Expand the horizons and enhance the quality of life of those we support.
PCL believes that all people have the same rights and responsibilities, unless a judge of the court says differently. We want you to be as independent as you can be and to understand all your rights and responsibilities.
Everyone needs help making some choices in life. PCL’s staff can help you if you want. They can explain all the choices you have and what might happen with each choice.
We at PCL will support your choices the best we can unless your team has talked and said that we can’t. We will remind your team at least once a year to talk again about your request to see if it is now possible.
It is our (PCL’s) responsibility to make sure you know your rights. That’s why we created this packet to review with you, your family and your guardian/ legal representative (if you have one). We will review this information with you when you first move in and again every year as a reminder.
All the rights we talk about are for everyone. We will not change them or take away any rights because of:
∙ Race/Color (everyone is a color)
∙ Religion (different churches or beliefs)
∙ Gender (Male or Female)
∙ Language (how you talk or communicate with others)
∙ Political or other opinions (for example, who you want for president or mayor)
∙ National or social origins (where you were born)
∙ How much money you or your family has
∙ Who you were born to or anything else that involves you or your family
Right to Food
If you pay PCL monthly room and board money, PCL will ensure that you have access to at least 3 meals and 2 snacks each day. If you do not pay PCL monthly room and board, we will help you, if you want, with budgeting and support needed to ensure that you have food and snacks.
As you need, PCL will assist you to budget, plan, prepare, and store your meals. You will have the freedom and support to have your own personal food you purchase with your personal money available at any time unless there is a doctor’s order or other limitation for your well being. We will help you to understand and follow any diet orders from your doctor.
We will take into consideration your preferences and have food that you like while staying within budget. If you have housemates, we will also consider their food likes and dislikes. We will provide options for meals in case you prefer another option or want to eat your meal at another time.
Right to Clothes
PCL will help you keep your clothes clean and in good shape. We can help you make good choices so that your clothes fit, look nice and last a long time. It is your responsibility to help with cleaning and putting your clothes away as much as you can.
Place to Live and Decorations
PCL will assist you to learn independent living skills, including how to clean and decorate your home and yard. The home where you live will be kept warm or cool (depending upon the weather), have enough furniture, and be safe and comfortable. You will have a rental agreement where you chose to live based on your budget and choice.
You are welcome to decorate your personal bedroom how you wish. For your safety, and to ensure your home remains safe and within the service requirements, you need to gain permission from PCL prior to hanging anything other than general household pictures on walls, installation of items in the room, painting, or any other surface or structural modification to the bedroom or other part of your home. This includes not attaching electronic, aerial or other devices to the exterior or interior walls, windows, or roof of your home.
Mission/Person Centered Living
While PCL may be the primary lease holder of the property where you live, PCL firmly believes that the home where you live is your home (and your housemates, if you have any). This means that the home, and you, will be treated as such.
We will not be posting anything on the walls that are business or bureaucratic in nature. Some examples would be ‘slippery when wet’ in the shower, ‘hot water’ by a faucet’, installing an eyewash station, posting exit routes (you either know how to get out or you have staff support to exit, if needed), etc. If you, and/or your housemate, want such signs or postings you are free to put them up or request assistance from us to do so.
Medical & Health
Medical & Health - With your team, we will talk about how to help you stay healthy. If you need to go to the doctor, we will assist you to make an appointment or make an appointment for you. We will assure that all medications are given to you only for your needs as prescribed by your doctor.
PCL will also help you get to the doctor and tell the people who need to know what’s wrong so they can help. It is your responsibility to take medications and follow doctor’s orders. If we need to, we can help you with this.
If you don’t want to take medications or a treatment we will try to help you understand why it’s important and see if we can work out an agreement. We might also talk to the doctor and your team to think of other ways to keep you healthy. If you have a guardian or Health Care Representative, we will work with them as well to make the best decisions regarding your health care.
