pole Asking what is the best rate to receive fluids for POTS patients	A FB group is not a substitute for the people in control of your infusions.	POTS Infusions
18/04/14	IG	Wants suggestions for Hero’s new harness Says Hero carries emergency meds and her blood sugar kit		BSL Hero
18/04/15	FB	Reply in comments: Says Hero is a response dog with “ONE” alert (migraine)	What happened to blood sugar, blood pressure, heart rate, allergens, and cortisol?	Migraine Hero

THE GOOGLE DRIVE

Here are the screenshots of all the posts summarised in the above table for anyone how has the patience to look through them. Some of these posts have since been deleted by NJ. Otherwise, this is public knowledge that can be seen by looking at NJ’s posts via the websites they were first posted on.

https://drive.google.com/open?id=1t9fkH7wBRhEJYx-SD0sgBy8alXICYRGS

SARAHA INSTAGRAM STORY Q & A:

https://www.dropbox.com/sh/mvchx2sxqu4ojmm/AAByfnv_f1rao9h86qR-Tqi6a?dl=0

EATING DISORDER:

While googling NJs email address to find her fundraising pages it was found that she has posts on an anorexia and eating disorder forum website. Links to screenshots below.
Note: NJ has denied several times publicly that she does not and never has had an eating disorder.

https://www.dropbox.com/s/g44z5czat5rsl0g/2017.2.27%20NJ%20Ana%20proof.jpg?dl=0

https://www.dropbox.com/s/83j45smnvy30wsj/2017.3.1%20NJ%20Ana%20proof.jpg?dl=0

YOUCARING:

Links to screenshots of NJ’s YouCaring Campaign for her new wheelchair:

https://www.dropbox.com/s/36knjkc5fk32nbm/YC-no%20date.jpg?dl=0

https://www.dropbox.com/s/y20woosl1pmm63m/YC-no%20date1.jpg?dl=0

https://www.dropbox.com/s/xtri4ljvjycs31s/YC-no%20date2.jpg?dl=0

https://www.dropbox.com/s/khuqkja51db3759/YC-no%20date3%20%282018.02.11%3F%29.jpg?dl=0

https://www.dropbox.com/s/c3fzz7glya0b5nc/YC-no%20date4.jpg?dl=0

YOUTUBE COMMENTS:

Comment where NJ claims her HM are familial

https://www.dropbox.com/s/hs70430ckqv0w24/YouTube%20Comments%20%28no%20date%29.jpg?dl=0

INSTAGRAM COMMENTS:

Comment claiming major damage from her major HM

https://www.dropbox.com/s/7nfvomvz4rjymvy/Migraine%20Damage%201.jpg?dl=0

https://www.dropbox.com/s/7i9nk7ymp9o5bov/Migraine%20Damage2.jpg?dl=0

(Keep reading)

A NOTE ON PERMANENT BRAIN DAMAGE FROM HEMIPLEGIC MIGRAINES!

The instances are few and far between, and those that suffer from permanent damage have proof on their MRIs and usually have studies done on them. NJ Claims to have Familial Hemiplegic Migraine, for which one of the diagnostic criteria is having an aura. She claims she needs Hero because she only sometimes gets auras and if he doesn’t warn her she could get injured. Auras generally develop over a few minutes or hour and can last minutes, hours, or sometimes days. With regards to HM, they usually start an hour or two before the migraine.

NJ Claims the “bad migraine” happened at the end of May/Early June in 2014. She posts from what seems to be a convention around May 31st of that year, looks to be on a swim team that summer, is shown riding horses early that fall, and even runs a Triathlon in November. All this despite supposed “hemiparesis”.

I’ve included some studies and general information about HM and general migraines below.

http://journals.sagepub.com/doi/full/10.1177/0333102417723569

https://ghr.nlm.nih.gov/condition/familial-hemiplegic-migraine

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4220590/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3241741/

NJ “FAINTING”:

It doesn’t take a genius to see she has control of her legs and just generally doesn’t look like she’s fainting.

https://i.imgur.com/va4A5jK.gif?1

https://i.imgur.com/nq5tK6p.gif?2

NJ’s RESPONSE TO OUR SUBREDDIT:

https://drive.google.com/file/d/12i1oQGD9TnACcyjwam-a6lD2kylUTsZg/view?usp=sharing