Tab 1
How to find your representative:
https://www.house.gov/representatives/find-your-representative or https://www.usa.gov/elected-officials
Subject: Urgent Concern: Oppose the National Autism Registry Initiative
Dear [Representative’s Name],
My name is [Your Name], and I am writing to you not only as a constituent, but as an autistic person who is deeply alarmed by the recent initiative led by Robert F. Kennedy Jr. to establish a national autism registry.
This registry, which would aggregate sensitive private health data—including genomic information, insurance claims, and wearable tech data—poses serious threats to the privacy, dignity, and safety of autistic people across the country. Framing autism as a “preventable disease” and treating autistic individuals as a problem to be solved rather than people with rights is not only dehumanizing—it’s dangerous. It echoes historical practices of surveillance and control that have disproportionately harmed disabled and marginalized communities.
There has been no transparent process, no meaningful autistic representation in the decision-making, and no clear safeguards for informed consent. The lack of ethical oversight, combined with Kennedy’s well-documented promotion of discredited pseudoscience about vaccines and autism, makes this initiative fundamentally untrustworthy.
As someone directly affected by this, I urge you to take a firm stance against the use of federal funds for this initiative and to advocate for its immediate suspension. I also call on you to demand public hearings, robust ethical review, and the involvement of autistic-led organizations in any research concerning our community.
This is not what autism advocacy should look like. We do not need to be cured, traced, or studied like anomalies. We need rights, support, and respect.
Thank you for your attention and your commitment to protecting the civil liberties of all Americans, including autistic ones.
Sincerely,
[Your Name]
Tab 2
How to find your representative:
https://www.house.gov/representatives/find-your-representative or https://www.usa.gov/elected-officials
Subject: Please Oppose the National Autism Registry Initiative
Dear [Representative’s Name],
My name is [Your Name], and I am writing to you today as a caregiver to an autistic person I love deeply. I am extremely concerned about Robert F. Kennedy Jr.’s proposed national autism registry and urge you to take immediate action to halt its development.
This initiative, which seeks to collect vast amounts of personal health information—from genomic data to pharmacy records and wearable device data—targets autistic people under the harmful premise that autism is a disease to be prevented. It reflects a profound misunderstanding of what autism is, and worse, it opens the door to surveillance, stigmatization, and a rollback of rights for a community already too often silenced.
As a caregiver, I have spent years learning how to support autonomy and dignity. The registry does the opposite: it treats autistic people like problems to be solved, not individuals with rights, agency, and value. The lack of transparency, consent, and autistic representation in this initiative should disqualify it from receiving federal support.
Moreover, the fact that this project is spearheaded by someone who has repeatedly promoted discredited conspiracy theories about vaccines and autism only further undermines its credibility and risks deepening public misunderstanding.
I ask you to stand against this registry, call for its suspension, and insist on a process that centers autistic voices and human rights. We need research that empowers autistic people—not efforts that reduce them to data points in a misguided search for a “cure.”
Thank you for your time and for standing up for the values of inclusion, consent, and justice.
Sincerely,
[Your Name]
Tab 3
How to find your representative:
https://www.house.gov/representatives/find-your-representative or https://www.usa.gov/elected-officials
Subject: Take Action: Halt the National Autism Registry Initiative
Dear [Representative’s Name],
My name is [Your Name], and I am writing to you as an ally to the autistic community, deeply concerned about Robert F. Kennedy Jr.’s proposed national autism registry.
This initiative, under the guise of research, proposes to collect massive amounts of sensitive health data—from genetic information to insurance claims—without adequate transparency, ethical oversight, or meaningful consent. It treats autism as a “preventable disease,” a framing that is not only scientifically unfounded, but also profoundly disrespectful and harmful to autistic people.
As someone who believes in civil rights, bodily autonomy, and disability justice, I cannot support a project that reduces an entire population to a data set in search of a “fix.” The registry perpetuates outdated, medicalized views of autism and ignores the expertise, voices, and lived experiences of autistic people themselves.
This is especially troubling given Mr. Kennedy’s history of promoting misinformation, particularly around vaccines and autism—claims that have been thoroughly debunked by the scientific community. Handing him influence over national research priorities involving vulnerable populations is both irresponsible and dangerous.
I urge you to oppose any federal funding for this initiative, demand a full ethical review, and ensure that autistic people and disability rights organizations are given the leadership role in any discussions about autism research moving forward.
Autistic people deserve better. They deserve rights, not registries.
Thank you for your time and your commitment to upholding equity and justice.
Sincerely,
[Your Name]