Your team will review your health needs with you and help make medical decisions to make sure you are doing what you need to do to be healthy and assist in understanding and signing any needed consent forms, unless it is an emergency and you need immediate medical supports.
You have the right to participate in experimental health programs or not to participate in any experimental health programs. If you are interested, we will assist you in learning more about the program and with signing the voluntary consent forms.
The possession and/or use of Marijuana/Cannabis is not prohibited by PCL. However, if you are going to use marijuana/cannabis, you must stick to all applicable ORS (Oregon Revised Statute), OAR (Oregon Administrative Rules), and Federal Law related to the use and storage of Marijuana/Cannabis in or on the property where you live. Furthermore, PCL does not allow marijuana/cannabis use inside your home unless it is edible. It needs to be used outside, at least 10 feet away from any doors, and windows of your home or neighboring homes and follow all the rules referred to above. Exceptions may be made for edible medical marijuana.
Learning & Growth Opportunities
Learning and Teaching - We will help you to learn about things if you ask us or if your team asks us to. We will work together to agree on the best way for you to learn. PCL will provide assistance around things you decide you want to learn or experience.
There are lots of important skills and things to learn about living more on your own or taking care of your own things.
Some of things you can learn are:
∙ How to grocery shop, store food, cook, or make a snack
∙ How to do laundry or fold your clothes
∙ How to take a bath and what it means to be clean
∙ How to ride the bus
∙ How to find, interview and keep a job
∙ How to budget and save your money so you can save for bigger things or trips, if you want
∙ How to make good decisions, learning how to be more patient, learn how to cross the street by yourself, whatever you can think of, we can help you learn it!
We will make a plan of how to help you learn new things and keep track of how well you are doing. Sometimes, we might change how we teach if that makes it easier for you. Whether or not you have a scheduled time to learn things, we will always talk to you about what you are doing so you can continue to learn.
Supports - If you make a choice to learn something, then it is your responsibility to come to meetings, trainings or classes. We will be available to help you stay safe and healthy, even if there is no training. We will help provide the supports that you need through a person centered process. PCL will ensure that supports promote independence and dignity appropriate for your age and be provided in the most cost effective and least intrusive manner so that you can be as self– directed in your decision-making as possible.
Individual Support Plan - PCL will work with you to create a person Centered Individualized Support Plan (ISP) which will be reviewed regularly to see if it still meets your needs. We will work with you so that you know what supports we will be providing and to discuss any needed changes (in a timely manner). The team will make timely decisions for any changes to supports that you request. You have the right to invite people you want to be a part of your team. You also have the right to a hearing if your services are reduced or end.
Right to Choices and Decision Making
You have the right to make choices These choices could be about where to live, what to do during the day, how to spend money, or when to see a doctor. We will support you in decision-making, by giving advice,when we are asked to. We will work hard to listen and suggest ways to make your wishes happen, when we can.
It is your right to have guests over to your home when you want. When guests are present, they do need to be respectful of you, anyone else in the home, as well as be respectful of yours and other’s property, the home and outside property. If you have house mate(s), they will expect that you are repsectful of when they have guests in the home. If your guests upset your housemates, you may need to make arrangements to meet them some place besides your home.
Being respectful means not being too loud, going in your housemate’s room without permission or saying rude things to or about your housemate or support staff.
You do need to let PCL know when you are having guests over to your home. Guest(s) shall not sleep in the general living areas of your home nor sleep in other housemate’s beds. PCL is not responsible for providing food or sleeping accommodations for your guest(s). Specific guests that present an active health and safety risk to your housemates, your staff, or other persons present in the household may be asked to leave the premises.
We will help you stay in contact with your friends and family. This might be phone calls, letters, or any electronic communication. We will help you arrange for them to come to your house or for you to go to their house or meet them somewhere else (like a coffee shop).
Guests might also be medical or legal (designated) professionals or advocates. Again, we can help you schedule to go see them or invite them to come to your home.
