Table of Contents:

Priorities        1

Care Pod Contact Info        1

● Alyssa MacKenzie | @MakeLemonadeWithLupus        1

Ways People Can Support        2

● Financially        2

● Medications        2

● Local Support        2

● Nutritionally        2

● Joy        2

Next Steps        3

Treatments/plans to research        3

Doctors to consider        3

Ouid O’Clock        3

Toolkit        3

● Grounding        4

● Modalities that help        4

 Insomnia/Painsomnia        4

 Pain        4

 Gastrointestinal        4

 Migraine        4

 Dysautonomia        4

Admin/Insurance Private Details        4

Priorities

• [Put your urgent to dos here - bonus points is the extra bit of dopamine you get from marking complete]

Care Pod Contact Info

• Alyssa MacKenzie | @MakeLemonadeWithLupus

• she/her
• [phone number]
• [time zone so people know when you are awake - can include your “best” hours here]
• [email]
• [Hard and soft skills (ex. admin/organizing, writing/editing, campaign organizing, graphic creation, fundraising, listening support)]

Ways People Can Support

*Compile a list here that could eventually become a separate document, like an a la carte care menu for folks who ask how they can help, based on their skills/resources/proximity to person in need of care.

• Financially

• Venmo:
• CashApp:

*Consider setting up a subscription plan for folks to be able to contribute monthly/regularly

• Medications

• [Ex. expensive supplements or things that help this person]

• Local Support

• Driving to appts
• Attending appointments to help advocate
• Cooking tolerated foods

• Nutritionally

• Shakes/Drinks

• Joy

• Words of affirmation
• Animal photos or videos
• Mail cards
• Using a program or spreadsheet that allows folks to claim a day/hour(s) during which they check in/send loving messages/whatever the person likes to help with grief/isolation/burnout etc. (aka guarantees no day without contact/encouragement from others.

Next Steps

*This will look different for everyone -- this is your full plan, and from this list you pull out the priorities and put above under “priorities”

Treatments/plans to research

• Ozone IVs for POTS

Doctors to consider

• Dr. Miracle Magic at We Actually Help You Clinic

Ouid O’Clock

If you’re someone who uses cannabis products for symptom management, you can collect what works for you here, though I personally use a spreadsheet ;) In my care plan, I’d link my spreadsheet here.

Toolkit

*When we are out of our window of tolerance, any iota of executive functioning we have goes out the window. Use this space to list all of the things that help, and organize them so you can easily isolate what you are experiencing and what has helped in the past. Left some examples.

• Grounding

• Call a friend
• Music
• A gay little treat
• Filling out this toolkit
• Games/Coloring on the phone

• Modalities that help

• Insomnia/Painsomnia

• Melatonin gummies

• Pain

• Cannabis
• KT Tape
• Salonpas pain patches
• Lidocaine patches
• Biofreeze
• Tiger balm
• Massage

• Gastrointestinal

• Ginger gummies

• Migraine

• Dysautonomia

Admin/Insurance Private Details

*Use this space to provide to pod any info that is necessary for others to make calls and other private admin on their behalf. Will likely require signing off on allowing others to speak to insurance/providers.