During any visits, we will not listen to the conversation unless you ask us to, your team asks us to, or if the court requires us to.
We also know that there might be times where there are PCL support people or outside the agency people who may come to check on the services you are receiving and/or inspect the house. PCL will work with them to give you as much notice as possible (ideally at least 24 hours notice). If you do not want the visitor(s) there, you have the right to request that they leave or keep their voice down or to stay in the general areas of the home. While you do have the right to ask someone to leave your home, some inspector type visitors might not be able to leave without finishing their business.
Quiet, Safe Enjoyment
You have the right to enjoy where you live. This means it shouldn’t be loud all the time. You need to be able to relax and rest. This is the same for your housemates and neighbors. You have the right to have a radio or other electronic device on. But everyone has the right to ask you to turn it down or shut your doors and windows if it is interfering with other’s quiet enjoyment of life.
You can make calls or receive calls without people listening to your conversation, unless your team has decided otherwise. You may also talk to whomever you like unless your team has decided it is better for you not to call that person.
If you make a call that costs money (like long distance or numbers that cost money) then you need to pay for it.
If you live with other people, you need to be respectful about sharing the phone with your housemates. The phone may also be needed for PCL business at times.
If you want your own phone line and your team agrees, you will need to pay for it. We will help you budget so that you can pay your bill on time.
You are able to send and receive mail or electronic communication that has not been opened or looked at by us unless you or your team asks us to.
If you want, staff can read and explain any information in the envelope and help you to respond to it. This might be filling out a survey, calling the person who sent you the mail to say ‘thank you’ or other help you may need.
Everyone has the right to have personal items of their choosing and a reasonable amount of personal storage space. If you live by yourself then you can choose to put your things where you want.
If your home has a staff room or office, you can’t choose what goes in there. If you want to put some of your things in the office discuss it with your Service Coordinator as there may or may not be room to store any of your personal belonging in that room.
If you share a house with housemates then your personal items will genearlly be kept in your room unless you, or your team, decide otherwise.
With the help of your team, you can work together to decide whether to keep any personal items in the main part of the house. These items might be a recliner, some pictures or other knick knacks, or TV. When these items are in the main part of your home, then you are agreeing that it is OK for other people to look at them or use them respectfully.
If your stuff accidentally gets broken by someone that is not a staff, PCL will not automatically replace the item. It might be that the person who broke it pays part or all of the cost, or you might have to decide if you want to spend your own money to replace it. You are also expected to treat other people’s property with respect. If you break some one's property you may be required to pay for all or part of the cost. This decision will be made by you and your team.
We will help you keep your items in good shape. With your help, we will keep a list of what items you have and help you decide what value those items have. At least one time each year we will review the list with you to see if you still have those items. If they are broken or worn out, then we will write that on the list. If you get new items (a gift or something you buy) we will add it to your list. You and your team may decide to find a different way to keep track of your things.
Never should a staff person borrow an item belonging to you and you should never trade items with a staff. Also a staff should not buy anything from you. If this happens please tell your Service Coordinator.
If you decide you want to get a pet. There are some things to do before you get your pet to make sure you can actually have one. A fish tank of a gallon or greater in size is considered a pet.
First, your coordinator needs to make sure pets are allowed in the house you live in. Sometimes the landlord (the owner of the house) will not allow you to have pets at all and sometimes they will if you pay money, which is kept to fix anything the pet breaks or damages.
If you are interested in having a pet - and your landlord says it is ok - , you need to talk to your housemates and your ISP team before you get your pet.
It will be your responsibility to take care of the pet (feeding, watering and clean up after it). Staff can support you if you need assistance.
You will need to pay for all food, litter, bedding, medicine, visits to the vet and any supplies your pet may need to stay healthy and happy.
Owning a pet comes with many responsibilities and you need to understand all of them before you decide if you want one. Talk to your Coordinator to find out all the rules and responsibilities.
You are responsible to cover all costs from keeping a pet, including paying for any damage a pet might do or cause such as fish tank water damage, ruined carpets, or taking care of fleas. This might mean that you need to pay for a flea bomb or similar if the house becomes infested.
You have the right to have your money protected and your bills paid on time. This is usually done by PCL or one of your family members. You also have the right to mange your own money (unless that right has been taken away legally).
If you are interested, we will show you how your money is being spent and if we can, PCL will assist you in saving for special events or items.
You will have spending money and if you want to learn how to budget or save that money, we will teach you. We will help you become as independent as possible with your money. Your ISP will outline your financial plan and what your supports will be.
Your room is your personal space. We should never enter your room without asking your permission (unless it is a health and safety issue). You have the right to privacy, including a lock on your bedroom door. IF you live by yourself, the lock on your house door will count as your privacy lock. If you live by yourself and you still want a lock on your bedroom door, that is fine, just ask us for one to use.
We will try not to go in your room when you are not there. If we have to we will be respectful and not go through your things. If your team decides that we have to keep you safe by looking through your things for unsafe items, we will be respectful and make it as comfortable for you as possible.
We will also be respectful about making sure the door is shut or that other people can’t see in when you need help with personal care (such as bathing, changing clothes and putting on lotion). It is also your responsibility to help ensure your own privacy by closing doors and wearing clothes. You will also be asked to respect the privacy of your housemates.
Only people who have reasonable need to have a key to your room will do so. This means most of the time only staff on shift and your Coordinator will have a bedroom key. When someone, like a maintenance person needs access to your room, you or your staff will open the door for them.
Religion and Culture
Religion - You can choose whether or not to participate in church or other religious or spiritual activities. We can help you learn about different religions and spiritual practices, go with you to a service or arrange a ride.
We will not tell you what is right or wrong or better. We will respect your religious customs and help however we can to make sure these customs are honored. For example, if your religion does not think it is OK to eat pork then other options will be available to you.
You will not have to say grace, but you might have to potentially listen while your housemate says their grace. You will not have to tell what you believe or attend any religious service if you don’t want to.
You will not be treated differently because of your religious practices. However, we will not be able to support any religious activities that are against the law.
Culture - We will be respectful of your cultural and ethnic values (what is important to you) and help you learn about your culture and history. If you want to participate in yours or other people’s cultural activities, we will help you.
If you engage in challenging behaviors (that’s when you do or say things that aren’t safe or appropriate for you or someone else) or that your team thinks you need help with, they will ask the Cognitive & Behavioral Health Services (CBHS) team to help.
The CBHS team may write a Functional Behavioral Assessment (FBA) with the help of the people that know you the best, (this includes you if you choose to participate). The FBA will help determine if you need additional behavior supports. If there is a need for additional behavioral supports, the CBHS team may develop support documents to help insure that you and others are safe and you are protected against punishment for the things you may do.
Supports documents may be documents such as the Behavior Support Plan (BSP), Mental Health Plan or Staffing Guidelines. These support documents are designed to teach people how to help you learn different habits that are safe for everyone.
PCL staff cannot seclude you, physically punish you, verbally harass you, or knowingly place you in a situation where one of your peers may inflict harm on you. PCL staff cannot use any chemical or mechanical restraints unless approved by the Board of Directors of PCL, the OIS Steering Committee and your ISP team. The CBHS team and your ISP team are here to protect your health, safety and dignity.
Abuse & Protective Physical Interventions
Abuse- Everyone has the right not to be mistreated by someone else. You are protected against abuse like being hit, being locked in your room, threatened, tied up, someone not letting you eat or use the bathroom, or anyone using medication as a punishment.
If you feel you are being hurt or feel as if you are being treated unfairly, you have the right to tell someone or file a grievance so that it can be settled in a way that will help you. PCL wants you to tell your Coordinator if something like this is happening. Anyone you tell at PCL or your Case Manager from the county will help you if you are being hurt. We will give you contact information to report any abuse or neglect without the fear of being retaliated against.
Protective Physical Interventions (PPI’s)
If you are the one who is hurting someone else or yourself, your team will talk about it and get some help for you. Everyone’s health and safety comes first. Physical intervention may be used, as a last resort, to ensure your safety and the safety of those around you. This means we may need to limit your movement, using our hands and bodies, with the use of PPI’s, to limit how much you can aggress towards yourself or someone else.
We will always try to help you develop skills that will help you become a valued member of your community. Your ISP team (and you, if you choose) will talk about behavior supports.
We all have the right to choose who we want in the government and how we want the state to spend our tax money. This also includes such things as who is your mayor (the boss of your town), different laws about how close buildings are to each other, things that affect your daily life such as sidewalks, transportation, and how much some things cost.
You need to let your Coordinator know if you want to vote so you can get registered before the election.
Your staff can help you learn about the people running for office and what the issues are, so you can choose how you want to vote. They can also help you attend legislative meetings and rallies of your choice.
Sex, Relationships, Marriage, & Children
Relationships - You have the right to have a loving relationship that could involve sex, marriage and eventually children.
A trusted member of your team will always be open to talk and we will respect your privacy. PCL will help you understand about safe sexual practices and the responsibilities that come with sexual relationships.
You may choose to talk to a family planning agency and/or have counseling if you need help with your relationship or want to get married.
You have the right to be in a relationship with a person who is the same gender you are. (For instance, if you are a woman and you want to go out with a woman or a man and want to go out with a man.) You will not be treated differently because of this.
You have the right to be in a relationship with a person who is a different race. This means someone who has a different skin color or is from a different country.
If you are interested in or are going to have a baby, PCL will help you get information and/or counseling to help you learn about your options or the responsibility of having and raising children.
A Meaningful Life, Work & Play
You have the right to a meaningful life by choosing your services and what community involvement that you prefer based on your preferences and age. You have the right to decide where you want to live, work and the community you want to participate in.
Job Launch/Paid Employment
You have the responsibility to have a job if you are able to work. Although work is not always fun there are some jobs you will like more than others. Your staff or members of your team can help you learn more about what kind of job you would like. You have the right to “Equal pay for equal work”, except personal housekeeping duties. This means you get the same amount of money as anyone else if you do the same amount of work in the same amount of time.
You have the right to join a union. A union is a group of people that you pay money to each month. They try and make sure that your job treats you fairly.
You may also choose an alternative to work. This means you would go in the community each day and do different activities without being paid (like volunteering at a food bank, walking a dog, etc.)
You can also choose where you like to go, and what you like to do in your community. . We will help you learn to make your own decisions and choices about what you do for fun. Of course, the more you work, the more money you have for recreation!
You have the right to participate and use community resources including developmental disability services and health care resources.
You have the right to go to school or participate in other educational opportunities. If you are under 21, you have access to free public education. You also have the right to refuse to attend.
Requests and Complaints
All people sometimes are not happy or wish something could be different. Some examples of this might be that you want to go swimming on Thursdays but there is no vehicle, you might not like what is served for dinner, you might not like your weekend staff support person, things like that.
When you determine that you are not happy about something, or think it could be done differently, especially if it is about services within PCL, then there is something you can do about it.
This is when you are not happy about something or wish it were different. When you have a request, you first should talk to either your support staff or definitely your Service Coordinator and let them know what you are not happy about or what you wish were different. If it is something that can be fixed right then or gets fixed by talking to your Service Coordinator, then that is nice and easy and your complaint is then resolved.
Sometimes things get fixed for awhile and then something happens again, or it doesn’t turn out how you thought it would. If that happens, then go back to your support staff or Service Coordinator and they will help make adjustments or new agreements.
Complaint - If you continue to have have a request that is not resolved or keeps happening, then that means your request is growing bigger or unresolved and turns into a Complaint.
When your request turns into a Complaint, you should talk to your Coordinator or Case Manager and let them know that you now have a compalint. You do not have to talk to them, you can just file a complaint. Anyone from PCL can give you the form and give you the procedures for filing a Complaint, or even if you have abuse to report or how to request a hearing if services have been reduced or have ended.
If you can not fill it out by yourself, we will help you. After the Complaint is turned in, someone will come out to talk with you about the problem and the best way to solve it. If you are not happy with how it turns out, you can ask to have it sent to PCL’s Executive Director and it will be reviewed. The Executive Director’s decision is final.
You can not get in trouble for filing a Complaint. Any Complaint will be considered in a fair, timely, and impartial (open-minded) procedure. The form tells you how long a person has to come and talk to you, review your concern and make a decision.
You can not get in trouble for telling someone if you have a Complaint PCL will listen and try to fix the problem or find someone who can help you fix the problem. You will always be treated fairly and should not be afraid to tell someone when you think something is wrong. No one will say mean things or be rude to you for speaking up.
Other Rights and Responsibilities:
Always remember, you have the same legal and human rights as other citizens. We encourage you to exercise your rights.
You also have the responsibility to follow the laws as other citizens do and let us know if you need assistance with exercising your rights.
You have the right to be treated with dignity and respect.
You have the responsibility to treat others with dignity and respect.
You have the right to be protected from discrimination.
You have the right to supports that help you be as independent as you can be.
You have the responsibility to try to be as independent as you can be.
You have the right to confidentiality. Anyone working with you will not tell other people about you without your permission. The only ones we need to tell things to might be your doctor, psychiatrist or other PCL staff as necessary.
You have the responsibility to respect the confidentiality of others as well.
.You have the responsibility to help out where you can and are able to keep your house clean and safe. You have the right to be receive fair pay for labor/work outside of your home or yard.
Nothing in your records can be used against you in court unless a judge thinks it is important.
You have the right to complain about the services you receive to the state or county case manager without fear of being punished and you have the right to have your complaint considered in a fair, timely, and impartial process.
You have the right to sign a contract (unless you are not able to legally).
You have the responsibility to keep your part of the contract.
You have the right to know if family has contacted the state looking for you, and if you want the right to the name and phone number of that person.
Your services cannot end, pause, reduce, or be denied without prior written notice of the services ending and you must be given what other services are available. You also have the ability to complain and have a hearing about the change in your services.
Health Care Reps
What is a Health Care Rep (HRC)?
A HCR is a person who either you chose or your ISP team chooses to make decisions about your health care. A HRC cannot be an employee of PCL , an employee of your work, your doctor or anyone working with your doctor, or your Case Manager. If you have a guardian the HCR is not necessary.
How long does the HCR last?
The HCR is only good for one year but they can renew each year as long as you need a HCR or as long as they are helping make the best choices regarding your health care.
What responsibilities does the HCR have?
1. When making any health care decision for you, the HCR must first consider your preference and attempt to make the decision that you would have made, if capable. If this is not possible, the decision must be made in what the HCR believes to be in your best interest.
2. The HCR shall have all the authority over your health care that you cannot make yourself, within the law.
3. A HCR is not personally responsible for the cost of your health care.
4. The HCR may have access to all of your medical records necessary to make health care decisions.
What decisions does the HCR have no say in?
A health care representative does not have the authority to and may not make the following health care decisions on your behalf:
□ Convulsive treatment;
□ Sterilization or Abortion;
□ Withholding or withdrawing of a life-sustaining procedure;
□ Withholding or withdrawing artificially administered nutrition and hydration, other than hyperalimentation, necessary to sustain your life;
□ Testing for HIV, unless testing is required to obtain treatment or care for you;
□ Assisted suicide or mercy killing;
□ Experimentation, unless the medication or medical treatment prescribed is part of a study protocol approved by a human rights committee and is determined to be in your best interests.